pcf-cwac

Understanding Quality First Teaching and Reasonable Adjustments

Fri, 24 Apr 2026 20:12:02 GMT

It has been wonderful to work alongside the Principal Educational Psychologist and colleagues from across education, health and care to co-produce the infographic on Reasonable Adjustments.

We know that families often tell us that the difference between Quality First Teaching (QFT) and reasonable adjustments can feel confusing. Schools sometimes feel unsure too — and this can lead to inconsistency for children and young people.

So together, we’ve set out some clear myth-busting to help everyone understand what schools must already be doing for all pupils, and what additional, individual changes some children may need.

QUALITY FIRST TEACHING (QFT)
QFT is the baseline expectation in every classroom. It is what teachers should already be doing for every pupil, including those with SEND. It is part of high-quality everyday practice.

Examples of QFT include:
• Clear instructions broken down into steps
• Visual supports used with all pupils
• Flexible seating
• Regular checking of understanding
• Scaffolding tasks
• Differentiation within lessons

REASONABLE ADJUSTMENTS
Reasonable adjustments come from a legal duty under the Equality Act 2010. Schools must remove barriers for disabled pupils by making practical, appropriate changes that allow them to access learning like everyone else.

Examples include:
• Movement breaks
• Reduced timetables
• Alternative recording methods
• Quiet spaces or time-out cards
• Sensory adaptations like ear defenders
• Adjusted behaviour expectations

REAL-LIFE SCENARIOS
Bobby has sensory differences and does not wear clothing made of certain textiles. A reasonable adjustment that has been agreed is that Bobby wears jogging trousers and a cotton t-shirt at school instead of grey school trousers and a polo shirt. This means he can focus on learning at school instead of trying to ignore uncomfortable sensations from clothing.

Bobby is partially deaf and struggles to hear staff when they are presenting. A live stream of the teaching with auto-captions is a reasonable adjustment so that Bobby is able to read and replay parts of the lesson that he does not catch immediately. This means that Bobby can work in real time with his classmates.

Bobby experiences fatigue from attending school and finds it difficult to complete homework tasks. A reasonable adjustment is that Bobby is only expected to complete homework tasks for pre-learning of content , and staff support Bobby to use multimedia and interactive resources instead of traditional paper-based materials to minimise time spent studying outside of school.

Bobby has social communication differences and can speak over the top of other pupils. A reasonable adjustment is that staff offer Bobby paired work instead of small group work , and staff tolerate lack of turn taking . The reasonable adjustments mean that Bobby feels that his contributions are valued.

Bobby experiences anxiety in classroom settings. Reasonable adjustments are that Bobby is able to complete his work in the library when he prefers to do so and that vocal and movement-based stimming is accepted in the classroom. Bobby is therefore able to remain regulated and learn more effectively.

WHY THIS MATTERS
Reasonable adjustments are essential for equal access, belonging, wellbeing and improved participation. They help ensure every child in Cheshire West & Chester can thrive.

For more information on the PCF and what we do ...

click below

Visit our 'What's On' page to join us at one of our forums or coffee drop-in events in 2026 or you can catch up on past events with our videos, presentations, information and event coverage.

Presenting the Knowing ME profiling tool at the CANDDID Conference 2026

Fri, 24 Apr 2026 19:54:29 GMT

I had the pleasure of presenting alongside brilliant speakers and the CANDDID study team on the “Knowing ME!” neurodiversity profiling tool, currently being developed across Cheshire and Merseyside.

This work focuses on creating a more neuro-inclusive way to understand children and young people — recognising strengths, needs and lived experiences. The aim is to support earlier conversations and enable more personalised, strengths-based support.

It was inspiring to share the stage with such passionate professionals and researchers, and to see strong interest in how the Knowing ME! tool can help drive a shift towards more neuro-affirmative approaches.

The conference brought together over 275 delegates from lived experience, health, education and social care at the seventh annual CANDDID conference. The day offered a valuable opportunity to hear from national experts on meeting the needs of neurodivergent people, particularly in the context of the NHS Fit for the Future 10-Year Health Plan.

Discussions highlighted both the urgency of addressing inequalities and the shared ambition to create meaningful, evidence-informed change. There were also valuable opportunities to connect, share learning and build relationships across sectors.

CANDDID, based in Chester and hosted by Cheshire and Wirral Partnership NHS Foundation Trust, plays an important role in bringing together people with lived experience, clinicians, practitioners and academics to drive forward research, training and education in neurodevelopment and intellectual disabilities.

Days like this are a powerful reminder of the importance of co-production and lived experience in shaping better systems.

Find out more:

CANDDID Conference 2026: https://www.canddid.nhs.uk/conf26
Local neurodevelopment profiling work: https://www.pcfcheshirewest.org/nd-profiling-tool-update
Cheshire & Merseyside Neurodevelopment Pathway:
https://www.cheshireandmerseyside.nhs.uk/your-health/cheshire-and-merseyside-neurodevelopment-pathway/

For more information on the PCF and what we do ...

click below

Visit our 'What's On' page to join us at one of our forums or coffee drop-in events in 2026 or you can catch up on past events with our videos, presentations, information and event coverage.

CWaC LiveWell Newsletter - March 2026

Mon, 30 Mar 2026 18:48:59 GMT

The Live Well Newsletter will be published bi-monthly to provide you with latest updates and information. It is also your opportunity to get involved, have your say and improve our Live Well/Local Offer Cheshire West Website. Click Below to Read the March 2026 Issue.

Join us and have your voice heard at any of our events...

Understanding Mental Capacity Webinar Overview from 26 March 2026

Mon, 30 Mar 2026 15:04:12 GMT

Thank You for Joining Us

Thank you to everyone who joined our Understanding Mental Capacity for Young People with SEND webinar last night. We were delighted to welcome so many parents and carers wanting to build confidence around decision‑making as their young people move toward adulthood.

During the session, Kevin McManamon, Partner at Winckworth Sherwood LLP, guided us through the key principles of the Mental Capacity Act and explained how capacity is assessed for different types of decisions. He also outlined the roles of the Court of Protection, the differences between Deputyships and Lasting Powers of Attorney, and how mental capacity issues can arise in the SEND Tribunal.

Kevin’s insights — drawn from nearly 20 years of representing children and young people with SEND — helped bring clarity to what can often feel like a complex and overwhelming topic.

We hope you found the session useful and reassuring.

Access the Recording & Presentation Slides

You can now watch the seminar recording and download the accompanying slides using the links below:

To see other events coming up or to catch up on past events & presentations...

click below

Newsletter March 2026

Mon, 30 Mar 2026 13:49:32 GMT

Your March Parent Carer Forum News is Here!
Dive into everything happening for parent carers in Cheshire West & Chester this month!

Read the full update and get all the links here:

Sign up here and get future newsletters directly to your inbox!

 For all our upcoming events, visit: Parent Carer Forum | Whats On

To help keep you up to date with everything we’re involved in, we’ve also created a brand-new Blog & Noticeboard area, where you can find the latest news, updates, and insights from the PCF team.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

www.livewell.cheshirewestandchester.gov.uk/Services/1279

SEN Team - Tel 0151 337 6505
senteam@cheshirewestandchester.gov.uk

Starting Well - www.startingwell.org.uk/

West Cheshire 0-16 CAMHS Tel - 01244 393200
www.cwp.nhs.uk/services-and-locations/services/west-cheshire-0-16-camhs/

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Education & Mental Health Forum - May 2026

Fri, 27 Mar 2026 19:43:18 GMT

Join us for an informative and supportive event for parent carers.

Are you a parent or carer of a child or young person with SEND in Cheshire West and Chester Council ?

Come along to our in-person forum to better understand how local services work, what support should be available, and have your say on future changes.

Location: Vicars Cross, Chester

Time: 10:00am – 2:00pm

What’s it all about?

This forum is designed to help you:

Understand roles within local SEND education, inclusion and mental health services

Update on the PCF Survey

Learn what support should ordinarily be available and reasonable adjustments

Hear updates from the Local Authority

Explore what national SEND reforms could mean for your family

Share your views and shape the PCF response

Agenda Highlights:

• Director of Education update & Ofsted reflections

• National SEND Reform White Paper overview

• Tabletop discussions to share your views

Marketplace & Support Services Include:

Speak directly with:

• Live Well

• Children & Young Peoples Mental Health Services

• Autism Practical Support

• Youth Services

• ⁠Youth Fed

…and more

Includes breaks, afternoon tea, and plenty of time to chat and connect with other parent carers.

Your voice matters – come along, get informed, and help shape what happens next

To see other events coming up or to catch up on past events & presentations...

click below

Interface Between Neurodiversity and Mental Health Pathways

Wed, 25 Mar 2026 21:04:57 GMT

Reflections from an event at Alder Hey Children’s Hospital – 25th February 2025

Jayne and Rachel, parent carer volunteers, attended this event alongside professionals from across Cheshire and Merseyside to explore how to better support neurodivergent children and young people to access mental health services.

The event focused on addressing the ongoing gap between need and access, with a strong emphasis on improving pathways and collaboration across services.

Key Messages from the Event

• Many mental health services exist, but families often don’t know how to find them

• There is a need for a “single front door” to make access clearer

• Support while waiting for services remains a significant gap

• Short-term interventions, such as six therapy sessions, are often not enough

Examples of good practice included:

• The Branch Wirral

• Zillo Wirral

Updates were also shared from Children and Young People’s Mental Health Services, including demand pressures and evolving assessment pathways for neurodivergent children and young people.

Parent Voice

Our representative Rachel went to speak and share lived experience:

“I had the pleasure of speaking about ND and mental health at Alder Hey from a lived experience perspective as a parent of 2 ND young people, who have had their own experiences of MH issues. Although it was nerve wracking, there was a lot of support from the room.

I didn’t manage to say all I wanted. But I can honestly say it was a great experience. I also stayed for the sessions and was able to learn about how progress is taking place.”

In Summary

There are positive signs of progress, particularly in recognising the needs of neurodivergent children within mental health services. However, families continue to need clearer pathways, earlier support, and more joined-up services.

Co-production and lived experience must remain central as this work moves forward.

Thank you to Rachel and Jayne for representing Cheshire West & Chester

For more information on the PCF and what we do ...

click below

Visit our 'What's On' page to join us at one of our forums or coffee drop-in events in 2026 or you can catch up on past events with our videos, presentations, information and event coverage.

Supporting Education: SEND Parent Training Webinar - April 30th 2026

Tue, 24 Mar 2026 19:23:35 GMT

Thursday 30th April 2026

10am - 11.30am

To see other events coming up or to catch up on past events & presentations...

click below

Benefits & Support from March 2026

Thu, 19 Mar 2026 13:11:56 GMT

Benefits and Support Webinar: Connecting Families to SEND Support in Cheshire West and Chester

We recently hosted a Benefits and Support virtual webinar to help families understand the wide range of support available for children and young people with SEND across Cheshire West and Chester.

The session brought together a number of organisations and professionals who work with families every day, sharing information, advice and practical support.

Because many parents and carers are balancing work, school runs and caring responsibilities, the webinar was recorded so families who could not attend live can watch it back later.

These sessions are designed to ensure families know what support exists locally and how to access it.

Understanding Benefits and Financial Support

The webinar began with a presentation from Citizens Advice Cheshire West, who provided an overview of the benefits and financial support available to families with disabled children and young people.

Their session helped families better understand:

what financial support may be available
how different benefits work together
how to apply for support
where to go for help with applications or appeals.

Navigating the benefits system can feel overwhelming for many families, so having the opportunity to hear directly from Citizens Advice and ask questions was incredibly valuable.

Citizens Advice offers free, confidential and independent advice, supporting families with a range of issues including benefits, housing, employment and debt.

Citizens Advice Cheshire West

https://www.citizensadvicecw.org.uk

Carer Support

Cheshire and Warrington Carers Trust support families in a range of meaningful ways. They provide activities for children and young people, offer funding for carers to enjoy short breaks, and run family activities that give everyone the chance to unwind and reconnect. The team also offers emotional support and guidance around benefits and entitlements. In addition, they host regular coffee sessions across Chester, Ellesmere Port, Maples and Frodsham, giving carers a friendly and welcoming space to meet others and access advice.

Cheshire and Warrington Carers Trust

https://www.cheshireandwarringtoncarers.org

Short Breaks and Inclusive Activities

One of the areas families often ask about is short breaks and inclusive activities.

There are several services across the borough that support children and young people with SEND to access activities while also giving parents and carers a break.

Disability Positive

Disability Positive offers the Community Connections Fund.

Families whose child receives Disability Living Allowance at middle care rate or above can access up to £1,000 towards an activity for their child.

This might include things like:

animal therapy
inclusive clubs
specialist activities.

While children attend these activities, it also provides a short break for parents and carers, giving families valuable time to recharge — sometimes even just time to enjoy a quiet cup of tea.

Disability Positive also supports families with:

advocacy
understanding Direct Payments
managing Personal Health Budgets
social groups for children and young people of different ages.

• Disability Positive

https://www.disabilitypositive.org

Endorphins Group

Another organisation providing inclusive opportunities is Endorphins.

They run inclusive group sessions for children and young people, usually around four hours long.

These sessions allow children to:

take part in activities
socialise with peers
build friendships.

Sessions take place across the borough including:

Ellesmere Port
Winsford
Chester

They also run an after-school club at Dorin Park School.

• Endorphins Group

https://endorphins.uk

Parent Coffee Events and Peer Support

Peer support can be just as important as professional support.

Across Cheshire West and Chester, many parent-led groups provide safe and welcoming spaces where families can connect with others who understand their experiences.

We are incredibly grateful to our fantastic parent volunteers who host regular SEND coffee mornings, creating opportunities for families to come together, share experiences and support each other.

These sessions are informal and welcoming — sometimes the most valuable support is simply meeting someone who understands your journey.

More parent Carer Coffee Events can be found here: Parent/Carer Coffee Events

Community Coffee Events and Early Help

The Parent Carer Forum also runs parent coffee events in partnership with Starting Well Cheshire West.

These events take place in Starting Well centres across the borough and offer families the chance to:

meet other parents and carers
speak to professionals in a relaxed environment
learn about local services.

Professionals often attending include:

Early Help Navigators
members of the disability team
local SEND services.

Early Help services play an important role in supporting families early, helping prevent challenges from escalating and ensuring families receive the right support at the right time.

More Parent Carer Coffee Events can be found here: Parent/Carer Coffee Events

Community Support at Petty Pool

Another wonderful community space for families is Petty Pool Trust.

Petty Pool offers a community drop-in coffee event, giving parents and carers a welcoming place to connect with others.

They also provide:

activities for young people
support for post-16 young people with additional needs
opportunities for social development and independence.

Having accessible community spaces like this helps families feel connected and supported within their local area.

Support from SPACE Charity

Families can also access support from SPACE Cheshire, a charity that supports children and young people with disabilities and their families.

SPACE provides:

family support services
inclusive activities
a fantastic accessible play area
training opportunities for families and professionals
regular coffee events where parents and carers can meet and share experiences.

Their work plays an important role in creating inclusive opportunities for families across the borough.

SPACE Cheshire

https://spacecheshire.org

Virtual Webinars and Recorded Events

For families who cannot attend events in person, we also host virtual webinars.

These sessions are recorded and uploaded to our YouTube channel so families can watch them back at a time that suits them.

Upcoming sessions include:

Understanding Mental Capacity
Supporting Children in Education.

Links to these sessions will be shared in follow-up communications and can also be found on our website.

Find out what’s on here: Parent Carer Forum | Whats On

and watch back what you’ve missed on our YouTube channel: https://www.youtube.com/@pcfcwac6168

Learning Through Training and Resources

Our YouTube channel also hosts a number of webinars linked to the Partnership for Inclusion of Neurodiversity in Schools (PINS) project.

These sessions share learning that schools have received through the project, including topics such as:

neurodiversity awareness
trauma and neurodivergence
reasonable adjustments
sensory needs
sensory challenges around food.

These sessions are helpful for both parents and professionals supporting children with additional needs. Ypu can view these on our YouTube Channel: https://www.youtube.com/@pcfcwac6168

Information, Advice and SEND Support

Families also heard about the work of the Cheshire West SEND Information Advice and Support Service, which provides free and impartial support for families.

They can help with:

understanding SEND law
preparing for meetings with schools
mediation and tribunal support
transport issues
navigating the education system.

They also help families understand the SEND Code of Practice and the process around Education, Health and Care Plans (EHCPs).

Watch back the latest webinar here: https://youtu.be/bXFO16nsQrc?si=PIKQSJp2d-Q2ZQyV

Local Charities Supporting Families

There are many local charities working hard to support families across the borough.

Autism Practical Support

This organisation offers:

regular parent coffee sessions
family activities
A Parent Empowerment Course focused on autism and practical strategies.

Autism Practical Support

https://www.autismpracticalsupport.co.uk

Tiny Steps

Tiny Steps provides:

inclusive activities for children and young people
opportunities for parents and carers to meet and support each other.

National Support for Families

Families can also access support from national organisations such as Contact (charity), which supports families with disabled children across the UK.

They offer:

webinars on topics such as speech and language, behaviour and education
information resources
a Listening Ear service for parents who may need emotional support or someone to talk to.

CONTACT

https://contact.org.uk

The Local Offer

Another useful resource is the Cheshire West and Chester Local Offer, which sits within Live Well Cheshire West.

The Local Offer acts as a directory of SEND support across the borough, including:

activities and groups
health services
education support
social care services.

While it contains a large amount of information, it can sometimes take time to find what you are looking for. However, it remains one of the best starting points when searching for local SEND support.

