Life as a Special Guardian – Jayne’s Story

Joanne Southall • April 24, 2025

My name is Jayne. I’m a PCF rep and I look after my nephew with ADHD, autism and developmental trauma. I am a Special Guardian for my nephew and he has lived with me for four and a half years now. In this blog, I’ll explain what special guardianship is, and highlight some of the challenges we face whilst caring for children and young people within our families...


The Prime Minister, Sir Keir Starmer is in the spotlight this week over uncertainty around the continuation of the Adoption and Special Guardianship Support Fund (ASGSF).

This fund provides much needed mental health therapy to traumatised children who are in care, have been in care and those who have been adopted. The fund expires on the 31st March this year, with no word on whether it will continue. Many families are anxious because they don’t know if they will be able to access therapy services in the future.


Special Guardianship is like a foster carer within the family. Grandparents, aunties and uncles across the country take over the care of children within their wider family.  A Special Guardianship Order (SGO) is granted by a judge in court and gives the special guardian parental responsibility alongside the parents. The parental responsibility given to the special guardian is stronger than the parent’s. This allows them to make day to day decisions about the child or young person’s care without having to consult parents. When a court has given a Special Guardianship Order it is often because parents cannot cope with the care of their child. SGO’s run up until the child is 18 years old. Special guardians have a responsibility to manage contact between the child or young person and their parent or parents. Sometimes parents want to see their children, but the children do not. Sometimes parents really let the children down at contact visits. Special guardians are left to deal with the fall out.

As you might imagine, this is a lot of responsibility for a grandparent, aunty or uncle. Special Guardianship Orders can put a lot of strain on families. Sadly, special guardians are not always given the support they need in order to manage these difficulties. Not all parts of the country have a Special Guardianship department. Thankfully, in Cheshire West and Chester we have an amazingly supportive team who provide regular training and support groups whilst signposting to relevant services. They have also ensured we can access some of the training that foster carers do. Special Guardians do not receive the same high level of training as fosters carers, despite looking after the same type of children with similar levels of trauma, neurodiversities and social, emotional and mental health issues.


In general across the UK, special guardians are not treated the same as foster carers, despite doing the same job. Foster carers receive non means tested payments for the children they care for. Special Guardians can apply for a Special Guardianship payment, but they may not receive it, depending on their income. This means that some Special Guardians receive payments from their local council while others receive nothing and struggle financially. Also, if the child never went into care before the SGO was awarded, special guardians cannot access the ASGS fund at all. I had to pay a counsellor privately for my nephew when he first came to me.


Special guardians look after their family members’ children to ensure they have the best chance of a full life. I hope this blog has given you some more information about what a special guardian does.


Please have a look at the Kinship Care website if you’d like to know more

Kinship Care Website


If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867



Join us and have your voice heard at any of our events in 2024/25...

PCF Events
By Joanne Southall September 11, 2025
To see other events coming up or to catch up on past events & presentations... click below
By Joanne Southall September 2, 2025
PCF Virtual Forum: Get to know us & Meet the Directors Join us online on Thursday 30th September 2025, 10:00 – 11:30am for a special Virtual Forum! ✨ Learn who we are at the Parent Carer Forum (PCF) ✨ Discover what we do and why we do it on a national an local level ✨ Meet the directors behind the SEND services we help shape This is a free online event and open to all parents and carers of children and young people with a Special Educational Need/Disability age 0-25 in Cheshire West & Chester.  Come along, ask questions, and get to know the parent volunteers working to shape the services in your community! Booking Link Below....
By Joanne Southall September 2, 2025
To see other events coming up or to catch up on past events & presentations... click below
By Joanne Southall September 2, 2025
To see other events coming up or to catch up on past events & presentations... click below
Neurodiversity Profiling Tool pilot Study Team would really value your views.
By Lucy Kennerley September 1, 2025
The Centre for Autism Neuro Developmental Disorders and Intellectual Disabilities (CANDDID) study team are evaluating the Neurodiversity Profiling Tool pilot and would really value your views.
July newsletter
By Lucy Kennerley July 30, 2025
PCF NEWS In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website
The latest Cheshire West and Chester Council SEND Newsletter is out.
By Joanne Southall July 23, 2025
Introduction from Amanda Perraton, Executive Director for Children and Families. Includes updates and stories from SEND services at CWaC.
By Lucy Kennerley July 23, 2025
In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website. Here are some of the latest updates…..
Cheshire West & Chester Summer Holidays Padlet
By Joanne Southall July 16, 2025
Looking for ideas, activities, and support over the summer holidays? Check out the Cheshire West & Chester Summer Holidays Padlet – a growing collection of resources and opportunities for children and young people with Special Educational Needs and Disabilities (SEND)
2025 AGM
By Lucy Kennerley July 16, 2025
At our AGM on 16 July, we looked back on a busy year of parent voice and co-production – and shared important updates on SEND transport.