Life as a Special Guardian – Jayne’s Story

Joanne Southall • April 24, 2025

My name is Jayne. I’m a PCF rep and I look after my nephew with ADHD, autism and developmental trauma. I am a Special Guardian for my nephew and he has lived with me for four and a half years now. In this blog, I’ll explain what special guardianship is, and highlight some of the challenges we face whilst caring for children and young people within our families...


The Prime Minister, Sir Keir Starmer is in the spotlight this week over uncertainty around the continuation of the Adoption and Special Guardianship Support Fund (ASGSF).

This fund provides much needed mental health therapy to traumatised children who are in care, have been in care and those who have been adopted. The fund expires on the 31st March this year, with no word on whether it will continue. Many families are anxious because they don’t know if they will be able to access therapy services in the future.


Special Guardianship is like a foster carer within the family. Grandparents, aunties and uncles across the country take over the care of children within their wider family.  A Special Guardianship Order (SGO) is granted by a judge in court and gives the special guardian parental responsibility alongside the parents. The parental responsibility given to the special guardian is stronger than the parent’s. This allows them to make day to day decisions about the child or young person’s care without having to consult parents. When a court has given a Special Guardianship Order it is often because parents cannot cope with the care of their child. SGO’s run up until the child is 18 years old. Special guardians have a responsibility to manage contact between the child or young person and their parent or parents. Sometimes parents want to see their children, but the children do not. Sometimes parents really let the children down at contact visits. Special guardians are left to deal with the fall out.

As you might imagine, this is a lot of responsibility for a grandparent, aunty or uncle. Special Guardianship Orders can put a lot of strain on families. Sadly, special guardians are not always given the support they need in order to manage these difficulties. Not all parts of the country have a Special Guardianship department. Thankfully, in Cheshire West and Chester we have an amazingly supportive team who provide regular training and support groups whilst signposting to relevant services. They have also ensured we can access some of the training that foster carers do. Special Guardians do not receive the same high level of training as fosters carers, despite looking after the same type of children with similar levels of trauma, neurodiversities and social, emotional and mental health issues.


In general across the UK, special guardians are not treated the same as foster carers, despite doing the same job. Foster carers receive non means tested payments for the children they care for. Special Guardians can apply for a Special Guardianship payment, but they may not receive it, depending on their income. This means that some Special Guardians receive payments from their local council while others receive nothing and struggle financially. Also, if the child never went into care before the SGO was awarded, special guardians cannot access the ASGS fund at all. I had to pay a counsellor privately for my nephew when he first came to me.


Special guardians look after their family members’ children to ensure they have the best chance of a full life. I hope this blog has given you some more information about what a special guardian does.


Please have a look at the Kinship Care website if you’d like to know more

Kinship Care Website


If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867



Join us and have your voice heard at any of our events in 2024/25...

PCF Events
By Joanne Southall June 10, 2025
Coffee Events for parents & carers. Everyone is welcome! Parents will be able to catch up with other parents. Children are welcome!
Cheshire Neurodevelopmental Clinical Network - Update
By Lucy Kennerley June 10, 2025
Neurodevelopmental Support Resources West Cheshire Parent Carer Forum has worked with Cheshire West and Chester Council’s Autism service to coproduce a visual online noticeboard, known as a ‘padlet’.
Keep up to date on all events coming up and signposting to services and events in the area.
By Joanne Southall June 1, 2025
Keep up to date on all of the works we are involved in to ensure that your experiences are heard, events coming up and signposting to services and events in the area. Read our newsletter and our new BLOG area on our website.
National SEND/AP Leadership Programme led by the National Development Team for Inclusion (NDTI).
By Lucy Kennerley May 28, 2025
National SEND/AP Leadership Programme led by the National Development Team for Inclusion (NDTI). We were proud to be the only Local Authority (LA) and Parent Carer Forum (PCF) team to take part together.
Koala North West’s Thriving Families programme
By Joanne Southall May 20, 2025
Koala North West’s Thriving Families programme offers one-to-one, tailored support for parents, carers, and children aged 0–19 (or up to 25 with SEND). Whether it's parenting guidance, mental well-being, or strengthening family relationships, we're here to assist you in a way that works best for you.
On May 14th, 2025, families, professionals, and local leaders came together at Ellesmere Port
By Joanne Southall May 20, 2025
On May 14th, 2025, families, professionals, and local leaders came together at the Holiday Inn, Ellesmere Port for our “Preparation for Adulthood” (PfA) event. This pivotal day focused on ensuring that young people with SEND have the right support, from the early teenage years through to adult life.
Invaluable financial know-how for your SEND family
By Joanne Southall May 20, 2025
Last week, we welcomed Rhiannon Gogh—carer, Chartered Financial Adviser, and founder of the Carers Academy—to lead a powerful webinar on financial planning for parent carers.
We made four clear recommendations off the back of the survey — and we’re proud to say we are well o
By Joanne Southall May 12, 2025
In May 2024, we published the results of our latest Parent Carer Survey — and what we heard was powerful. Families told us, once again, that the system is still not working for them. Communication, co-production, and access to timely support remain major challenges. But this time, something shifted.
PCF AGM 2025
By Joanne Southall May 1, 2025
To register for this event, please click below and we will send you a link nearer the time.
Endorphins April News - available to download and read.
By Joanne Southall May 1, 2025
Endorphins March News - available to download and read.
More Posts