Live Well Cheshire West

https://www.livewell.cheshirewestandchester.gov.uk

Staying Connected

Families can stay up to date with support, events and opportunities by:

signing up to our monthly newsletter PCF Newsletter Sign-Up
following us on Facebook https://www.facebook.com/pcfcwac
keep visiting our website
subscribing to our YouTube channel. http://www.youtube.com/@pcfcwac6168

Thank You

Thank you to everyone who attended the webinar and to the professionals making it a success.

If you were unable to attend, you can catch up on the recording & p resentations below.

By working together and sharing information, we can ensure families across Cheshire West and Chester know where to turn for support and how to access it.

To see other events coming up or to catch up on past events & presentations...

click below

Parent/Carer Coffee Events

jo.southall@hotmail.com (Joanne Southall) — Fri, 13 Mar 2026 21:38:26 GMT

Come along to catch up with other parents in an informal setting. Stay for 5 minutes or the whole session.

PCF Coffee Events - free, informal sessions, where parents will be able to chat to other parents. Some hosted by us, others we will be attending.

People from education, health, SEN services and charities will pop along to some coffee mornings so you can ask them any questions about accessing their services.

Children are very welcome!

PCF Drop-In / coffee events coming soon...

Friday 1st May 2026

Neston Community Centre

Burton Rd, Little Neston, Neston CH64 9RE

10:00am -12.00pm

Friday 12th June 2026

Stanlaw Abbey Children’s Centre

Alnwick Dr, Ellesmere Port CH65 9HE

10:00am - 12.00 pm

Other regular coffee & drop-in events in Cheshire West and Chester...

Newsletter February 2026

Fri, 13 Mar 2026 11:27:00 GMT

Your February Parent Carer Forum News is Here!
Dive into everything happening for parent carers in Cheshire West & Chester this month!

Read the full update and get all the links here:

Sign up here and get future newsletters directly to your inbox!

 For all our upcoming events, visit: Parent Carer Forum | Whats On

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Preparation for Adulthood - Feb 2026

Wed, 11 Mar 2026 14:54:41 GMT

Preparation for Adulthood Event

On 26th February 2026, families from across Cheshire West came together for a day packed with support, guidance, and reassurance about the journey into adulthood for young people with SEND. The event brought together experts from education, health, social care, legal services, and housing — all with one shared goal: helping our young people move confidently into their adult lives.

Thank you to all our speakers, young people and services in the market place for making this a wonderful day

You can view the presentations of the day below...

Preparation for adulthood, Health, Education & Social Care

Wills & Trusts

To see other events coming up or to catch up on past events & presentations...

click below

Easter Holiday Clubs & Activities

jo.southall@hotmail.com (Joanne Southall) — Sun, 08 Mar 2026 12:21:14 GMT

Holiday Clubs and Activities for Easter

PINS Project - Phase 2

Thu, 12 Feb 2026 17:56:41 GMT

The second year of the ‘Partnership for the Inclusion of Neurodiversity in Schools’ (PINS) project is now underway in three mainstream primary schools in Cheshire West and Chester. The schools are: Charles Darwin Primary School and Witton Church Walk CE Primary School in Northwich and Wharton CE Primary School in Winsford. All schools have completed a self-assessment and identified priorities for developing their skills and knowledge of Inclusion and Neurodiversity.

Parent Carer Forum volunteers have facilitated meetings with parents and school leaders and will be visiting schools again in January along with representatives from Koala NW , Autism Practical Support and SENDIASS (Special Educational Needs and Disabilities Information, Advice and Support Service). Schools are taking part in online training that is open to every member of staff.

You can find a list of the topics that are being covered by the training and some resources and recordings of online sessions on the links below and on our PINS webpage . We will continue to update the website as the sessions take place. We welcome new volunteers from all schools and would particularly like to encourage parent carers in the PINS project schools to volunteer to represent their schools so that the aims of the project can become fully embedded.

To find out more about the PINS project please visit our PINS webpage or contact Vanessa Usai on vanessa@pcfcheshirewest.org .

For more information on the PCF and what we do ...

click below

Endorphins latest Newsletter

jo.southall@hotmail.com (Joanne Southall) — Sun, 01 Feb 2026 12:21:06 GMT

Please find the latest News from Endorphins, showcasing some of the things they have been up to at Endorphins last month.

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events...

Newsletter January 2026

Mon, 26 Jan 2026 12:41:06 GMT

Your January Parent Carer Forum News is Here!
Dive into everything happening for parent carers in Cheshire West & Chester this month!

From vital updates on the 2026 PCF Survey (closing soon on 6th February), to details on upcoming SEND events, webinars and training.

Book onto our Preparation for Adulthood event at Civic Hall, read highlights and watch the recording from our SENDIASS webinar, and find out how the Neurodiversity Profiling Tool “Knowing Me” is being rolled out in schools and to book onto the parents awareness training.

Plus, there’s news from national SEND discussions, local coffee meet-ups, and ways you can get involved.

Read the full update and get all the links here:

Sign up here and get future newsletters directly to your inbox!

 For all our upcoming events, visit: Parent Carer Forum | Whats On

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

PCF Cheshire West & Chester: National SEND Discussions – Brief Update

Sun, 25 Jan 2026 14:29:52 GMT

This week, we took part in national SEND discussions. These were hosted by the National Network of Parent Carer Forums (NNPCF) as part of the Department of Education’s current work on SEND reforms.

Early years and inclusion

One session focused on Early Years provision and inclusion, structured around five SEND reform principles: Early, Local, Fair, Effective and Shared. The Minister for Early Education attended to hear directly from parent carers.

Families shared experiences relating to:

Access to support at an early stage

Transitions into primary school

Access to appropriate early years settings

The information shared during this session will be collated by the NNPCF and shared with the government as part of wider SEND reform discussions.

Accountability and trust

We also attended a national meeting with the Minister for School Standards focusing on possible approaches to system change, including:

How accountability should work within a reformed SEND system

How trust between families and services can be rebuilt

How mainstream education could better include children and young people with SEND

The strength and an impact of parent carer voices shared through Parent Carer Forums was recognised by the Minister.

Training and children’s rights

A key message from PCF Cheshire West to the government has been the importance of investing in SEND training for education and early years professionals. The government has announced £200 million in funding for such training, and the PCF is following carefully for further details of how this funding will be distributed and used.

Families have raised concerns about possible changes to children and young people’s legal rights, including changes to Education, Health and Care Plans (EHCPs). No details of changes have yet been published. Parent Carer Forums and SEND campaign groups are continuing to work together nationally to monitor developments and raise concerns where needed. We fully support the need to protect children and young people’s legal rights within SEND provision.

Looking ahead

The government now has a wealth of information from families, Parent Carer Forums and national groups. This includes lived experience, evidence and data. We hope that the government will use this evidence and show, in the resulting White Paper, its commitment to meaningful improvement in supporting children with SEND.

We will continue to represent families’ voices nationally through the National Parent Carer Forum, doing everything in our power to secure better outcomes for children and young people with SEND.

For more information on the PCF and what we do ...

click below

Visit our 'What's On' page to join us at one of our forums or coffee drop-in events in 2026 or you can catch up on past events with our videos, presentations, information and event coverage.

Naming Schools in Education Health Care Plans (EHCPs)

Thu, 22 Jan 2026 13:30:05 GMT

This guide also shows what to do if you disagree, and gives links to helpful guidance.

The Law This Guide Is Based On:

Children and Families Act 2014

Education Act 1996

SEND Code of Practice (2015)

These laws apply to all local authorities in England, including Cheshire West and Chester.

1. Your Right to Ask for a School

Parents have a legal right to ask for certain types of schools to be named in their child’s EHCP.

�� Children and Families Act 2014 – Section 38

You can ask for:

A maintained nursery or maintained school
A mainstream or special academy or free school
A non-maintained special school
A further education or sixth-form college
An independent special school approved under Section 41

�� If the school is listed above, the council must consider your request .

2. When Must the Council Agree?

The council must name your preferred school unless one of the legal exceptions applies.

�� Children and Families Act 2014 – Section 39(4)

The council can only refuse if naming the school would be:

❌ Unsuitable for your child’s age, ability, aptitude or SEN , or
❌ Incompatible with the efficient education of other children , or
❌ Incompatible with the efficient use of public resources

3. What Is a Section 41 School?

A Section 41 (S41) school is an independent special school approved by the Secretary of State.

�� Children and Families Act 2014 – Section 41

Section 41 schools:

Are on a national, government-approved list
Meet required education and safeguarding standards
Are inspected and monitored regularly

✔ If a parent asks for a Section 41 school, the council has a legal duty to consult with that school.

4. What Is a Non-Section 41 School?

A non-S41 school is an independent school that is not approved under Section 41.

�� SEND Code of Practice 2015 – paragraph 9.84

This means:

The council is not under the same legal duty to consult or name the school
Parents can still ask for the school to be considered
The council must balance parental wishes against lawful criteria

Non-S41 schools do not have the same level of regulation or oversight as Section 41 schools.

5. Why Does the Council Talk About Cost?

Parents often ask:

“Where does ‘value for money’ come from?”

�� The answer is in the law:

Children and Families Act 2014 – Section 39(4)(b)
Education Act 1996 – Section 9
SEND Code of Practice 2015 – paragraph 9.84

The law says children should be educated in line with parents’ wishes as long as this does not result in unreasonable public expenditure .

This means councils must consider:

Whether the placement meets need
Whether it is proportionate
Whether public funds are being used responsibly

�� Cost cannot be the only reason , but it can be a lawful factor .

6. How the Council Considers Non-S41 Schools

When a non-S41 school is requested, the council may look at:

✔ Inspection and safeguarding arrangements
✔ Leadership and governance
✔ Willingness to enter into contracts
✔ Ability to monitor quality and outcomes
✔ Whether the placement is necessary and proportionate
✔ Whether it represents an efficient use of public resources

If these assurances are not in place, the school may not be named.

7. Key Stage Transfers and In-Year Moves

At key stage transfer points (for example, Year 5 to Year 6):

Parents can express a preference
The type of provision is discussed at review meetings
Recommendations are considered by education governance panels
Formal preferences are submitted through the admissions process

If a non-S41 school is requested:

The council is not legally required to consult
Consultation may still happen in limited circumstances

8. If You Disagree With the Decision

�� Children and Families Act 2014 – Sections 51–53

You can:

Discuss concerns with your case officer
Contact SEND Information and Advice Support Service
Use mediation
Appeal to the SEND Tribunal

⚠️ Important to know:

A tribunal cannot force a non-S41 school to admit a child
A formal offer from the school is needed for tribunal consideration

The Special Educational Needs (SEN) Team

The Special Educational Needs (SEN) Team are responsible for considering requests from Educational Institutions and Parents/Young People for Education, Health and Care Needs Assessments...

Telephone: 0151 3376505

Email: senteam@cheshirewestandchester.gov.uk

SEND Information, Advice and Support Service (SENDIAS)
This service gives free, impartial information, advice and support on SEN and disability issues.

Cheshire West and Chesters Policy Guidance

Section 41 and Non Section 41 Schools

Key References

1. Children and Families Act 2014

Full legislation: https://www.legislation.gov.uk/ukpga/2014/6/contents/enacted
Section 38 (Parental right to request a school): https://www.legislation.gov.uk/ukpga/2014/6/section/38/enacted
Section 39(4) (Local authority duty and exceptions): https://www.legislation.gov.uk/ukpga/2014/6/section/39/enacted
Section 41 (Approval of independent schools): https://www.legislation.gov.uk/ukpga/2014/6/section/41/enacted
Sections 51–53 (Mediation and SEND Tribunal): https://www.legislation.gov.uk/ukpga/2014/6/part/3

2. Education Act 1996

Full legislation: https://www.legislation.gov.uk/ukpga/1996/56/contents
Section 9 (Efficient instruction, parental wishes, public expenditure): https://www.legislation.gov.uk/ukpga/1996/56/section/9

3. SEND Code of Practice (2015)

Full guidance: https://www.gov.uk/government/publications/send-code-of-practice-0-to-25
Paragraph 9.84 (Independent/non-S41 schools): https://www.gov.uk/government/publications/send-code-of-practice-0-to-25#para-9-84

4. North West Association of Directors of Children’s Services (NWADCS) – Regional Purchasing System

Overview: https://www.nwadcs.org.uk/

5. IPSEA – Choosing a school or college with an EHCP

Independent advice: https://www.ipsea.org.uk/

6. GOV.UK – Independent special schools and post-16 institutions

Approved institutions: https://www.gov.uk/government/publications/independent-special-schools

For more information on the PCF and what we do ...

click below

Visit our 'What's On' page to join us at one of our forums or coffee drop-in events in 2026 or you can catch up on past events with our videos, presentations, information and event coverage.

Information Advice Support Service (IASS) - How we can help you navigate the SEND system?

jo.southall@hotmail.com (Joanne Southall) — Mon, 19 Jan 2026 18:01:43 GMT

Thank You to IASS and Our Parent Carers – Helping Families Navigate the SEND System

We would like to say a huge thank you to the Cheshire West SEND Information, Advice and Support Service (IASS) for delivering such an informative, practical and empowering session to our parent carers this week.

The session focused on helping families better understand and navigate the SEND system – from SEN Support and Quality First Teaching, through to the EHCP process, timescales, rights and routes for resolving disagreements. IASS shared clear, accessible guidance grounded in the SEND Code of Practice, helping parents to understand not only what should happen, but why, and where the law supports their child’s needs.

What really stood out was IASS’s commitment to empowering parents, rather than speaking for them – giving families the confidence, knowledge and tools to participate meaningfully in decisions about their child’s education. The honest discussion around common challenges, delays and disagreements was invaluable, as was the practical advice on preparing for meetings, understanding paperwork and knowing when and how to escalate concerns.

We also want to extend a heartfelt thank you to the parents and carers who attended. Your engagement, thoughtful questions and willingness to share experiences are what make sessions like this so powerful. These conversations not only help individual families, but also strengthen the collective voice of parent carers across Cheshire West and Chester.

Events like this underline the importance of partnership working between parent carers, IASS and the Parent Carer Forum. Together, we can ensure families are informed, supported and better equipped to navigate what can often feel like a complex and overwhelming system.

Thank you again to IASS for your time, expertise and continued support for families – and to every parent carer who joined us and continues to advocate for their child every day.

You can watch the video and view the slides back here

Here were some questions from parents that have been answered
Questions from parents

Newsletter December 2025

Fri, 19 Dec 2025 10:14:33 GMT

PCF DECEMBER NEWS

Here's our November newsletter link....

Sign up here and get future newsletters directly to your inbox!

PLUS....To keep you up to date on all of the work, that we are involved in, go to our new BLOG/noticeboard area....

A Christmas Message from Your Parent Carer Forum

As we reach the end of another busy year, we want to wish all our members a Merry Christmas, whatever Christmas may look like for you and a peaceful, hopeful New Year . Thank you for being part of our community, for your honesty, your strength, and for the time you give to share your experiences. Your voice genuinely shapes the work we do.

We are pre-launching our PCF Survey 2026 “The Big One” .

If you find yourself feeling a little full after your festive feast, feet up on the sofa, Home Alone playing in the background, and you fancy getting ahead… you’re very welcome to fill in the survey early!

We’ve been preparing hard behind the scenes, and after Christmas you’ll see a big social media campaign to help get the word out. Please keep an eye out for those posts and share them widely, it really makes a difference to drive change and make things better for families in our area.

From all of us at the Parent Carer Forum, thank you for everything – and warmest wishes for 2026.

Tap the link below to fill out the Survey.

�� Live Well Christmas Padlet��

We have been working on pulling all things Christmas to one place for ease. Check out the Christmas Padlet below where you will find local Christmas Activities, Holiday Sessions and support.

Tap to view!

For all our upcoming events, visit: Parent Carer Forum | Whats On

To read more, click below to link to the full newsletter...

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Neurodiversity Profiling Tool ... UPDATE... Parent Carer Training - Knowing Me.

Mon, 15 Dec 2025 11:26:11 GMT

Knowing Me - Neurodiversity Profiling Tool
Parent Training Update - December 15th 2025

Across Cheshire West and Chester , all schools, early years settings and wider professional sectors are being trained in the newly co-produced Neurodiversity Profiling Tool- Knowing Me .

As part of this wider roll-out, parent training sessions are now available for the Knowing Me Neurodiversity Profiling Tool .

Why parent training matters

The parent sessions are designed to give families a clear understanding of what the Neurodiversity Profiling Tool looks like in practice , how it is used, and what information it captures.

This training is not about using the tool at home. Instead, it:

Helps parents understand the language and structure of the tool
Builds awareness of how it may be used within schools or settings
Supports more informed conversations between parents and professionals
Reduces uncertainty if the tool is ever introduced to your child.

Having this knowledge means that, should the tool be used, parents already have a shared understanding of what the profiling process involves and how it supports children’s needs and strengths.

Book a parent session

Cheshire and Merseyside have now made dedicated parent training sessions available , and places can be booked directly online.

January 2026 – Parent Sessions

February 2026 – Parent Sessions

March 2026 – Parent Sessions

These sessions are a valuable opportunity to feel informed, confident and prepared as the Neurodiversity Profiling Tool becomes embedded across Cheshire West & Chester

On 13th November 2025 , parents, carers, professionals, and partners gathered at Hartford Golf Club to share ideas and improve support for neurodivergent children and families across Cheshire West. At the event we shared the new neurodiversity profiling tool, how it’s been developed with professionals, neurodivergent individuals and parent carers. To watch the presentations from this event, click on the links below...

Previous Updates and information.....

October 2nd - Neurodiversity profiling tool & pathway - Update

The final survey from the co-production groups is here please CLICK HERE and have your say.

We welcome the language and clarity around the Cheshire & Merseyside Neurodevelopment Pathway that has come such a long way. That’s thanks to the study team, the co-production workshops- a collaboration of people with lived experience, professionals, and Parent Carer Forums in Cheshire & Merseyside.

