Life as a Special Guardian – Jayne’s Story

Joanne Southall • April 24, 2025

My name is Jayne. I’m a PCF rep and I look after my nephew with ADHD, autism and developmental trauma. I am a Special Guardian for my nephew and he has lived with me for four and a half years now. In this blog, I’ll explain what special guardianship is, and highlight some of the challenges we face whilst caring for children and young people within our families...


The Prime Minister, Sir Keir Starmer is in the spotlight this week over uncertainty around the continuation of the Adoption and Special Guardianship Support Fund (ASGSF).

This fund provides much needed mental health therapy to traumatised children who are in care, have been in care and those who have been adopted. The fund expires on the 31st March this year, with no word on whether it will continue. Many families are anxious because they don’t know if they will be able to access therapy services in the future.


Special Guardianship is like a foster carer within the family. Grandparents, aunties and uncles across the country take over the care of children within their wider family.  A Special Guardianship Order (SGO) is granted by a judge in court and gives the special guardian parental responsibility alongside the parents. The parental responsibility given to the special guardian is stronger than the parent’s. This allows them to make day to day decisions about the child or young person’s care without having to consult parents. When a court has given a Special Guardianship Order it is often because parents cannot cope with the care of their child. SGO’s run up until the child is 18 years old. Special guardians have a responsibility to manage contact between the child or young person and their parent or parents. Sometimes parents want to see their children, but the children do not. Sometimes parents really let the children down at contact visits. Special guardians are left to deal with the fall out.

As you might imagine, this is a lot of responsibility for a grandparent, aunty or uncle. Special Guardianship Orders can put a lot of strain on families. Sadly, special guardians are not always given the support they need in order to manage these difficulties. Not all parts of the country have a Special Guardianship department. Thankfully, in Cheshire West and Chester we have an amazingly supportive team who provide regular training and support groups whilst signposting to relevant services. They have also ensured we can access some of the training that foster carers do. Special Guardians do not receive the same high level of training as fosters carers, despite looking after the same type of children with similar levels of trauma, neurodiversities and social, emotional and mental health issues.


In general across the UK, special guardians are not treated the same as foster carers, despite doing the same job. Foster carers receive non means tested payments for the children they care for. Special Guardians can apply for a Special Guardianship payment, but they may not receive it, depending on their income. This means that some Special Guardians receive payments from their local council while others receive nothing and struggle financially. Also, if the child never went into care before the SGO was awarded, special guardians cannot access the ASGS fund at all. I had to pay a counsellor privately for my nephew when he first came to me.


Special guardians look after their family members’ children to ensure they have the best chance of a full life. I hope this blog has given you some more information about what a special guardian does.


Please have a look at the Kinship Care website if you’d like to know more

Kinship Care Website


If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867



Join us and have your voice heard at any of our events in 2024/25...

PCF Events
PCF newsletter May 2026
By Lucy Kennerley May 22, 2026
Welcome Back to Your Parent Carer Forum Update 💛 From shaping national SEND reform to influencing local services right here in Cheshire West and Chester, this newsletter is packed with your voice!
By Lucy Kennerley May 18, 2026
We will be discussing SEND Reform National Consultation Schools White Paper: Education, Inclusion and Mental Health Forum on 12th May at Vicars Cross Golf Club, Tarvin, Chester
Results from the CWaC PCF Survey 2026
By Joanne Southall May 18, 2026
Your feedback will shape future SEND services across health, education, social care and the community. Read the results from our Survey 2026.
By Lucy Kennerley May 18, 2026
An informative and supportive session designed for parents, carers of young people with SEND in Cheshire West &Chester. Find out what short breaks are available.
Education & Mental Health Forum from the PCF Cheshire West & Chester
By Joanne Southall May 16, 2026
Education & Mental Health Forum from the PCF Cheshire West & Chester. Local education and mental health services. SEND Reforms – What You Need to Know.
New PCF CWaC Newsletter Out Now!
By Lucy Kennerley May 11, 2026
New PCF CWaC Newsletter Out Now! Catch up on upcoming events, SEND reform consultation news, practical resources, coffee events, webinars and support for families. Lots of opportunities to stay informed, get involved and have your voice heard.
Supporting Education: SEND Parent Training Webinar
Gain practical advice and confidence
By Joanne Southall May 5, 2026
Supporting Education: SEND Parent Training Webinar Gain practical advice and confidence to support your child in school. PCF Cheshire West and Chester Practical • Supportive • Informative Helping you feel confident working with your child’s school
Reasonable adjustments come from a legal duty under the Equality Act 2010.
By Lucy Kennerley April 24, 2026
Reasonable adjustments come from a legal duty under the Equality Act 2010. Schools must remove barriers for disabled pupils by making practical, appropriate changes that allow them to access learning like everyone else.
“Knowing ME!” neurodiversity profiling tool, being developed across Cheshire and Merseyside
By Lucy Kennerley April 24, 2026
I had the pleasure of presenting alongside brilliant speakers and the CANDDID study team on the “Knowing ME!” neurodiversity profiling tool, currently being developed across Cheshire and Merseyside.
CWaC Newsletter
By Joanne Southall March 30, 2026
The Live Well Newsletter will be published bi-monthly to provide you with latest updates and information. It is also your opportunity to get involved, have your say and improve our Live Well/Local Offer Cheshire West Website.