Check out the latest update links here:

Neurodevelopment Pathway

CLICK HERE for Frequently Asked Questions

YouTube – Introducing a New Neurodiversity Pathway

...........................................................

Update September 2025

By Lucy Kennerley

Over the summer, I have been working with the Centre for Autism, Neurodevelopmental Disorders and Intellectual Disabilities (CANDDID) study team to assist in evaluating and developing the Neurodiversity Profiling Tool, alongside parents, carers, neurodivergent people, and professionals from a wide range of sectors.

This work has included several co-production workshops, where participants have shared their experiences and insights to help shape a tool that truly reflects the needs of children and young people. Thanks to this collaborative approach, we are now nearing the final stages of creating a co-produced tool that is practical, meaningful, and grounded in real-life experience.

Surveys 1, 2, and 3 have now closed, and feedback from these was used to refine the tool and inform subsequent surveys. Survey 4 allowed participants to test the tool, while Survey 5 collected feedback on sections of text from the training workbook. If you’d like to contribute, the current surveys are still open here:

Survey #4

Survey #5

At our Neurodiversity Forum on 13th November, the tool will be presented, and an update will be shared on the rollout plans. This will be a great opportunity to see the progress made and to understand how the tool can help identify needs early and support children and young people in accessing the right support.

A huge thank you to everyone who has taken part so far. Your contributions are shaping a tool that is co-produced with the community and for the community.

Please see attached the latest Cheshire and Merseyside newsletter for more details.

If you have any questions or would like to find out more, please contact: cwp.ndprofilestudy@nhs.net

Co-Production Session 4

The study team would like to thank parent carers and professionals you who attended the fourth co-production session on Tuesday 2nd September, your input is greatly valued and is helping to shape the Neurodiversity Profiling Tool.

If you weren’t able to join the session, you can still contribute by completing the survey at the link below:

�� Co-production Session #4 Survey

Your feedback is really important to ensure the tool is meaningful, practical, and co-produced with the community.

Please contact cwp.ndprofilestudy@nhs.net if you have any questions.

Update August 2025: The Centre for Autism Neuro Developmental Disorders and Intellectual Disabilities (CANDDID) study team are evaluating the Neurodiversity Profiling Tool pilot and would really value your views.

You may have already heard about the Neurodiversity Profiling Tool, based on the the Portsmouth Model.

Its aim is to build a better understanding of a child or young person’s needs, so that the right support can be put in place.

This summer, parents, carers, neurodivergent people, and professionals from a range of sectors have been taking part in co-production workshops. The work is still ongoing, but we now have an early draft of the tool to share.

For ease of access, this draft has been set up as a Microsoft Form. Please note that the final version will be laid out more clearly – this is just a quick way for people to view it and give feedback.

We’d really value your thoughts on the content (e.g. wording, examples, clarity), rather than the layout at this stage.

Communications and frequently asked questions from Parent Carer Forums (PCF) in Cheshire and Merseyside regarding the Cheshire and Merseyside Neurodevelopment Pathway for children and young people, including a response to the Special Needs Jungle article (July 2025).

I have heard that the profiling tool used in Portsmouth will be used in Cheshire and Merseyside. Is this true?

Yes. Children’s health and care teams across Cheshire and Merseyside are committed to improving service delivery, access and outcomes for neurodiverse children, young people and families, focusing on meeting needs as early as possible. They have identified good practice in Portsmouth and Cornwall and their work with profiling tools.

As part of the development of the Cheshire and Merseyside Children’s Neurodevelopment Pathway, Wirral and St Helens have been piloting the use of a profiling tool over the last few months, and the response has been very positive. We are now making further plans to develop and adapt the profiling tool (now called the This Is Me profiling tool) for Cheshire and Merseyside in partnership with parents/carers, Local Authorities and other organisations.

You can find more information here:

Cheshire and Merseyside Neurodevelopment Pathway - NHS Cheshire and Merseyside

When will the tool be launched?

Following the launch of the Cheshire and Merseyside Children’s Neurodevelopment Pathway in June 2025, we are making plans to start the roll-out of the This Is Me tool in every area across Cheshire and Merseyside, with full roll-out in 2026.

How will the This Is Me tool benefit my child?

The This Is Me tool is used to build a profile of your child’s individual strengths and needs so that we can offer you flexible, tailored support. For some children and young people, this might mean reasonable adjustments at school or a referral to a sleep service, for example. For others, it may highlight the need for medical assessment sooner.

In the past, children, young people and families may have had to wait for a formal diagnosis before they could access this support. However, the This Is Me tool means that support needs can be identified much earlier, with no requirement to have a neurodevelopmental assessment or diagnosis first.

We are currently developing a digital version of the tool for those that prefer to complete it electronically.

Is the This Is Me tool going to replace formal neurodevelopmental assessments?

No, the This Is Me tool will not replace neurodevelopmental assessments. It is designed to help the teams working with you and your child to learn about their strengths and needs so that they can offer personalised support earlier in the process. Children and young people can receive this support while they wait for an assessment, after they have been assessed, or if they have not been referred for an assessment.

Will the This Is Me tool stop my child from getting a diagnosis?

No. We understand how important a neurodevelopmental diagnosis can be to children and families for many different reasons. The tool is not intended to be a barrier to this; it is designed to help children, young people and families access support based on individual needs before, during and after the assessment process. If you decide to access support as a result of the This Is Me tool, it will not prevent your child from receiving a diagnostic assessment.

What if we don’t have an assessment or diagnosis – can we still get support?

Yes. We know that not every neurodiverse child will need or want a diagnosis, but they may still benefit from support in some areas. The tool will help to identify these areas based on your child’s individual needs, regardless of their formal diagnosis (or lack of). If you decide not to pursue an assessment for your child, or if they don’t meet the criteria for referral or diagnosis, you can still access support via the This Is Me tool.

Were neurodivergent children and their families involved in developing the tool?

Yes. It is very important to us that the voices of children, young people and families are at the centre of the This Is Me tool, so we have been working closely with them, and with local organisations, to co-produce and evaluate the tool. We chose our training partner, Koala North West, based on their excellent track record of supporting and advocating for neurodiverse children, young people and families in the region. Additionally, project meetings involve representatives from Parent Carer Forums and third sector/voluntary organisations from across Cheshire and Merseyside to ensure that the voices of children, young people and families are represented at every level. Many of our clinicians and leads also have personal lived experience of neurodiversity in addition to their professional experience.

Is there a risk that this will encourage children to mask?

We understand that masking can have a negative impact on neurodivergent people and we have consulted with children, young people and families to ensure that the tool does not encourage this. The tool uses neuro-affirmative language, does not portray neurodiversity as inferior or deficient, and focuses on recognising strengths and support needs. It does not seek to change, discourage, or “re-train” valid neurodiverse behaviours or communication styles. We will continue to refine and improve the tool based on the co-production feedback we have already had from children, families and professionals, and on further co-production feedback going forward.

Thank you for supporting us to make co-production as inclusive as possible.

�� If you have any questions or feedback, please contact:

CWP.NDProfileStudy@nhs.net

For more information on the PCF and what we do ...

click below

PCF Survey 2026 - The Big One!

Wed, 10 Dec 2025 11:47:13 GMT

We want to hear from you. If your child or young person (0–25) has SEND or additional needs, with or without a diagnosis, or maybe not yet identified then please take part in this year’s Parent Carer Forum’s (PCFs) Cheshire West & Chester SEND Survey.

Your experiences will help shape future services across health, education, social care and the community. For the first time in Cheshire West & Chester, the results will directly inform and measure progress in the SEND Strategy 2026/27, so your voice truly matters.

The survey is anonymous, and you can complete one for each child with SEND.

Need help? Contact: info@pcfcheshirewest.org or text/call 07900 840 867

Y ou can complete the survey by using the link button below

Closing date February 6th 2026 - Don’t miss out!

To learn more about our last survey and the results from your feedback, please use the link below..

For more information on the PCF and what we do ...

click below

International Day of Persons with Disabilities Event

Sun, 07 Dec 2025 18:38:04 GMT

Wednesday the 3 ^rd of December is the ‘International Day of Persons with Disabilities’. It is an annual celebratory day aiming to raise awareness of disability and promote the rights and well-being of people with disabilities. To mark and celebrate the day Cheshire West and Chester Council organised a webinar where representatives from a range of different organisations were invited to describe the role they play in supporting people with disabilities in Cheshire West and Chester. The Parent Carer Forum were very happy to be invited along to present and here are some of the other fantastic organisations who also took part:

Vision Support

Disability Positive

Dial West Cheshire

The People’s Choice Group

The Learning Disability Partnership Board

Livewell Cheshire West and Chester

Chester Deaf Centre

Neuromuscular Centre

Neurotherapy Centre

For more information on the PCF and what we do ...

click below

Newsletter November 2025

Sun, 07 Dec 2025 18:29:35 GMT

PCF NOVEMBER NEWS

Here's our November newsletter link....

PLUS....To keep you up to date on all of the work, that we are involved in, go to our new BLOG/noticeboard area....

PCF Monthly Roundup

This month we hosted our first in-person forum all about neurodiversity. It was lovely to meet many new parents and carers!

There was a Local Area Ofsted Inspection which we shared parent carer experiences to Ofsted Inspectors. You can find out more about the process in our latest blog here:

SEND Area Inspection – What’s Been Happening and How the Parent Carer Forum Has Represented Families

We’ve attended our normal working groups such as the Educational Health Care Plans (EHCP) Quality Assurance, Partnerships for Inclusion Neurodiversity in Schools (PINS), and School Coffee Events – making sure we are feeding back what you tell us.

Next up: the relaunch of the PCF Survey 2026 – The Big One!

For all our upcoming events, visit: Parent Carer Forum | Whats On

To read more, click below to link to the full newsletter...

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Early Years, Sleep & Toileting Forum – December 2025

Thu, 04 Dec 2025 15:16:25 GMT

Thank you to everyone who joined our Early Years, Sleep and Toileting Forum this week. We know mornings can be hectic and virtual meetings aren’t always the easiest, especially when technology has its own ideas! We really appreciated your patience while we sorted the slide glitches and settled into the session.

This forum was created in direct response to parent and carer feedback last year, where you told us you wanted more practical, accessible information about sleep, toileting, early years support and where to go for help. We listened and this session brought together four key services who shared what they do and how families can access them.

Below is a round-up of what was covered, what’s coming next, and links to help you explore further.

Early Years Specialist Teaching Service (EYSTS)

Terri Hughes opened the session with an overview of how EYSTS supports early years providers to create inclusive environments for children with emerging or identified needs.

Key points included:

EYSTS is a provider-led service (referrals must come from the early years setting with parental consent).
They offer observations, strategies, modelling and training to help staff better understand and meet children’s needs.
Their focus is on early identification, practical strategies and supporting inclusion from the ground up.
Parents are encouraged to contribute to the Inclusion Plan, which is also used for early years funding and EHCP needs assessments.
They now have parent padlets filled with helpful resources, which will continue to grow based on family feedback. Please see EYSTS Parent Support Padlet

If you’re unsure how your setting can involve EYSTS, your nursery or childminder can talk you through the process.

Starting Well Service

Next, the Starting Well team talked through the support available from pregnancy through to adolescence, including:

Mandated contacts like antenatal visits, new birth checks, 6–8 week reviews, and 1- and 2-year checks.
A wide range of open access support , including

- Duty phone line for advice

- Daily advice clinics

- ChatHealth texting service

- Baby massage

- Introduction to solids sessions

- Sleep workshops

- Parenting Puzzle for ages 2–5

Targeted support , such as home learning sessions, sensory-adapted play groups and SEND practitioner input.
Sensory rooms now available to book in Chester, Winsford, Ellesmere Port, Blacon and more—free of charge.

The key message? If you’re unsure, reach out . Starting Well wants families to know they are there for your whole journey, not just the early year s.

Children’s Continence Team

Katie Farrell shared practical guidance on bowel and bladder issues, which are far more common than most families realise.

They support children with:

Daytime wetting (5+)
Night-time wetting (5+)
Constipation and soiling
Anticipated delayed toilet training
Complex continence needs

Helpful reminders from Katie:

Constipation is one of the main causes of both wetting and soiling. Medication from a GP is usually needed, diet alone isn’t enough.
The service works closely with families to create plans, offer school support and assess underlying reasons.
The Let’s Go Potty approach (via ERIC) is recommended for toilet training, including for autistic children.

CWP Children's Continence Service

Tel. 0151 488 8231

Email. Cwp.paediatriccontinence@nhs.net

Starting Well - Children’s and Young Peoples Continence :: Cheshire and Wirral Partnership NHS Foundation Trust

ERIC – Home - ERIC

Koala Sleep Service

Our final speaker, Terry from Koala NW, delivered an in-depth look at sleep—what affects it, how children’s bodies work at night and, most importantly, what parents can do to help.

Some key takeaways:

Children with SEND are more likely to experience sleep difficulties, but every child can improve with the right support .
Sleep relies heavily on routine, environment, sensory needs and natural melatonin production .
Light plays a major role, just 4 minutes of bright light can stop melatonin production completely.
If your child falls asleep with a light on, the most important thing is consistency —that the environment stays the same across the night.
Koala offer individualised support for families of children with Autisim/ADHD (and universal support in some areas), as well as a new Teen Sleep Text Service .

Terry also shared the impact of sleep deprivation on families, emotionally, physically and financially and reminded parents that asking for help is not a failure; it’s an act of care.

• Phone 0151 608 8288 to self register

• Email admin@koalanw.co.uk

• Ask your GP or paediatrician for a referral

Thank You for Joining Us

We want to extend a huge thank you for giving your time, sharing your experiences and supporting one another. These forums exist because of your voice and we will continue to shape future sessions based on what matters most to you.

Please view the slides & recording below

If you have suggestions for future topics, please get in touch we’d love to hear them.

To see other events coming up or to catch up on past events & presentations...

click below

What Are Reasonable Adjustments?

jo.southall@hotmail.com (Joanne Southall) — Wed, 26 Nov 2025 13:49:20 GMT

If you or someone you care for has a disability, you’ve probably heard about Reasonable Adjustments and Digital Flags in the news. Here’s what they mean and what’s happening locally in Cheshire West.

What Are Reasonable Adjustments?

Under the Equality Act 2010, organisations must remove barriers for people with disabilities. These barriers can affect people with physical or mental impairments. Reasonable adjustments are small changes that can make a big difference.

You can ask for adjustments in many areas, including:

• At work

• In education (like schools or colleges)

• At businesses or services (like hospitals or shops)

• In health or care settings (like doctor’s surgeries)

• In housing (through landlords or estate agents)

• In public services (like the council or police)

• At sports clubs or other community groups

Examples of Reasonable Adjustments:

Adjustments vary based on the organisation’s size and resources, but here are some examples:

• Health appointments: Longer appointment times, or waiting in the car until you’re called.

• Workplace changes: Flexible hours or extra tools to help with tasks.

• Education: Extra time for exams or quiet spaces for learning.

You can learn more from these resources:

NHS England: Reasonable Adjustments NHS England:RA

Citizens Advice: Reasonable Adjustments Citizens Advice: RA

Cheshire and Wirral Partnership NHS has a reasonable adjustments checklist. CLICK HERE

What Are Digital Flags?

A Digital Flag is a note on your electronic health record to highlight any reasonable adjustments you need.

• This means you don’t have to explain your needs every time you go to an appointment.

• It’s your choice what information is shared, and your permission is required.

How Does This Work in Cheshire West?

• The Integrated Care Board (ICB) includes reasonable adjustments in its contracts with service providers.

• Local healthcare providers may offer adjustments differently.
For example:

• Mid Cheshire Hospital Foundation Trust provides online resources.

• Cheshire and Wirral Partnership NHS has a reasonable adjustments checklist.

• The Countess of Chester Hospital offers guidance on Safeguarding Adults.

If you feel a Digital Flag is helpful for you or someone you care for, ask your GP practice to add one to your health record.

What If You Have Questions or Suggestions?

• The Patient Experience Team can help with concerns about reasonable adjustments or digital flags:

cheshire.patientexperience@cheshireandmerseyside.nhs.uk

• Share any feedback or examples of adjustments that have worked for you. This will help improve local services.

Reasonable Adjustments for Children in Education Settings

Adjustments in schools or local authority settings already exist. For example:

• Schools often provide quiet areas or flexible schedules

• Resources such as ear defenders and wobble cushions

• Adjustments to school uniform

Cheshire and Wirral Partnership NHS reasonable adjustments checklist for education settings

If you have questions about reasonable adjustments for children, reach out to your settings SEN Coordinator (SENCo).

Final Thoughts

Reasonable adjustments and digital flags are about making life easier for everyone. By working together and sharing what works, we can create better more inclusive services in Cheshire West.

For more resources:

• NHS Standard Contract Guidance: NHS England

• Care Transformed Case Studies: NHS England

If you have any other questions, please email us at: Info@pcfcheshirewest.org or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

SEND Area Inspection – What’s Been Happening and How the Parent Carer Forum Has Represented Families

Wed, 26 Nov 2025 12:24:39 GMT

Over the past few weeks, our local area has been fully immersed in the new Ofsted and Care Quality Commission (CQC) Area SEND inspection. These inspections look closely at how well education, health, and social care partners work together to support children and young people with special educational needs and disabilities (SEND).

This blog brings together what’s happened so far, what the new ratings mean, and how families’ experiences, shared through the Parent Carer Forum, the Ofsted survey, Local Government Association (LGA) Peer review and individual cases have shaped the inspection.

Before exploring the inspection process, it’s worth highlighting the LGA Peer Review that took place in early October.

This review followed a motion passed in May 2024, to make our borough more inclusive, a decision strongly influenced by parent carers who spoke passionately about the challenges within local SEND services. You can revisit the motion and hear parents’ voices here: CWaC becoming a SEND Inclusive Borough

An LGA Peer Review involves another local authority acting as a “critical friend,” assessing services and offering recommendations for improvement. It is a separate process from an Ofsted inspection. During this review, the Parent Carer Forum (PCF) shared families’ experiences to ensure their perspectives shaped the findings.

We were delighted that the LGA recognised the PCF as a strong and credible forum, noting:

“The parent carer annual survey is impressive and is being used to inform people about practice and service decisions”

How the Parent Carer Forum Has Represented Families during the Inspection

Throughout the inspection, the Parent Carer Forum has played a key role in ensuring family voices were heard clearly and accurately.

The PCF has:

Attended meetings directly with inspectors
Shared lived experiences gathered from hundreds of parents through our events, school representatives, third-sector partners and the 2024 PCF Survey
Highlighted both strengths and ongoing challenges within the SEND system
Provided examples of where support is working well and where families are still experiencing difficulties
Worked closely with local leaders to ensure parents’ views are reflected within the Local Area Self-Evaluation Framework

We presented during the inspectors’ introductory meeting, giving Ofsted a clear sense of who we are and the key themes we have been hearing from families.

We also met with Ofsted separately from partners, where we explored in more detail how the PCF represents families across the borough—covering all settings, needs and age groups—something the inspection team were particularly keen to understand. We also shared what families continue to tell us since the 2024 survey.

Inspectors fed back that hearing directly from families, including through the PCF, has been an important part of understanding how services operate in practice.

Behind the Scenes: What’s Happened?

Week 1–2: Evidence Gathering and Early Meetings

There was a swift and highly committed response from teams across the borough, with hundreds of documents shared as evidence.

During these early stages, inspectors met with:

Parents and carers
Young people
Practitioners involved in six selected cases
The Parent Carer Forum

Colleagues have continued delivering frontline work alongside the inspection demands their efforts are hugely appreciated.

Week 3: Onsite Visits Begin

This week saw the start of in-person visits to:

Schools- all types of settings
Early years settings
Health services
Local authority teams

They explored key areas including:

Speech and Language Therapy
Alternative Provision
Elective Home Education
Residential placements
The Dynamic Support Register

Meetings took place around assessment and diagnostic pathways and sampling a range of themes connected to SEND for Early Years and Early Help.

Daily feedback sessions from the inspection team given leaders an early sense of inspectors’ views, with one consistent message:

“The passion and dedication of the workforce is a clear strength”

Survey responses from families and professionals were extremely high, thank you to everyone who shared it and filled it out.

EHCP Sampling

Inspectors revied more randomly selected EHCPs to examine:

Assessment quality
Clarity of needs
Provision specificity
Evidence of impact

Listening to Children and Young People

Inspectors spent time with the SEND Choices youth group, hearing firsthand about experiences and aspirations from young people themselves.

Reflections

Leaders have expressed heartfelt thanks to all staff and partners. The level of commitment and collaboration across the system has been incredible.

This inspection is not just a process, it’s an opportunity to improve, grow, and strengthen the SEND system for children, young people, and families across our area.

The Outcome of the Inspection

The draft report will be sent to partners in two weeks, it will then be reviewed for a further two weeks and the outcome of the Inspection will be shared and published towards the end of January. As soon as this has published, we will be sharing it with you.

Under the new framework these are the three outcomes that the Local Authority could have:

Positive Experiences & Outcomes – Things Are Going Well
Most children and families receive the support they need, services are working well together, and the area is on the right track. Re-inspection: Around 5 years.
Inconsistent Experiences & Outcomes – Mixed Picture
Some things are working, but others need improvement. Families may experience variation in support, depending on need or location. Re-inspection: Around 3 years.
Widespread or Systemic Failings – Serious Concerns
There are significant issues impacting children and young people, requiring urgent improvements. Monitoring inspection: ~18 months. Full re-inspection: ~3 years.

For more information on the PCF and what we do ...

click below

Neurodiversity Forum November 2025 – Highlights

jo.southall@hotmail.com (Joanne Southall) — Wed, 19 Nov 2025 18:59:49 GMT

A Day of Connection and Progress
On 13th November 2025, parents, carers, professionals, and partners gathered at Hartford Golf Club to share ideas and improve support for neurodivergent children and families across Cheshire West.

Key Themes included:

Understanding Neurodiversity: Brains work in different ways; strengths and challenges coexist; support should be based on differences.

Introducing a new Neurodiversity Pathway for children, young people and their families

Pathway Updates: New profiling tool, early support, combined autism/ADHD assessments, shared ADHD care, and consistent training.

We looked at the new neurodiversity profiling tool, how it’s been developed with professionals, neurodivergent individuals and parent carers. You can find out more about it here

School Support: SENCo role, legal duties, Graduated Approach, and Quality First Teaching.

Quality First Teaching | Live Well Cheshire West

Autism Service: We heard from the autism service how they work with children in schools and how they support training for schools. Practical strategies without requiring a diagnosis can be found here

Click the link to view the wonderful resources on the Family padlet

PCF Update: Survey 2024: Challenges with systems, EHCP delays, emotional strain, and long waits. Preparing for the next Survey “The Big One”, Understanding how parent carers voices are woven into the SEND strategy

Pledge Culture changes in action the journey so far: We talked about where the Pledge was up to and what it means for families moving forward.

Understanding Inclusion: What inclusions mean to people can be different to everyone albeit a shared understanding. We asked everyone to answer three questions of what it means to them so that we can share with partners for a better understanding of what inclusion means to our families in Cheshire West and Chester. You can share you views by scanning the QR code or clicking the link below.

We heard from children and young peoples care group about the work they are doing and asking for parent feedback. To find out more about their work, visit our Participation & Engagemen t Page on the MyMind website and have your say to improve services Get involved : Cheshire and Wirral Partnership NHS Foundation Trust

All-Age Autism Neurodivergent Partnership Board

Highlight of the day was hearing from Tony the Co-Chair of the All-Age Autism Neurodivergent Partnership Board . Tony spoke passionately about his journey into adulthood and his dedication to improve services for all children and young people. He ended with a call to action to get people with lived experience to join the board and help make a difference.

Scan the QR code or email Katy get involved Katy.Ellison@cheshirewestandchester.gov.uk

Partnership for Inclusion Neurodiversity Schools Initiative: Helping schools build inclusive cultures through training and partnerships. We had an update on how this is going in our selected schools and what it means sharing good inclusive practice with other schools in the borough. You can find out more about the project here PINS Update

It was an informative event and lots of positive feedback. A huge thank you to all the professional for showing up for our families helping this forum become a success. You can view the slides from the day here Forum Slides 2025

Here are some additional resources to questions we had:

Communication skills for adults to support children and young people with Rejection Sensitive Dysphoria (RSD) & Pathological Demand Avoidance (PDA) and Selective Mutism (SM): View resources here!

Family Autism Padlet: Family padlet

Dyslexia Support

Emotionally Based School Non-Attendance (EBSNA) Support and Information

Quality First Teaching | Live Well Cheshire West

Special Educational Needs (SEN) Support

Useful Links:

https://www.cheshireandmerseyside.nhs.uk/your-health/cheshire-and-merseyside-neurodevelopment-pathway/

https://www.cheshireandmerseyside.nhs.uk/your-health/cheshire-and-merseyside-neurodevelopment-pathway/where-to-go-for-help/

To see other events coming up or to catch up on past events & presentations...

click below

PINS Project - Phase 1

Mon, 17 Nov 2025 11:28:32 GMT

As part of the ‘Partnership for the Inclusion of Neurodiversity in Schools’ (PINS) project the Parent Carer Forum has presented each of the 4 mainstream primary schools that took part in the project in 2024/2025 with a box of resources to be used as a library by children, parents, and teachers. The box is full of books and sensory equipment that can be used in school. The PCF also has a resource box that can be taken along to coffee mornings and meetings. The contents of the box can be seen in the photos and the attached list.

If you would like to borrow a book or a piece of equipment, or you would like someone from the PCF to come along to a coffee morning or event at your school, please contact Vanessa at vanessa@pcfcheshirewest.org . The PINS project will run again from September 2025 until March 2026 with 3 new schools in Cheshire West and Chester. If you would like further information about PINS then you can visit the section of the PCF website PINS where we have uploaded resources and recordings of some of the training sessions that the schools took part in this year. The PCF has supported the project by meeting with parents and teachers in each school and facilitating the sharing of views and experiences and signposting to local sources of support such as the Information, Advice and Support Service, Koala North West and ChAPS. PINS is a national programme that aims to bring specialist health and education professionals together with parent carers in mainstream schools to help shape whole-school SEND provision. The overall aims of the project are to improve pupil wellbeing, increase parental confidence in mainstream schools, improve attendance and reduce exclusions.

For more information on the PCF and what we do ...

click below

PINS - Phase 1 Updates

jo.southall@hotmail.com (Joanne Southall) — Wed, 12 Nov 2025 14:46:59 GMT

Phase 1 of the PINS (Partnership for Inclusion of Neurodiversity in Schools) project is now completed and during our final coffee events the Parent Carer Forum has presented each of the 4 mainstream primary schools that took part in the project in 2024/2025 with a box of resources to be used as a library by children, parents, and teachers. The box is full of books and sensory equipment that can be used in school. The PCF also has a resource box that can be taken along to coffee mornings and meetings. The contents of the box can be seen in the photos and the attached list. If you would like to borrow a book or a piece of equipment, or you would like someone from the PCF to come along to a coffee morning or event at your school, please contact Vanessa at vanessa@pcfcheshirewest.org.

The PINS project will run again from September 2025 until March 2026 with 3 new schools in Cheshire West and Chester.

The PCF has supported the project by meeting with parents and teachers in each school and facilitating the sharing of views and experiences and signposting to local sources of support such as the Information, Advice and Support Service, Koala North West and ChAPS.

PINS is a national programme that aims to bring specialist health and education professionals together with parent carers in mainstream schools to help shape whole-school SEND provision. The overall aims of the project are to improve pupil wellbeing, increase parental confidence in mainstream schools, improve attendance and reduce exclusions.

The schools involved in phase 1 are: Little Sutton C of E Primary, St. Winefride's Catholic Primary, Neston Primary and Farndon Primary. Each school has completed a self-evaluation form on their knowledge and understanding of Inclusion and Neurodiversity and the parents at each school have been asked to complete a survey.

We have held parent carer coffee mornings in all 4 schools which provided an opportunity to talk about the project and for parents to share their experiences. We also talked to parents about some of the training that has taken place in their school and asked for more of their feedback and own personal experiences.

If you would like to watch the recordings from some of the online training that the schools have taken part in already, or view resources, you will find the links below:

ONLINE TRAINING RECORDINGS

Re-Introduction to PINS

Embracing Difference

Understanding Needs

How to differentiate between trauma and neurodiversity - behavioural presentation

Getting to the cause of behaviour and the effects of others responses - Relational and trauma informed approaches to behaviour

Slides from 'Getting to the cause of behaviour and the effects of others responses ..'

Teacher 'language' - Raising Awareness of Language Differences for Neurodivergent Pupils in School

Slides from ' Teacher 'language' ..'

Understanding sensory seeking and avoiding, children learning self regulation and the PDA profile

Slides from 'Understanding Sensory Seeking and Avoiding..'

Reception Year - getting off to a good start

Avoidant/Restrictive Food Intake Disorder (ARFID)

Slides from ARFID Presentation

TRAINING RESOURCES

Verbal Reasoning Resources - Skill Dev. List and Levels 1-4

STAR Behaviour Chart

ASD Eating Difficulties

What is ARFID?

Tips for extreme fussy eating

The value of a partnership approach between families and school communities

Both pupils and parents will have an opportunity to share their views about what is working well and what could be improved. The input, knowledge and insight of parents will be a key element and a positive strength of the PINS project.

The CWaC Parent Carer Forum have facilitated at least 3 meetings at each school with parents.

Topics were identified, and training/support offered to parents, staff and pupils with the aim of learning and developing together and having a shared understanding

By working together in co-production with the school, parents and teachers have the opportunity to share information, decrease isolation and develop or strengthen positive relationships between parent carers and the school.

If you would like more information about the project, or if your child is at one of the PINS Project schools and you would like to know how to get involved, then please email Vanessa Usai at vanessa@pcfcheshirewest.org .

Join us and have your voice heard at any of our future events...

Newsletter October 2025

Thu, 06 Nov 2025 18:12:31 GMT

PCF OCTOBER NEWS

Here's our latest newsletter link....

PLUS....To keep you up to date on all of the work, that we are involved in, go to our new BLOG/noticeboard area....

PCF Monthly Roundup

It’s been a busy month for the Parent Carer Forum (PCF)! We attended 18 meetings, hosted five coffee events, and held our first virtual forum, meeting many new parents and carers.

We shared parent carer experiences in an Local Government Association (LGA) Peer Review, receiving fantastic feedback as a strong, robust PCF for Cheshire West and Chester – more details to come once the full report is out.

Our first Steering Group set priorities for the year, and we’ve contributed to Educational Health Care Plans (EHCP) Quality Assurance, Partnerships for Inclusion Neurodiversity in Schools (PINS), and SEND Strategy Delivery Groups – making sure your voices are heard.

Next up: the relaunch of the PCF Survey 2025/26 – The Big One!

For all our upcoming events, visit: Parent Carer Forum | Whats On

Thank you to everyone who attended our first forum!

Missed it? Catch up anytime!

Grab a cuppa, pop your headphones in, and catch up in your own time.

Watch it back while: walking the dog, doing the dishes or having a quiet moment to yourself!

Virtual Parent Training

Communication & Empowerment Workshop

Monday 3rd November

10:00am – 11:30am

Virtual session (link will be sent the day before)
This interactive training is designed to give parent carers the confidence and tools they need to communicate effectively with professionals. We will share practical tips and real-life examples to help you prepare for meetings and be assertive in challenging conversations.

Whether you’re new to navigating SEND systems or looking to strengthen your existing skills, this session will help you feel more prepared, empowered, and heard.

Neurodiversity Forum

Understanding Neurodiversity &

Support Services in

Cheshire West and Chester

Support for Employment

We’re excited to share this fantastic video about the CWAC Supported Employment Scheme!

This scheme helps people with a Learning Disability or Autism to find and keep meaningful work.

Ongoing support is provided to the individual for as long as they need it.
The team also supports employers, making sure everyone can work well together.
Watch the video below to learn more!

Free Information Sessions for Parent Carers

Do you have concerns that your child may have additional needs?

Would you like to know more about who can help you and your child?

The SEND Information, Advice and Support Service is running a series of free sessions across Cheshire West and Chester this November.

More Information can be found on our “Whats-On Page” in the link below

Parent/carer Coffee Events

There are a number of parent carer coffee events happening in Cheshire West and Chester, where our volunteers attend regularly including at the children centres, SPACE charity and Koala. Please keep an eye on our website where we will advertise them along with other SEND coffee events in the borough.

Volunteering Team

All our volunteers are parent/carers with children and young people with SEND that live and/or access schools/services in Cheshire West and Chester. Between us all we have a wealth of lived experience navigating the SEND system. There is someone in our team that understands and can help guide you in the right direction. Please contact info@pcfcheshirewest.org or call 07900840867 to chat to someone from our team.

For more information about us check out our Facebook page, YouTube Channel and Website.

PCF Survey 2025/26 - “The Big One”!

As we prepare to relaunch our Parent Carer Survey 2025/26 – The Big One!, we’re inviting feedback from parents and carers before the questions are finalised.

We plan to keep the core questions the same so we can compare responses with previous years and see what’s changed, what’s improved, and what still needs to be done. This will be used as a way of measuring progress from the PCF Survey 2024 which is embedded in the SEND Strategy 2025/26 and will help shape the SEND priorities 2026/27. You can get a snapshot of how that looks here

Parents’ Voices Shaping the SEND Strategy …Now & Next!

If you have suggestions or ideas for the next survey, we’d love to hear from you! Together, we can make The Big One even more meaningful and ensure every parent carer’s voice continues to shape local SEND services.

You can revisit the last the survey results along with the survey questions on the link below.

Please contact us with any suggestions at info@pcfcheshirewest.org

To read more, click below to link to the full newsletter...

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Virtual Parent Training: Empowerment & Communication

jo.southall@hotmail.com (Joanne Southall) — Mon, 20 Oct 2025 12:39:49 GMT

Communication & Empowerment Workshop for Parents and Carers

We held our Communication and Empowerment Workshop, designed to help parents and carers feel more confident, when advocating for their child in meetings with schools, health services, or the local authority.

The session was beautifully led by Gillian Driscoll, a lived-experience parent carer who brought empathy, humour and practical insight to every part of the discussion.

Together, we explored why effective communication matters, the challenges that can get in the way, and the practical steps that help us reclaim our voice and stay focused on what really matters for our children’s needs and outcomes. Participants enjoyed the relaxed and informative environment and all of them would recommend the session to others.

Parents and carers shared their experiences openly, offering ideas, strategies and mutual support. It was a warm, reflective space where everyone could recognise their own strengths and learn new techniques to:

• Plan and prepare for meetings with confidence

• Balance emotion with evidence

• Communicate assertively and respectfully

• End meetings clearly, knowing next steps

Gillian’s session also highlighted helpful resources including SENDIASS, Parent Carer Forum, Together Trust, IPSEA and Contact, ensuring families know where to turn for advice and advocacy support. Participants found two areas particularly helpful - how to prepare for meetings and how to speak up confidently using some prep-prepared phrases.

We’re so grateful to everyone who came along, contributed, and helped make the morning so positive. Thank you, Gillian, for facilitating such an empowering and encouraging session and thank you to all the parents and carers for showing up and sharing your voice.

More details are in the workbook below.

To see other events coming up or to catch up on past events & presentations...

click below

Disability Services Advocacy Team Sessions

Thu, 16 Oct 2025 13:13:49 GMT

For details on all the sessions and to book a place, click on the link below...

If you have any questions, please email us at: info@pcfcheshirewest.org

Join us at any of our events in 2025/26...

Parents’ Voices Shaping the SEND Strategy …Now & Next!

Tue, 14 Oct 2025 15:47:06 GMT

The Parent Carer Forum (PCF) survey has been used as one of the key ways to measure how SEND services are performing for families.

The SEND Strategy was co-produced, drawing on feedback from PCF surveys, Ofsted inspection findings, and the Council’s scrutiny review recommendations. Together, these shaped the SEND priorities now being delivered through the SEND Partnership groups.

Every piece of feedback shared by families, whether through our school reps, coffee events, forums, or one-to-one conversations, is fed back into the local SEND system. This ensures that what parents and carers experience on the ground truly influences decision-making and drives improvement across SEND services.

You can read the full SEND Strategy 2025/26 here:

You can also view the results from our most recent PCF Survey here:

For more information on the PCF and what we do ...

click below

What is PINS?

jo.southall@hotmail.com (Joanne Southall) — Tue, 30 Sep 2025 14:44:18 GMT

Partnerships for Inclusion of Neurodiversity in Schools (PINS) is a programme funded by the Shared Outcomes Fund, and delivered between the Department for Education (DfE), NHS England (NHSE) and the Department for Health and Social Care (DHSC), with the aim of bringing health and education specialists and expert parent carers into mainstream primary settings to:

help shape whole school SEND provision
provide early interventions at a school level
upskill school staff
support and strengthen partnerships between schools and parent carers
support and strengthen partnerships between PCFS and ICBs

The aim is that the programme will leave a sustainable impact, building a legacy of closer collaboration between schools, parent carers, education and health. Project teams will work collaboratively across professional boundaries, developing the capacity of schools to facilitate the best possible outcomes for children and young people who are neurodiverse.

This will reframe the focus of specialist input to how a supportive learning environment and well-equipped school can improve the outcomes for neurodiverse children.

Supporting co-production between parent carers and school

Which children will the PINS project support?

PINS will support your school to enable every child to thrive, have a sense of belonging and feel safe.

It is a whole school approach that uses the power of working in partnership with families and professionals to build an inclusive culture where neurodiversity is a valued strength that adds to the school community.

This is an ambitious project which builds on the learning from the NHSE led Autism in Schools project, where a co-produced approach based on a strong partnership between health, education and parent carer forums led to innovative work in local schools and more effective support for autistic children and young people.

The PINS project broadens the scope of the Autism in Schools model, to support a wider cohort of neurodiverse children in primary schools. The programme aims to provide support at a whole school level, with more effective working between education, health and parent carers, through partnerships with local parent carer forums. The offer of support to each school will be informed by parent carer views, and the programme will facilitate ongoing engagement between parent carers and school leadership teams.

The parent carer forum partnership approach with schools is a particularly crucial part of the PINS project.

EXPANDING REACH

The PINS project aims to test this model as a ‘proof of concept’ across every ICB (although this may not cover every local authority within an ICB). One purpose of a Shared Outcome Fund programme is to evaluate impact, with the learning from the programme being used to inform future investment. The PINS evaluation will test whether this co-productive way of working does improve outcomes for children, families, schools and health partners.

Parent Carer Forums are key partners in delivery of the PINS project.

There are three core objectives for Parent Carer Forums taking part in the project; these are:

to work strategically with the ICB and LA partners to develop and deliver the project
to work with schools and parent carers to strengthen relationships between schools and their parent carers of neurodiverse children in their schools
to support the development of improved co-production with families to facilitate service design and delivery.

Whilst there will be flexibility within delivery at a local level there will be an expectation that where parent carers forums are involved, they will ensure that each school has access to a termly parent participation meeting and that the PCF will be responsible for the distribution of a nationally developed parent / carer survey at the beginning and end of the project. PCFs will also be provided with an resource pack of useful information and resources.

Types of support that parent carer forums could offer to deliver in schools that are part of the PINS project.

Set up and facilitate a SEND parent carer participation group in the school
Support to develop a sustainable and effective relationship between school leadership and the SEND parent carers
Support to identify the priorities of SEND parent carers
Facilitation of participation discussions to coproduce response to priority areas
Regularly feedback to monitor impact and effectiveness of coproducing with families
Empower SEND parent carers to understand and engage with other (health and social care) services to enable better engagement and support for families
Facilitate support to enable parents and carers to understand processes in school that support children
Provide information about the wider SEND system to promote greater understanding and awareness of available support
Identify and signpost to appropriate practitioners and services for families

Join us and have your voice heard at any of our events in 2024/25...

Newsletter September 2025

Fri, 26 Sep 2025 18:08:14 GMT

PCF SEPTEMBER NEWS

Here's our latest newsletter to download as a PDF document...

or follow this link to view online....

PLUS....To keep you up to date on all of the work, that we are involved in, go to our new BLOG/noticeboard area....

A very warm welcome back!

We’re so happy to welcome you back!

This academic year, there’s lots to look forward to, from coffee events to forums, training, blogs, newsletters, as well as opportunities to work together with the professionals to improve outcomes for all children and young people with Special Educational Needs and Disabilities (SEND).

Join us for our three key in-person forums on Neurodiversity, Preparation for Adulthood, and Education & Inclusion. In addition, stay connected from home with our virtual forums and workshops on a variety of SEND topics.

We will be attending parent coffee events in our schools, children centres and our local charities. We love meeting families and hearing your experiences, sharing information and resources. If you’d like the Parent Carer Forum (PCF) to host a coffee event at your school, please get in touch, we’d be delighted to help organise and come along!

Here is to another year ahead!

With warm wishes,

The Parent Carer Forum

Virtual Forum

Learn who we are at the Parent Carer Forum (PCF)

Discover what we do and why we do it, both locally and nationally
Meet the director of Education shaping SEND services in Cheshire West & Chester

Virtual Parent Training
This interactive training is designed to give parent carers the confidence and tools they need to communicate effectively with professionals. We will share practical tips and real-life examples to help you prepare for meetings and be assertive in challenging conversations.

Whether you’re new to navigating SEND systems or looking to strengthen your existing skills, this session will help you feel more prepared, empowered, and heard .

About the facilitator
Our facilitator is Gillian Driscoll . Some of you will know Gillian as she is a fellow parent carer to Lucy, 14. Gillian's professional background is

in learning and development, where she works as a facilitator and coach to help people be the best they can be.

Gillian works with the Parent Carer Forum as a way of giving back to the people who provide support for everyone else. She promises to create a safe space for people to explore how they can improve their skills and confidence to advocate successfully on behalf of their loved ones .

Neurodiversity Forum

Understanding Neurodiversity &

Support Services in

Cheshire West and Chester

Free Information Sessions for Parent Carers

Do you have concerns that your child may have additional needs?

Would you like to know more about who can help you and your child?

The SEND Information, Advice and Support Service is running a series of free sessions across Cheshire West and Chester this November.

Programme for the sessions include:

Session 1: Special Educational Needs – support in schools. What support can I expect for my child? Tips and techniques for meeting with professionals.

Session 2: Education Health & Care Plans (EHCP) – Understanding what is in an EHCP. How the plan should be put in place and what to do if things go wrong?

Please note: Sessions will cover the same information in each location.

Chester Area:

Session 1: Friday 14th November 2025 (10.00am – 2.00pm)

Session 2:Friday 21st November 2025 (10.00am – 2.00pm)

Venue:

SPACE Unit 6/7, Grange Park, Grange Road, Chester, CH2 2AN

Ellesmere Port and Neston Area:

Session 1: Thursday 20th November 2025 (10.00am – 2.00pm)

Session 2: Thursday 27th November 2025 (10.00am – 2.00pm)

Venue:

Room G2 at The Portal, Wellington Road, Ellesmere Port, CH65 0BA

Winsford and Northwich Area:

Session 1: Wednesday 12th November 2025 (10.00am – 2.00pm)

Session 2: Wednesday 19th November 2025 (10.00am – 2.00pm)

Venue:

Room G2, at Wyvern House, The Drumber, Winsford, CW7 1AH

You can attend one or both sessions, but due to limited numbers you must register to ensure a place.

Please bring your own lunch.

Places are limited – booking is essential

To register or find out more, call 0300 123 7001 or email IASService@cheshirewestandchester.gov.uk

Come along to meet other parents, learn more about the SEND system, and find out about local sources of support including the Live Well (Local Offer).

Parent/carer Coffee Events

Volunteering Team

For more information about us check out our Facebook page, YouTube Channel and Website.

Ordinarily Available Provision (OAP) Guidance

Cheshire West and Chester are developing new guidance to set out what support is ordinarily available in schools and the community for children and young people with SEND.

Led by Principal Education Phycologist, Kate Hughes, the Council is committed to working in partnership with parent carers, and are looking for 10 parents/carers to join a focus group to help finalise this important guidance. The full document will cover Social Emotional Mental Health, Cognition and Learning, Communication and Interaction, and Sensory/Physical/Medical Needs.

Neurodiversity Profiling Tool- Update

Please see the latest blog on the development of the neurodiversity profiling tool here in Cheshire and Merseyside. Have the opportunity to complete the final surveys and have your say on the final drafts. Find out what it means for Cheshire West & Chester and next steps.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

September 2025 Virtual Forum - Who Are We? & Meet the Directors

jo.southall@hotmail.com (Joanne Southall) — Tue, 02 Sep 2025 15:11:15 GMT

Who Are We? – PCF Forum & Meet the Director of Education & Inclusion

We recently hosted our first virtual forum, where parent carers had the chance to:

• Meet some of our PCF representatives

• Hear from Contact’s Participation Advisor, Lisa, who explained how PCFs fit nationally

• Meet Sal, the Director of Education Inclusion

A huge thank you to everyone who joined us!

Missed it? You can watch again on our YouTube channel or view the slides - links below...

To see other events coming up or to catch up on past events & presentations...

click below

Newsletter July 2025

Wed, 30 Jul 2025 15:04:47 GMT

PCF NEWS

In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website

Here are some of the latest updates…..

A message from our Chair, Julie Duff

As we look back on the academic year 2024/2025, I want to take a moment to express my deepest thanks to the incredible parent carers volunteers and families who are the heartbeat of the Parent Carer Forum. This year has been filled with growth, progress, and powerful moments of connection, but none of it would have been possible without you!

Whether you’ve attended a meeting, helped run an event, shared your story, or supported another parent, you’ve all made a difference. Your time, your voice, and your unwavering commitment is helping shape a better SEND system for families across Cheshire West & Chester. All those coffee events and forums, training sessions, strategy meetings, and survey feedback has shown that when families work together, meaningful change can happen. Last year we sowed the seeds, this year we see the “green shoots” of growth across the complex world of SEND.

Thank you again, with heartfelt gratitude to our volunteers, families, partners and stakeholders for being part of this journey. Your passion, strength, commitment and generosity have inspired us every step of the way to keep doing what we do. Here’s to an end of another very busy academic year, as we now rest and recharge ready continue to nurture our “growing shoots” in 2025/2026.

All the best over the summer holidays, our inbox will still be open.
The Parent Carer Forum

As Parent Carers, we know that the school holidays can bring mixed emotions, a chance for rest and fun, but also a time that can feel overwhelming, especially for families of children with additional needs. Routines shift, support may feel less available, and the pressure to “make it magical” can weigh heavy. Please know you’re not alone. Be kind to yourselves, take each day as it comes, and reach out if you need support even the smallest step is still progress.

Take a look at some of our top recommendations for connection and support in our blog Navigating the SEND system.

Looking for ideas, activities, and support over the summer holidays? Check out the Cheshire West & Chester Summer Holidays Padlet – a growing collection of resources and opportunities for children and young people with Special Educational Needs and Disabilities (SEND)

Shared News & Updates

From coffee events to forums, training, blogs, newsletters, and co-producing strategy, everything we do is powered by the time, energy, and dedication of parent carers.

Every conversation, event, and decision reflects real lived experience and a shared commitment to making SEND voices heard in Cheshire West & Chester.

Here is a snapshot of our work in 2024/2025

At our AGM on 16th July, we looked back on a busy year of sharing parent voice to influence improvement in services. We shared important updates on SEND transport.

We also shared how your pledges are shaping our new Co-Production Charter and set out exciting plans for 2025/6 events, including new forums, Survey, training, and meetups

In case you missed it the full recording from the AGM is below along with our annual report, Q&As & presentation slides!

As part of the ‘Partnership for the Inclusion of Neurodiversity in Schools’ (PINS) project the Parent Carer Forum has presented each of the 4 mainstream primary schools that took part in the project in 2024/2025 with a box of resources to be used as a library by children, parents, and teachers. The box is full of books and sensory equipment that can be used in school. The PCF also has a resource box that can be taken along to coffee mornings and meetings. The contents of the box can be seen in the photos and the attached list.

We are pleased to announce to be working with a new set of schools on the PINS Project in the Northwich and Winsford area in September.

Second SEND Summit 2025: A Snapshot

The Second SEND Summit brought together over 150 professionals, parents, and carers to reflect, connect, and contribute to real change for children and young people in our community. We would like to thank all our partners for the continued investment in improving culture change and outcomes for children and young people with SEND.

Explore the full range of presentations, data, and resources from the day on the link below.

Representation Stages

Dorin Park School - Representation Stage - CWPCF

Cheshire West and Chester Council and Dorin Park School are consulting to introduce a permanent increase of school places at Dorin Park School.

Further details about the consultation can be found on our website via the following link:.

Dorin Park School and SEN specialist College - Increase the number of school places via Satellite site consultation | Cheshire West and Chester Council

The formal consultation runs from Monday 09 July – Wednesday 06 August 2025 .

We encourage everyone to respond and welcome feedback over the four-week formal consultation period by the deadline of midnight Wednesday 06 August 2025

Email: SchoolOrganisationandConsultation@cheshirewestandchester.gov.uk

Engagement

Development of a Sufficiency Plan
Closing date for responses Friday 8 August 2025

The Sufficiency and Commissioning Group is tasked with developing a Sufficiency Plan for the next 5 years to support the development of places in the borough depending on need. To do this we want to coproduce what is required with parents and other key stakeholders.

Coproduction Groups Include

Education Places – including places in mainstream schools (primary and secondary, including academies), special schools and independent non-maintained special schools
Educated Other than at School, i.e. children who receive tutoring

Please see the link and QR code below to express your interest in getting involved.

Co-Production

Cheshire and Merseyside Neurodiversity Profiling Tool Pilot Evaluation

Centre for Autism, Neurodevelopmental Disorders and Intellectual Disabilities (CANDDID) Research team would like to invite you to co-production working group sessions to complete a time-limited piece of work. The aim of the working group is to refine the Portsmouth-Cornwall Profiling Tool to meet the needs of Cheshire and Merseyside young people.

Our first meeting will take place online via Microsoft Teams on:
Tuesday 22nd July 2025 , 12 midday until 12.45
Future co-production sessions will be held at the same time on the following dates:
Tuesday 5th August
Tuesday 19th August
Tuesday 2nd September
Tuesday 16th September
Tuesday 30th September

FREE support from Cheshire & Wirral Partnership NHS Foundation Trust (CWP NHS)

If your child attends a Mental Health Support School, you’re invited to join a series of supportive and friendly sessions this summer to help you understand and manage your child’s emotional wellbeing.

Various sessions across the borough over summer!

Please ask the providers if your school is signed up with them.

To find out more, email: cwp.cheshiremhstadmin@nhs.net

Need a Break? Carefree Can Help!

Through Carefree, hundreds of hotels across the country donate short stays to unpaid carers — giving you the chance to rest and recharge. You can book a 1–2 night hotel stay with a companion, at a time and place that suits you.

Join Our Growing Team at the Parent Carer Forum – Vacancies Available
Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester?

The Parent Carer Forum is looking for enthusiastic individuals to join our team!

Why Join Us?
Amplify Your Voice: Represent the perspectives of parents and carers in your school community. Your feedback will directly influence local services and SEND policies.

Make a Difference: Be part of a team that shapes positive changes for children and young people with SEND.

Flexibility: You can get involved at a pace that works for you—whether attending meetings, gathering parent feedback, or simply being a point of contact.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

CWaC SEND latest Newsletter

jo.southall@hotmail.com (Joanne Southall) — Wed, 23 Jul 2025 22:42:21 GMT

July 2025 Edition

Introduction from Amanda Perraton, Executive Director for Children and Families

Hello everyone

Welcome to our latest SEND Newsletter.

This newsletter shares updates on our SEND Improvement Plan, service developments, local successes, and new resources. It is here to help us all work together more effectively to support children, young people, and families.

Thanks to all of you - schools, health colleagues, care professionals, parent carers and partners, for your ongoing commitment to improving outcomes for children and young people with special educational needs and disabilities in Cheshire West and Chester.

Your ideas, partnership and hard work are central to delivering the changes our children, families and communities need.

Thank you for everything you do.

Amanda Perraton, Executive Director for Children and Families

OUR IMPROVEMENT PLAN AND STRATEGY

Supporting Every Child to Thrive: Focus on Attendance and Inclusion

Cheshire West and Chester Council is highlighting the vital role that school attendance and inclusive practices play in helping all children and young people achieve their potential.

Regular attendance is strongly linked to improved academic outcomes, better social connections, and positive mental health. Inclusive schools build a sense of belonging, reduce stigma, and ensure tailored support for children and young people with SEND, enabling them to flourish.

Promoting attendance and inclusion also brings wider benefits—supporting smoother transitions to adulthood, reducing the number of young people not in education, employment, or training, and strengthening our communities and local economy.

Sal Thirlway, Director of Education and Inclusion, said: “School attendance is more than just turning up - it lays the foundation for everything from learning outcomes to mental wellbeing. When children with SEND are included meaningfully, we not only uphold their rights, but we also enrich the learning environment for all. And crucially, consistent attendance provides stability that helps young people build the confidence and skills they need for adulthood.

“Investing in attendance and inclusive practices delivers smart returns. It reduces future spending on interventions, keeps young people in education or employment, and helps us meet legal responsibilities. The economic case is clear: inclusive education supports not only the individual child—but society as a whole.”

This approach reflects our commitment to creating a fairer, more sustainable education system that supports all learners.

Other Stories....

SEND Improvement Plan: Demand Continues to Rise
New Strategy Sets Priorities for 2025 to 2026
Strengthening Governance and Partnerships
Boosting Capacity with the SEND Inclusion Support Service
More Specialist Places for Local Children
Training and Co-Production in Focus

and many more....

Please email us at: contact.pcfcwac@gmail.com

Join us and have your voice heard at any of our events...

Newsletter June 2025

Wed, 23 Jul 2025 19:53:04 GMT

PCF NEWS

In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website

Here are some of the latest updates…..

A range of new and improved resources are now available to support neurodivergent children, young people, and their families across Cheshire and Merseyside. These include local and national directories, practical guides for families and professionals, and the trial of a new Neurodiversity Profiling Tool designed to ensure needs-led, timely support without the need to wait for diagnosis.

There are also updates on local services such as SPOTTS (Sensory Processing OT Service), the development of a new GP-led Adult ADHD model in West Cheshire, and professional feeding support for children on the autism pathway.

Read the full update from the link below.

Neurodiversity Profiling Tool Update: PROFILE STUDY (CHESHIRE AND WIRRAL PARTNERSHIP NHS FOUNDATION TRUST)

The Centre for Autism Neuro Developmental Disorders and Intellectual Disabilities (CANDDID) study team are evaluating the Neurodiversity Profiling Tool pilot and would really value your views.

Find out more by tapping the link below.

Trust, Inclusion, and Leadership in SEND

Navigating the complexities of Special Educational Needs and Disabilities (SEND) is a journey of challenge, learning, and opportunity. This programme’s focus on systemic transformation, collaboration, and co-production provided timely insights that complement the ongoing work in Cheshire West and Chester, including the SEND Strategy Plan and the newly formed SEND Strategy Partnership Board. Tap the link below to find out more.

Professional Updates & Engagement

New Cheshire and Merseyside neurodevelopment pathway, including the This is Me profiling tool to better support neurodivergent children and young people. Find out from the link below.

Join the Conversation on School Uniforms!

Cheshire West & Chester are bringing together parents, carers, young people, schools, and organisations across Cheshire West to shape the future of school uniform policies, making them fair, affordable, and supportive for all families.

Upcoming Sessions – Choose the one that suits you:

Online: Thursday 3rd July, 12:30–1:30pm

Winsford (Wyvern House): Monday 7th July, 9:30–10:30am

Chester (HQ): Thursday 10th July, 2:30–3:30pm

Before joining, please take 5 minutes to complete our School Uniform Survey and share your views — even if you can’t attend a session!

FREE support from Cheshire & Wirral Partnership NHS Foundation Trust (CWP NHS)

Various sessions across the borough over summer!

Please ask the providers if your school is signed up with them.

To find out more, email: cwp.cheshiremhstadmin@nhs.net

Koala North West’s Thriving Families programme offers one-to-one, tailored support for parents, carers, and children aged 0–19 (or up to 25 with SEND). Whether it's parenting guidance, mental well-being, or strengthening family relationships, we're here to assist you in a way that works best for you.

Listening Ear service offers hour-long 1-1 telephone appointments with a family support adviser.

Where our helpline provides information and advice, Listening Ear is for parent carers looking for emotional support and reassurance – though we can provide practical help too.

Freephone telephone

Tel: 0808 808 3555

Open Monday to Friday, 9.30am-5pm.

Preparation for Adulthood – Your One-Stop Padlet

A helpful, easy-to-use online noticeboard designed to support young people and their families in navigating post-16 services.

Whether you’re looking for information on education, employment, independent living, or health and wellbeing, this ‘one-stop shop’ Padlet brings together key resources, services, and guidance to make the journey to adulthood clearer and less overwhelming.

Finding the right social opportunities and support for young people with Special Educational Needs and Disabilities (SEND) can be a challenge. That’s why the Cheshire West and Chester Youth Service provides free, inclusive, and engaging youth provisions across the borough.

Need a Break? Carefree Can Help!

Join Our Growing Team at the Parent Carer Forum – Vacancies Available
Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester?

The Parent Carer Forum is looking for enthusiastic individuals to join our team!

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

AGM 2025

Wed, 16 Jul 2025 13:51:08 GMT

At our AGM on 16 July, we looked back on a busy year of parent voice and co-production – and shared important updates on SEND transport.

We also shared how your pledges are shaping our new Co-Production Charter and set out exciting plans for 2025/6 events, including new forums, Survey, training, and meet-ups

In case you missed it the full recording from

The AGM is below along with our annual report, presentation slides and Q&As...

For more information on the PCF and what we do ...

click below

Second SEND Summit 2025: A Snapshot

Wed, 16 Jul 2025 13:25:58 GMT

Nine months after the first summit, the Second SEND Summit 2025 brought together over 150 professionals, parents, and carers to reflect, connect, and drive forward real change for children and young people with SEND. Edwina Grant, Independent Chair of the SEND Partnership Board, set a powerful tone around shared responsibility and culture change and much work that’s needs to be done. Highlights included the launch of the SEND Partnership Strategy 2025–2026, the embedding of the Parent Carer Forum survey into Key Performance Indicators and a moving parent-led video that will be developed for training.

There is a recognition that significant amount of work still needs to be done but there was a general acknowledgment that we could see the “green shoots” of change

We would like to thank all our partners for they continued investment in improving outcomes for children and young people with SEND.

To explore the full range of presentations, data, and resources from the day, visit the links below...

For more information on the PCF and what we do ...

click below

School Uniform - Have Your Say

jo.southall@hotmail.com (Joanne Southall) — Tue, 24 Jun 2025 14:20:50 GMT

�� Join the Conversation on School Uniforms! ��

�� Upcoming Sessions – Choose the one that suits you:

�� Online: Thursday 3rd July, 12:30–1:30pm (link below)

�� Winsford (Wyvern House): Monday 7th July, 9:30–10:30am

�� Chester (HQ): Thursday 10th July, 2:30–3:30pm

Before joining, please take 5 minutes to complete our School Uniform Survey and share your views — even if you can’t attend a session!

For more information on the PCF and what we do ...

click below

Cheshire Neurodevelopmental Clinical Network - Update

Tue, 10 Jun 2025 14:39:26 GMT

Neurodevelopmental Support Resources

West Cheshire Parent Carer Forum has worked with Cheshire West and Chester Council’s Autism service to coproduce a visual online noticeboard, known as a ‘padlet’. The padlet can be accessed via the Local Offer and it contains a collection of agencies and resources that can help with a range of issues – for example: sleep, toileting, sensory processing and the presentation of Autism in girls.

The padlet can be viewed here: Cheshire West & Chester Autism Service Family Support Padlet

Cheshire East Place is pleased to announce new proactive support resources for neurodivergent children, young people, and their families, regardless of where they are on their neurodevelopmental journey.

The national charity Contact , in partnership with co-production specialists Genuine Partnerships and the Cheshire East Parent Carer Forum , have co-produced a suite of new materials.

These resources were developed together with parents, practitioners, and neurodivergent young people.

The project was led by a neurodivergent graphic designer and a Cheshire East-based project manager, both of whom are parent carers with lived experience.

The outcomes include:

1. A new web platform featuring a searchable directory of local and national resources.

2. Information on personal passports, current referral pathways, and future service developments.

3. Redesigned practitioner guidance and operational communications, co-produced with families.

You can explore these new resources here: www.cheshireandmerseyside.nhs.uk/pathway

The resource database will be regularly updated and copied over to Cheshire West Place. Cheshire West families can use these this link in the meantime.

Every child and young person has unique needs and the support provided to them should be tailored to respond to this. This initiative aims to empower families with clear, accessible information so they can make informed decisions and access the right support, at the right time.

Professional Feeding Working Group

The Sensory Processing Occupational Therapy Support Service (SPOTTS) offers a paediatric feeding group in Cheshire , with input from Speech and Language, Occupational Therapists, and Paediatrics.

SPOTTS would like to invite you to learn about the Professional Feeding Working Group (PFWG).

Please see the flier here: Professional Feeding Working Group

You can book a place here: https://PFWG.eventbrite.co.uk

SPOTTS Access

Diagnosis is not needed to access the service but the child/young person does need to be on the Autism pathway (this does not need to be the Autism assessment pathway necessarily, it could be a pathway like Cheshire East Council’s Cheshire East Autism Team [CEAT]).

SPOTTS is a school-based commissioned service, with referrals made by schools. Currently only primary school based in Cheshire West. Website Update! - Our new site is live with referral info; training links & resources. Check it out here: Sensory Processing Occupational Therapy Support Service (SPOTSS) :: Mid Cheshire Hospitals NHS Foundation Trust

Got a question? Contact us at ccicp.sensoryotadmin@mcht.nhs.uk

Adult ADHD

Cheshire West is currently modelling a GP-led Adult ADHD service , based on the LEAP model used in Wirral. Communication will shortly be shared with GPs about this model of care, which will include advice about shared care.

This model entails GPs undertaking reviews and then moving to take on new assessments and transitions as part of a staged process.

CWP’s Adult ADHD pathway across Cheshire is currently only seeing patients that fit into priority groups but waiting times are still long – for example, there are currently 179 CYP looking to transition to adult services and the waiting time is approximately 12 months. The LEAP model would increase CWP’s capacity to see priority groups during the staged process.

West Cheshire GPs that have expressed an interest in training for this model.

Neurodiversity Profiling Tool

Cheshire and Merseyside Neurodiversity Profiling Tool Pilot Evaluation is underway.

The Profiling Tool will adopt the Portsmouth model, which focuses on a needs-led approach rather than a diagnosis-led one, has been well-received as a framework for Cheshire & Merseyside. The Portsmouth Model is a needs-led framework that prioritises providing support based on individual needs rather than waiting for formal diagnoses. It allows for immediate interventions and adjustments in mainstream settings, particularly helpful during long waits for ND (neurodevelopmental) assessments. While complementing the ND pathways, it also offers valuable insights for paediatricians, aiding in diagnosis by providing a clear understanding of a child's developmental needs. This ensures that children receive timely, tailored support while awaiting formal diagnoses like ADHD or autism.

The purpose of the study is to better understand parent carers views on the neurodiversity profiling tool, and what is important to consider for its wider use and implementation across Cheshire and Merseyside.

For more information on the PCF and what we do ...

click below

Newsletter May 2025

jo.southall@hotmail.com (Joanne Southall) — Sun, 01 Jun 2025 21:17:48 GMT

PCF NEWS

In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website

Here are some of the latest updates…..

It’s been a year since we published our May 2024 survey, and we’ve taken some time to reflect on everything that’s happened over the past 12 months.

The Parent Carer Forum has been involved in a wide range of work to help shape and influence local services. From sharing lived experiences to co-producing solutions with professionals, it’s been a year of challenge, progress, and learning.

As we look back, I want to take a moment to acknowledge every volunteer who has been part of this journey. Whether you’ve shared your story, attended a meeting, helped with an event, or just offered words of encouragement—thank you!

Culture Change In Action -Your Invited!

Culture Change in Action – Help Shape the Co-Production Charter”

Your feedback to date and results from the 2024 PCF Survey make it clear that professionals from all sectors sometimes miss the mark in terms of coproduction, culture and communication across our SEND community. The Council knows you want meaningful change, and are committed to developing a ‘Coproduction Charter’, detailing a series of ‘Pledges’ (in your own words), which are a shared commitment to values like trust, empathy, accessible language, and genuine partnership.

We would love for you to be part of developing this important set of ground rules on how parents/carers, children and young people, and wider families can expect to be treated. Meetings will be held online and face-to-face in communities across the borough so please register your interest here if you would like to be part of it.

In you cannot make any of the sessions you can still contribute by contacting us at info@pcfcheshirewest.org and/or katy.ellison@cheshirewestandchester.gov.uk

✨You said… We did! ✨

This time last year, we gathered your feedback through our Parent Carer Survey and a Facebook Poll to help shape our PCF Annual Planning!

A huge shout out to all our parent carers volunteers that has made this happen!

A huge thank you to everyone who attended Preparing for Adulthood event!

We’re so grateful to all the incredible speakers who shared their time, expertise, and experiences — but most importantly, to our young people, who were the true highlight of the day!

There powerful speeches moved us, inspired us, and reminded everyone why this work matters so deeply

Please visit the blog and find out more and to view all the presentations from the day.

Explore the New Preparation for Adulthood Padlet in Progress!

Preparation for Adulthood – Start Your Journey Today!

A huge thank you to all the parents and carers who continue to be involved in developing the Padlets on the Local Offer. Your feedback is helping us shape easier access to support and information!

Got questions or feedback? Anything that should be added?

✉️ Contact the Livewell Co-Ordinator - emma.walker@cheshirewestandchester.gov.uk

We recently hosted a powerful webinar led by Rhiannon Gogh—carer, Chartered Financial Adviser, and founder of the Carers Academy. Rhiannon shared invaluable insights on financial planning for parent carers,

Community Updates

SEND SUMMIT-SAVE THE DATE!

Building in last year’s Summit, the Council will hold a second SEND Summit on 30 ^th June , 9:30am -1pm at Northwich Memorial Hall!

Limited Spaces!

SEND Mediation & Disputes Resolution- Engagement

Cheshire West and Chester Council is gathering feedback and thoughts from people with lived experience regarding the commissioned service for the SEND Mediation and Disagreement Resolution commission. Please share yours view by booking onto one of the Engagement meetings. If you cannot make the meetings please share your views by contacting Wendy Johnstone, Commissioning Lead - Children and Families

Strategic Commissioning People Cheshire West and Chester Council

Email: wendy.johnstone@cheshirewestandchester.gov.uk

Telephone: 0151 356 6558

“There is still time to fill out my survey which looks into child and adolescent mental health services.

I am keen to hear directly from people who have accessed, or tried to access, these services to understand more about your experiences.

I often hear from families who have struggled to gain access to vital care for their children. I know how difficult and exhausting this can be for young people struggling with their mental health and for parents trying to get help for their child.

I am determined to see improvements to this system.

Your feedback from this survey will help me with my campaign to fix child and adolescent mental health services to ensure everyone has access to the care they need.” Andrew Cooper, MP

Need a Break? Carefree Can Help!

May Half Term Activities

FREE Half-Term Fun & Games!

Come join us for a relaxed and friendly Games & Connection Session — specially designed for neurodivergent children aged 4–13

Monday 26th May | 3:00–4:00pm

Soul Space, Chester

Just turn up, no booking needed.

Playful activities and group games to:

• Boost attention and focus

• Build confidence and social skills

• Encourage turn-taking & teamwork

• Help children feel safe, included & free to be themselves

Followed by our Glow and Grow yoga session at 4:15pm!

You're welcome to book both and make a whole afternoon of fun, connection and calm!

Book Here! ��

https://goteamup.com/p/9618149-soul-space-chester/e/86409472-glow-and-grow/

Join Our Growing Team at the Parent Carer Forum – Vacancies Available
Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester?

The Parent Carer Forum is looking for enthusiastic individuals to join our team!

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Reflections on Leadership in SEND and Alternative Provision with the National Development Team for Inclusion (NDTI)

Wed, 28 May 2025 13:34:30 GMT

Trust, Inclusion, and Leadership in SEND

Navigating the complexities of Special Educational Needs and Disabilities (SEND) is a journey of challenge, learning, and opportunity. Recently, Karen Cove (Senior SEN Team Manager) and I participated in the National SEND/AP Leadership Programme led by the National Development Team for Inclusion (NDTI). The programme’s focus on systemic transformation, collaboration, and co-production provided timely insights that complement the ongoing work in Cheshire West and Chester, including the SEND Strategy Plan and the newly formed SEND Strategy Partnership Board.

We were proud to be the only Local Authority (LA) and Parent Carer Forum (PCF) team to take part together, alongside inspirational leaders from across England, including our neighbours in Cheshire East and Wirral. While challenges across the system remain significant, it was encouraging to see a national movement of committed leaders striving for positive change.

This blog captures the essence of our learning and progress so far, shaped by historical context, leadership frameworks, and real-world experience.

The Vision of the National SEND/AP Leadership Program

"Our vision is to create a more inclusive society through the development of a national SEND and AP system, ensuring high-quality, timely support and services so that all children and young people can lead fulfilling lives. Inclusion, co-production, and leadership are at the heart of this vision.

Key Learning: Systems Leadership, Co-Production, and Trust

Real progress in SEND cannot come from small adjustments to existing structures, it demands transformational change where every child thrives. Systems leadership teaches us to break down silos across education, health, social care, and family services, sharing responsibility for outcomes and focusing on collective action rather than isolated efforts.

Co-production was a central theme, highlighting the need to move beyond consultation to genuine partnerships built on trust and shared ownership. In Cheshire West and Chester, work is already underway to re-launch the Co-Production Charter, embedding transparency, trust, and shared expectations across all areas of SEND support.

“Building trust is vital between leaders, teams, stakeholders, and families. It is the cornerstone of effective leadership, collaboration and Inclusion”

A Parent’s Perspective: Trust and Strengths

As a parent carer representative—and a parent myself, I see firsthand the breakdown of trust has impacted families. For those whose children’s disabilities are visible, society often underestimates their potential. For those like my own child, whose disabilities are invisible, families face a constant battle to prove their needs, leading to a damaging focus on deficits rather than strengths.

This constant struggle can overshadow children's voices, dreams, and capabilities. True inclusion starts with listening to children—however they communicate—and empower them to express their aspirations. We must create systems that build independence and recognise potential, rather than reinforcing barriers.

Inclusion: Making the Ordinary Possible

Inclusion is not about extraordinary measures; it’s about ensuring that children and young people experience everyday joys, building friendships, accessing hobbies, and engaging fully in community life.

Progress is being made, focusing on educational inclusion, service access, and holistic family support. Initiatives like the Partnership Inclusion Neurodiversity in Schools project are pivotal in amplifying the voices of children and young people, ensuring that co-production is not limited to adults but reflects the needs and aspirations of those we serve.

Parent Carer Forums continue to play a vital role, working alongside system leaders to ensure lived experience shapes decision-making. Yet, more must be done to prioritise the direct voices of children and young people at every level.

Leading with Influence, Not Just Authority

This programme challenged us to think differently, act boldly, and lead with influence rather than authority. True leadership is not about position but about the courage to challenge the system and model new ways of working. Karen and I are committed to driving trust, inclusion, and collaboration wherever we can influence change. Leadership is not about titles, it’s about relationships, authenticity, and action.

“Many people at the top of organisations have authority but are not leaders. Many at the bottom with no authority are absolutly leaders." Simon Sinek

Watch the short video that inspired us here:

First Follower: Leadership Lessons from Dancing Guy

Challenges in Embedding Change

One of the greatest challenges has been the speed of change, particularly around shifting deep-rooted cultures. Working across complex systems, where no one person or organisation can transform SEND alone, requires ongoing effort, difficult conversations, and patience.

While the journey is long, there is a strong commitment within Cheshire West and Chester to do this work. Progress is happening, and momentum is building. Embedding trust, shared leadership, and co-production as everyday practice is not easy, but it is possible and necessary.

Moving Forward Together

We have naturally developed key learnings from this six month program within the work taking place both, within our own teams and wider partners. For example, Karen and I have actively brought our teams together to build relationships and trust, creating safe spaces to discuss and challenge complex systems and policies. This has included joint work on the “Same Team” initiative, strengthening connections across services, and integrating Parent Carer Forum representatives into parent volunteers training opportunities. We have presented the learning from the National Development Team for Inclusion (NDTi) Leadership Programme to our teams and the steering group, using it as a foundation to shape thinking and drive practical changes. A key example of this in action is our contribution to the review of the Education Other Than At School (EOTAS) policy and development of workshops unpicking types of education, where we have pushed for deeper exploration of systemic barriers. We have also expanded collaboration by involving wider services, such as Education Welfare Officers, to build a fuller picture of the challenges faced by families.

In addition, we have used our learning and experiences to directly influence the co-drafting of the SEND Strategy 2024–2025, demonstrating that the principles of trust, inclusion, and co-production have been embedded from the top of the Strategy Board through to operational practice. Our involvement ensures that learning from the program is built into the strategic direction of SEND services. Operationally, we continue this work through participation in task-and-finish groups, workshops, and action learning sessions aimed at improving day-to-day services both within our own teams and across wider sectors. These examples show how the leadership principles from the NDTi programme are not just being discussed but actively implemented to drive system-wide improvements.

As I conclude this reflection on our journey through the National SEND/AP Leadership Programme, it is evident that the path to meaningful change in Special Educational Needs and Disabilities (SEND) lies in the strength of our collective leadership. The insights gained have reaffirmed that leadership in SEND is not defined by titles but by the courage to challenge the status quo, the authenticity to lead with integrity, and the commitment to inclusivity that places children, young people, and families at the heart of decision-making.

Photo: National SEND Programme Cohort 2

The journey is undoubtedly complex, marked by challenges that require resilience and unwavering dedication. However, the progress we have witnessed in Cheshire West and Chester—through initiatives like the re-launch of the Co-Production Charter and the development of the SEND Strategy 2024–2025—demonstrates that change is not only possible but already underway.

For those considering a similar path, we highly recommend the National SEND Leadership Programme. Participating as a team—comprising both local authority representatives and parent carer forum members—provides a unique opportunity to build the foundations of cultural change that are essential for lasting impact.

Together, we can navigate the complexities of SEND and Alternative Provision, turning challenges into opportunities for growth and transformation.

Find out more here: National Leadership in SEND and AP Programme

Lucy Kennerley

Vice-Chair, Parent Carer Forum Cheshire West and Chester

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Thriving Families: Support That Grows With You

jo.southall@hotmail.com (Joanne Southall) — Tue, 20 May 2025 20:33:04 GMT

We support with:

Home-based parenting support customised to your family's situation

Assistance with mental health and emotional well-being

Building stronger family connections and relationships

In partnership with Platform For Life, Capa First Response & Power 2.

Call 0151 294 5885 or head to the website for more information.

To see our PCF coffee events coming up or other regular SEND coffee mornings and meet ups

click below

Planning With Love: Highlights from Our Parent Carer Financial Toolkit Webinar

jo.southall@hotmail.com (Joanne Southall) — Tue, 20 May 2025 13:10:44 GMT

In May 2025, we welcomed Rhiannon Gogh—carer, Chartered Financial Adviser, and founder of the Carers Academy—to lead a powerful webinar on financial planning for parent carers.

Rhiannon’s journey started with her own autistic son. Faced with confusing advice and complex systems, she used her financial background to find answers—and now shares her knowledge to help other families like ours.

Over the past seven years, she’s trained with Contact and Parent Carer Forums across the country, making finance and future planning accessible, clear, and carer-friendly

What We Learned:

The top 5 financial tips for S.E.N.D families
How savings effects benefits
Protecting income and assets
Wills, trusts, and planning for the future
Avoiding common financial pitfalls
Where to get help—without huge legal or advice fees

Parents described the session as “eye-opening,” “empowering,” and “finally, someone who gets it.”

Highly Recommended: Grants and benefits document available to download below.

Rhiannon’s book, Planning with Love, is a brilliant follow-up to the session.

About the Presenter
Rhiannon Gogh – Carer, Chartered Financial Adviser & Author.
"I've trained for the PCF's and Contact for 7 years now and have recently set up the Carers Academy. My mission is to ensure SEND parents and carers have access to the right information at the right time—without the hefty legal or financial advice fees."

Visit �� www.carersacademy.co.uk

Thank You, Rhiannon!

We’re so grateful for your time, your passion, and your commitment to supporting families like ours

To see other events coming up or to catch up on past events & presentations...

click below

Survey 2024, 12 Months On: From Feedback to Action

jo.southall@hotmail.com (Joanne Southall) — Mon, 12 May 2025 15:19:36 GMT

We made four clear recommendations off the back of the survey — and we’re proud to say we are well on our way to achieving them. As always, there is still work to do. And, as always, key pieces of work have emerged along the way that weren’t part of the original plan but couldn’t be ignored — these are reflected under 4 Key Pieces of Work .

A huge thank you to our volunteers for all the hours you’ve given, often in challenging and messy spaces. Looking back at this timeline is a testament to how far we’ve come — not just as a Parent Carer Forum, but as a borough. Together, through trust and challenge, we’ve started to build stronger relationships and more visible structure.

The role of the Parent Carer Forum is not to deliver services, but to work hard to influence change by reflecting where the gaps in provision are, highlighting poor communication, and showing how these issues impact our families.

Now, after years of hard work, we can finally see the foundations taking shape — and a more positive, purposeful, and structured 12 months ahead.

Survey Results Summary Published

In May 2024, we published the findings from our most recent parent carer survey. Sadly, many of the key concerns raised by families back in 2022 remained unresolved. Communication continued to be a major theme — a longstanding issue that’s been a top priority since our very first survey in 2016.

The responses revealed a growing sense of frustration among families, particularly around the lack of meaningful co-production. Despite the efforts of the Parent Carer Forum, there was limited engagement from professional partners in supporting or promoting the survey. Parents reported longer waiting times across every stage of the SEND journey — from initial concerns and referrals through to diagnosis and the EHCP process.

Many families shared that they still feel like they’re having to fight to get their child’s needs identified, understood, and met. This ongoing battle is not only affecting outcomes for children but also having a significant impact on the mental health and wellbeing of families. The data made it clear: families are calling for urgent and sustained action to improve services, rebuild trust, and ensure their voices are genuinely heard and acted upon.

PCF recommendations:

Develop a new Co-production Charter
Culture change commitment
Communication
Key Pieces of work

PCF Speaks at Full Council Meeting — Motion Passed to Become an Inclusive Borough, with PCF Written In

Vice Chair, Lucy Kennerley, spoke at the Full Council meeting in Winsford alongside partners and parents to highlight the lived experiences of families in Cheshire West. A motion, proposed by Cllr Andrew Cooper, acknowledged the “profound disappointment” of some families and committed to making Cheshire West a more inclusive borough for children and young people with SEND. The motion passed, with the PCF formally included — marking a significant step forward for co-production and system-wide accountability.
Click to read our BLOG - Becoming an Inclusive Borough

Survey Recommendations:
2. Culture change commitment

PCF Chair Julie Duff Leads First Roundtable with Council Leaders and Parent Carers

The Parent Carer Forum was invited to chair the first roundtable meeting with leaders from the council — a significant step in recognising the value of parent voices at the heart of local decision-making. At this meeting, the PCF shared key projects already in development and, crucially, brought forward some of the most pressing and valid concerns raised by families across the borough. In response, a draft roadmap for improvement was created, underpinned by a collective commitment have the PCF at the heart of future decision making, leading to better communication, stronger co-production, and meaningful culture change.

Survey Recommendations:

2. Culture change commitment

PCF Survey Recommendation Sparks Independent Review of SEND Customer Experience

Following the PCF survey recommendations, independent stakeholder Just Libra facilitated a series of customer service training focus groups with parent carers.

This engagement was a significant step forward in recognising the lived experiences of families navigating the SEND system. It helped bring to light the emotional toll and systemic faced by both families and professionals.

The feedback reinforced the urgent need for systemic reform, greater capacity and resource planning, and stronger, more visible leadership to drive meaningful and lasting change.

Survey Recommendations:

2. Culture change commitment

3. Communication

PCF Annual Planning Meeting

Parent Carer Survey & Poll Summary: Shaping Future Events

Alongside the PCF survey results we conducted a poll to understand what skills and key issues parents and carers would like us to focus on for the upcoming academic year. The results of this poll directly shaped our upcoming events and training sessions for the year, ensuring that the PCF meets the needs and priorities of our community.

Survey Recommendations:

1. Co-production

3. Communication

AGM invited director of children’s services to answer your questions

Survey Recommendations:

2. Culture Change Commitment

3. Communication

Approaches to Support Autistic Children and Young People in Cheshire West and Chester- information for parent carers and professionals. Read our focus group blog here.

Summer 2024: Strategic Conversations and National Advocacy

Over the summer, we held several meetings with Leaders to help shape the upcoming SEND Summit — including the announcement of plans to invest in creating more specialist places for children and young people with SEND. PCF get parents carers questions answered from the Council. CWAC answers your questions

At the same time, our Chair, Julie Duff, met with local MPs to ensure the voices of families in Cheshire West are heard not just locally, but all the way to Downing Street. These meetings marked a vital step in raising national awareness of the challenges our families face — and the urgent need for change. Julie’s collaboration over the summer

Survey Recommendations:
2. Culture change commitment

3. Communication

Launch of the Blogs Page

In response to feedback that people were unsure about our actions and methods, we created a Blogs Page to improve communication. This page serves as a dynamic platform to connect, inform, and empower. We provide key updates, resources, and insights to keep parents and carers informed. Our content includes practical advice, personal stories, and collaborative pieces that offer guidance and highlight partnerships aimed at improving services for SEND families. We showcase the lived experiences of parents and carers to drive meaningful change and ensure that their voices are heard. Our Blogs Page is where information meets inspiration, fostering a stronger, more connected community.

PCF Steering Group Terms of Reference Reviewed

We reviewed existing Terms of Reference for the PCF Steering Group, we reviewed membership and embedding our shared vision and core values. This formalised how we work together — as parent carers and professionals — in equal partnership, grounded in co-production, respect, and inclusion.

Survey Recommendations:

1. Co-production

2. Culture Change Commitment

3. Commitment

Presented to Cheshire West and Chester SEND scrutiny committee.

The PCF represented your voices at Cheshire West and Chester's (CWaC) scrutiny process. Our main purpose was to share views and experiences with the panel whilst ensuring that the data from our latest survey was written into the scrutiny process to ensure that quantifiable measures are put in place to ensure that your voices are being heard.

Survey Recommendations:

2. Culture Change Commitment

3. Communication

Part of the interview panel for director of children’s services (ensuring parents are at the heart of leadership decision-making)

The Parent Carer Forum was invited to participate as a key stakeholder in the recruitment process for the new Director of Children’s Services. This opportunity allowed the Forum to directly question prospective SEND leaders on their commitment to listening to parent feedback — and to challenge them on whether they would truly place the experiences of parents and young people at the heart of their decision-making.

Survey Recommendations:

2. Culture Change Commitment

The start of the Partnership of Inclusion in of Neurodiversity in Schools Project

The PINS (Partnership for Inclusion of Neurodiversity in Schools) project is almost at an end of phase 1. NHS England and the Parent Carer Forum is working together with 4 schools in Cheshire West and Chester. The PCF is part of the Steering Group for the project, and we have been working with our SEND colleagues in the NHS and the Local Authority to plan and implement the project. It is a partnership approach, and the aim of the Parent Carer Forum is to help to build on and strengthen the relationship between schools and parent carers.

Survey Recommendations:

1 Co-production

2. Culture Change Commitment

3. Communication

4. Key Pieces of Work

National SEND/AP Leadership Programme

Karen Cove, SEN Team Manager, and Lucy Kennerley, Vice Chair were endorsed by the Director of Children Services to embark in the National SEND/AP Leadership Programme led by the National Development Team for Inclusion (NDTI). This program’s focus on systemic transformation, collaboration, and co-production providing timely insights to complement the recommendations from the PCF survey. Read Lucy's blog here..

Survey Recommendations:

1. Co-production

2. Culture Change Commitment

3. Communication

4. Key Pieces of Work

First SEND summit

We had the privilege of presenting at first the SEND Summit 2024, held on October 10th, which turned out to be an incredibly successful and impactful event. With 270 attendees, including parent carers, educators, local authorities, and healthcare professionals, the day was a testament to the commitment and passion of all stakeholders working to improve outcomes for children and young people with Special Educational Needs and Disabilities (SEND).

Click here to learn more about the SEND Summit

SIP and Learn Coffee event with Information Advice Support Service (Northwich)

Support, Information, and Participation (SIP) and Learn Coffee event, joined by the Information, Advice, and Support Service (IASS), was a wonderful opportunity to bring together parents, carers, and professionals committed to supporting children and young people with Special Educational Needs and Disabilities (SEND). For many years, our Parent Carer Forum (PCF) has collaborated with IASS to provide families with guidance and empower them in navigating the educational system. This event underscored our mutual goal: to equip parents and carers with the knowledge needed to make informed decisions about their child’s support and educational journey.

NEW PCF School's Representatives Lead

Introduces evening coffee events (Ellesmere Port)

Survey Recommendations:

1. Co-production

2. Culture Change Commitment

3. Communication

We Host first Successful Mental Health Forum (Chester)

70+ parent carers attended our Mental Health Forum! The event was packed with valuable insights and important discussions surrounding mental health and communication.

Drop-In Coffee event with Short Breaks & Wraparound Care Professionals (Chester)

Parents Carers meets professionals around short breaks and wrap around care while having a cuppa.

Parent Forum Participation Using Survey Data to Drive Change

Lucy and Julie shared how their bi-annual parent carer survey has made a big impact on building an inclusive SEND community in Cheshire West. In a chat with Contact Associate Laura Burling, from CONTACT a Family they discuss how the survey data has strengthened partnerships and influenced meaningful changes in the area. They’re passionate about inspiring other forums and proving that together, we can make a real difference! Listen here

CWAC Scrutiny Report Approved

Scrutiny Report was approved, marking a significant step forward in improving outcomes for children and young people with SEND in Cheshire West. This report is the result of extensive collaboration, bringing together the voices of families, the Parent Carer Forum (PCF), council officers, schools, health professionals, and other key stakeholders. SEND Scrutiny Report Approved

Survey Recommendations:

1. Co-production

2. Culture Change Commitment

3. Communication

#you said we did

What are panels and how decisions are made Online (you said we did)

Karen Cove, Senior SEN Leader, who shared her expertise on SEND panels and their critical role in decision-making. This session aimed to demystify the process for parents and carers. Click here to read the blog

Part of the interview panel for the role of Inclusion Officers (ensuring parents are at the heart of leadership decision-making)

Proud to be part of the interview panel for the new Inclusion Officers—great to help shape a team committed to making a real difference for children and young people.

A workshop for PDA, Masking & Autism in Girls Online (you said we did)

We organised an insightful online workshop focused on a topic that Parent Carers told us they want to know more about.

Survey Recommendations:
1. Co-production

2. Culture Change Commitment

3. Communication

PCF parent volunteer six-week training and program started

Our six-week Parent Volunteer Training Programme was designed to equip parent carers with the knowledge, skills, and confidence to work alongside professionals, advocate for families, and influence real change. Parent Volunteer Training

Drop-In Coffee event with Short Breaks & Wraparound Care Professionals (Northwich)

Parents Carers meets professionals around short breaks and wrap around care while having a cuppa

ICB coproduction charter signed with other north-west parent career forums

Link to ICB charter

Appointment of new director of children’s services

Survey Recommendations:
1. Co-production

2. Culture Change Commitment

3. Communication

4. Key Pieces of Work

Neurodevelopment Forum (Hartford)
(you said we did)

Survey Recommendations:
3. Communication

PCF part of the shaping of the new SEND strategy with PCF survey results written in to accountability measures

Online forum for transitions and pathways Online (you said we did)

An informative session took place to guide families navigating key life transitions for their children.

SIP and Learn Coffee event with Information Advice Support Service (Chester)

We host another SIP & Learn with IASS

First send partnership board meeting to review new strategy with PCF at top table ensure the voices are hearted decision-making

Survey Recommendations:
1. Co-production

2. Culture Change Commitment

3. Communication

4. Key Pieces of work

SIP and Learn Coffee event with Health Professionals (Northwich)

Parent carers meet other parent carers and a range of health professionals including Sensory Occupational Therapist, Speech & Language Therapist, Staring Well, Sleep services and more!

PCF to lead on comms culture and co-production delivery group in the strategy process

Summary of setting the scope of the delivery group, members and focus groups. The SEND Strategy for Cheshire West and Chester sets out key principles in SEND, each supported by a dedicated delivery group made up of representatives from all sectors.

As a Parent Carer Forum, we are proud to be active members across all six groups — and especially proud to be leading the Communications, Culture and Co-production delivery group.

This group is focused on refreshing our Co-production Charter and embedding a culture of meaningful collaboration, which will influence and shape the work of all the other delivery groups.

Send Partnership Board Meeting

PCF to present to Board members – building confidence in parent carers

Survey Recommendations:
1. Co-production

2. Culture Change Commitment

3. Communication

4. Key Pieces of work

SIP and Learn Coffee event Charity Support (Northwich)

Parent carers meet the amazing charities in our borough

Preparation for Adulthood Forum (Ellesmere Port)

A Preparation for Adulthood Event- Supporting Young People with Additional Needs to Thrive Beyond School. To find out more, read 'Preparation for Adulthood: A Shared Vision for the Future' Published by: Lucy Kennerley

Free Financial Planning Online Training for parents and carers

Rhiannon Gogh—carer, Chartered Financial Adviser, and founder of the Carers Academy lead a powerful webinar on financial planning for SEND parent/carers. Parents described the session as “eye-opening,” “empowering,” and “finally, someone who gets it.” Learn more about this session and Rhiannon here...

Conclusion

This past year has shown what’s possible when families and services come together with shared purpose. While there’s still work to do, we’re proud of the progress made and the stronger foundations now in place. The feedback from 369 parent carers helped drive change — not just in plans, but in mindset. As we move forward, we remain committed to listening, learning, and working in true partnership to create a SEND system that works for every child and young person in Cheshire West.

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events

Transport Update and AGM

jo.southall@hotmail.com (Joanne Southall) — Thu, 01 May 2025 21:08:44 GMT

To register for this event, please click below and we will send you a link nearer the time.

To see other events coming up or to catch up on past events & presentations...

click below

Newsletter April 2025

jo.southall@hotmail.com (Joanne Southall) — Mon, 28 Apr 2025 20:42:27 GMT

PCF NEWS

In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website

Here are some of the latest updates…..

Parent/Carer Coffee Mornings

Free, informal sessions, where parents will be able to chat to other parents. Some hosted by us, others we will be attending.

People from education, health, SEN services and charities will pop along to some coffee mornings so you can ask them any questions about accessing their services.

We will regularly be updating and sharing local coffee events on this page. If you have any you wish to feature then please get in touch.

NEW BLOG: Life as a Special Guardian – Jayne’s Story

Jayne – a Parent Carer Forum rep and Special Guardian to her nephew, who has ADHD, autism and developmental trauma. In this blog, she explains what Special Guardianship really means and the challenges families like mine face. She also explore the vital importance of the Adoption and Special Guardianship Support Fund (ASGSF), which is currently under threat.

NEW BLOG: Community Champions Event – Warrington

Our rep Jayne recently attended the Community Champions Event in Warrington, proudly representing our Parent Carer Forum. The day was packed with inspiring conversations around mental health, lived experience, and improving support across Cheshire & Merseyside.

“ It was a brilliant day. I learned so much and met lots of wonderful people. ” – Jayne

COMMUNITY UPDATES

Starting Well Engagement

Delivery of services including Children’s Centres, health visiting and school nursing

The Starting Well service delivers support to children, young people, their families and carers across Cheshire West and Chester. The service is based mainly in Children’s Centres but also delivers support in families and carers' homes, and in schools.

The Starting Well team includes Health Visitors, nursery workers, early years workers and School Nurses.

We would like to gather some initial ideas from people who use a Starting Well 0-19 service (up to 25 years old for those with Special Educational Needs and Disabilities (SEND)), and those who don’t, to understand what works well and what could be done better.

Calling All Parents & Carers!

Are you looking for youth services and support for young people with SEND in Cheshire West?

Whether you’re looking for activities, advice, or specialist support, this page is designed to help young people access the services they need.

Sensory rooms at children’s centres!

Newly Refurbished Sensory Room Now Open in Blacon!

We’re pleased to share that the Sensory Room at Blacon Children’s Centre is now open and available for families to book.

The room is FREE to use and can be booked in hourly slots, Monday to Friday between 08:30 and 16:30.

Blacon Children’s Centre

Carlisle Road, Blacon, Chester CH1 5DB

Tel: (01244) 397412

We’d appreciate your support in helping us promote this sensory space, along with all the other sensory rooms available across Cheshire West and Chester:

Lache Children’s Centre – CH4 8HX – (01606) 397486

Stanlaw Abbey Children’s Centre – CH65 9HE – (0151) 4888036

Wharton Children’s Centre – CW7 3HN – (01606) 555285

Victoria Road Children’s Centre – CW9 5UT – (01606) 555286

Preparation for Adulthood Forum

We know—from listening to families across Cheshire West—that many parent carers do not feel positive about the Preparation for Adulthood (PfA) journey for their young people. You’ve told us that support can feel unclear, disjointed, and hard to navigate. We hear you—and we want to change that.

That’s why this event is all about bringing people together: young people, families, professionals, and services—to build a better, more joined-up experience for everyone.

Whether your child is in Year 9 or already facing the leap into adulthood.

Meet the professionals and other parent carers and enjoy a lunch provided be us!

New Financial Toolkit for Parents & Carers!
We know that navigating the financial challenges of raising a child with additional needs can be overwhelming. That’s why we’re excited to share the Parent Carer Forum Cheshire West Financial Toolkit—a resource designed to help you find the support, benefits, and grants available to families like yours!
Topics Covered:

Benefits & financial support
Grants & funding opportunities
Help with energy bills & cost of living
Wills & trusts

Transition to adulthood & decision-making
Local and national resources

Meet the charities providing essential services in your community,

More Details coming Soon!

Come and See Us at the Children’s Young Person Forum (CYPF) Alliance Marketplace!

Thursday 8th May | 10:30am – 1:30pm

Northwich Memorial Court

We will be holding a stall at the upcoming CYPF Alliance Marketplace , hosted by Cheshire West Voluntary Action (CWVA) .

This free event is a fantastic opportunity for organisations working with children, young people, and families to connect, collaborate, and share information. It’s open to members of the CYPF Alliance and public sector partners—and we’re excited to be part of it!

Families welcome!

From 12:30pm – 1:30pm , the event will open up to children, young people, and families , giving them a chance to discover what support is available locally in Cheshire West.

Please share this event with any families or parent carers you support—we’d love to see them there!

For more info email: enquiries@cwva.org.uk

SAVE THE DATE

Join Our Growing Team at the Parent Carer Forum – Vacancies Available
Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester?

The Parent Carer Forum is looking for enthusiastic individuals to join our team!

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Community Champions Event – Warrington

jo.southall@hotmail.com (Joanne Southall) — Thu, 24 Apr 2025 12:08:32 GMT

Our Rep Jayne had the opportunity to attend the Community Champions Event in Warrington recently, representing our Parent Carer Forum with a stall. It was a great chance to connect with organisations working to improve mental health and social care across Cheshire & Merseyside. Here are some key takeaways:

�� Lead Provider Collaboratives

These are groups of services working together across Cheshire & Merseyside, focusing on:

�� EmpowerED – Eating disorder support & training

�� Level Up – Children & young people’s mental health services

�� Helix – Perinatal mental health services

�� Healthwatch Warrington

Healthwatch is an independent organisation with legal power to visit health & social care services, gather feedback, and produce public reports. They also provide advocacy & support. Every borough must have a Healthwatch. They can help.you access an NHS dentist, particularly if you’re caring for a child with special needs.

�� Healthcare Passport

A new tool created by people with lived experience along with HealthWatch Warrington to help people communicate their needs when accessing services (e.g., triggers, what helps things go well). This will be in the form of a card that people can hand to health care provider or receptionist on arrival to ensure a smooth appointment. The hope is this will mean more people will engage with services by reasonable adjustments being indicated to services in this way.

��️ Level Up – Hear My Voice:

Community Champions are volunteers who meet regularly to promote children and young peoples’ mental health across Cheshire and Merseyside. If you’re interested in becoming a Community Champion have a look at the Level Up website below for more information

Five lived experience videos are now online, sharing the voices of young people accessing mental health support.

Next week is Autism Awareness Week. Please share the videos where you can! �� www.levelupcm.nhs.uk

�� Action on Postpartum Psychosis:

One in 500 mums experiences postpartum psychosis. This is a national organisation providing support. More info: www.app-network.org

��️‍⚧️ My CWA – Trans Without Abuse

��According to a recent survey, 1 in 2 trans people experience domestic abuse in Cheshire.

�� 1344 trans people live in Cheshire, but only 107 will seek support for domestic abuse.

Debbie Canlon is Project Lead for Trans Without Abuse, the first Trans Domestic Abuse Support service in the UK.

Find out more at: www.transwithoutabuse.org.uk

It was a fantastic event according to Jayne. It was full of important conversations and connections.

“ I learned so much and met lots of wonderful people ” Jayne said of the event.

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Life as a Special Guardian – Jayne’s Story

jo.southall@hotmail.com (Joanne Southall) — Thu, 24 Apr 2025 11:58:14 GMT

My name is Jayne. I’m a PCF rep and I look after my nephew with ADHD, autism and developmental trauma. I am a Special Guardian for my nephew and he has lived with me for four and a half years now. In this blog, I’ll explain what special guardianship is, and highlight some of the challenges we face whilst caring for children and young people within our families...

The Prime Minister, Sir Keir Starmer is in the spotlight this week over uncertainty around the continuation of the Adoption and Special Guardianship Support Fund (ASGSF).

This fund provides much needed mental health therapy to traumatised children who are in care, have been in care and those who have been adopted. The fund expires on the 31st March this year, with no word on whether it will continue. Many families are anxious because they don’t know if they will be able to access therapy services in the future.

Special Guardianship is like a foster carer within the family. Grandparents, aunties and uncles across the country take over the care of children within their wider family. A Special Guardianship Order (SGO) is granted by a judge in court and gives the special guardian parental responsibility alongside the parents. The parental responsibility given to the special guardian is stronger than the parent’s. This allows them to make day to day decisions about the child or young person’s care without having to consult parents. When a court has given a Special Guardianship Order it is often because parents cannot cope with the care of their child. SGO’s run up until the child is 18 years old. Special guardians have a responsibility to manage contact between the child or young person and their parent or parents. Sometimes parents want to see their children, but the children do not. Sometimes parents really let the children down at contact visits. Special guardians are left to deal with the fall out.

As you might imagine, this is a lot of responsibility for a grandparent, aunty or uncle. Special Guardianship Orders can put a lot of strain on families. Sadly, special guardians are not always given the support they need in order to manage these difficulties. Not all parts of the country have a Special Guardianship department. Thankfully, in Cheshire West and Chester we have an amazingly supportive team who provide regular training and support groups whilst signposting to relevant services. They have also ensured we can access some of the training that foster carers do. Special Guardians do not receive the same high level of training as fosters carers, despite looking after the same type of children with similar levels of trauma, neurodiversities and social, emotional and mental health issues.

In general across the UK, special guardians are not treated the same as foster carers, despite doing the same job. Foster carers receive non means tested payments for the children they care for. Special Guardians can apply for a Special Guardianship payment, but they may not receive it, depending on their income. This means that some Special Guardians receive payments from their local council while others receive nothing and struggle financially. Also, if the child never went into care before the SGO was awarded, special guardians cannot access the ASGS fund at all. I had to pay a counsellor privately for my nephew when he first came to me.

Special guardians look after their family members’ children to ensure they have the best chance of a full life. I hope this blog has given you some more information about what a special guardian does.

 Please have a look at the Kinship Care website if you’d like to know more

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Newsletter March 2025

jo.southall@hotmail.com (Joanne Southall) — Tue, 01 Apr 2025 21:06:06 GMT

Update from Cabinet Member for Children and Families Adam Langan on becoming an Inclusive Borough

We recently asked Cllr Adam Langan for an update on the progress made so far. He highlighted key developments, including significant investment in the SEND team, improvements in EHCP processing times, and the establishment of a new governance framework to strengthen partnerships. There is still work to do, but steps are being taken to drive meaningful change.

Read the full update here: https://www.pcfcheshirewest.org/update-adam-langan

If you have any questions about any of the above or just want to give your feedback of yours and your child’s experience, feel free to email Adam on Adam.langan@cheshirewestandchester.gov.uk

You can view the details motion ‘ Becoming an Inclusive Borough’ including watching the parents' carers speak here ��

PCF UPDATES…….

In order to keep you up to date on all of the works we are involved in to ensure that your experiences are heard, we have created a new BLOG area on our website. Here are some of the latest updates….

Transitions & Pathways

On March 13th, 2025, an informative session took place to guide families navigating key life stages for their children. This blog highlights the session's critical insights and available resources to support families in Cheshire West and Chester.

A huge thank you to everyone who joined us for the recent Transitions & Pathways forum!
Your time, insights, and contributions made the event truly valuable. A special thank you to the parents who shared their experiences and stories!

For those who couldn’t attend or would like to revisit the discussion, you can catch up on the recording here

PINS Update – Access Free Online Training & Resources!
Parent Carer Forum Cheshire West is continuing to support families through the PINS (Partnership Inclusion Nurodiversty Schools) Project, helping to strengthen relationships between parents, schools, and professionals.

We’re excited to share a range of online training recordings and training resources designed to support understanding and collaboration.

Explore the latest updates & training materials here: ��

Empowering Parents, Transforming Services: Our Unique Parent Volunteer Training
At the Parent Carer Forum Cheshire West, we believe that lived experience is the key to improving SEND services. Our recent six-week Parent Volunteer Training Programme was designed to equip parent carers with the knowledge, skills, and confidence to work alongside professionals, advocate for families, and influence real change.
A huge thank you to all the parent carers who attended our free training sessions! We covered key topics to help navigate the SEND system, understand rights, and build confidence in supporting children and young people with SEND.

If you missed out, don’t worry! You can view our Blog and training materials ��

Neuro-Affirmative Language in Cheshire West And Chester

Have your settings embraced neuro-affirmative language? Are professionals across all sectors using it in their work?

Please take a moment to remind them of the importance of neuro-affirmative language and how parents and carers have shaped this approach.

Let’s ensure the voices of families are reflected in the way we communicate.

Read the blog here and view more resources see

Exciting Update! The CWAC Autism Service Family Support Padlet is Now Live!

We’re pleased to share that after some working with Parents & Carers the CWAC Autism Specialist Teaching Service Family Support Padlet is now live on the Cheshire West and Chester Live Well website!

The Padlet is designed to be a central hub for families, offering helpful resources, guidance, and support for those navigating life with autism. For now, you’ll find the link on the autism service page, but we expect it to evolve over time, adding links to other key pages based on what parents tell us they need.

CLICK HERE to Read more about the Autism service here:

We’d love to hear your feedback—let us know what you think and if there’s anything you’d like to see included!

The latest Cheshire West and Chester Council SEND Newsletter is out, and there are some updates from Amanda Perraton, the new Executive Director for Children and Families!

Working Together for Positive Change

This newsletter reflects real progress, with a clear commitment to improving SEND services. By increasing specialist support, making EHCP processes more efficient, and strengthening co-production, there are real opportunities for families and professionals to continue working together.

So, how can we keep shaping services?

�� Keep sharing your experiences – whether things are working well or need improvement, feedback helps shape the system.

�� Engage with the Parent Carer Forum – the PCF is a key link between families and decision-makers.

�� Stay informed – as services develop, staying up to date ensures we can all make the most of what’s available.

With a shared commitment to inclusion and support, we can continue to build a SEND system that works for everyone.

IASS (information advice support service)

Free, Impartial, and Expert Advice for SEND Support!

Did you know that the IASS (Information, Advice, and Support Service) offers free, impartial, and expert advice for families navigating SEND (Special Educational Needs and Disabilities) issues? From advice on EHCPs, school placements, attendance and exclusions and much more!

The IASS team is fully trained ensuring that families receive top-quality guidance based on the latest regulations and best practices.

Whether you need help understanding your rights, navigating the education system, or accessing support services, the IASS is here for you – completely free of charge.
To learn more about how IASS and PCF work together read latest Sip and Learn Coffee Event with IASS and parent carers and on how IASS can support below ��

SIP & LEARN Drop-in Coffee Event �� Date: 24th April
⏰ Time: 10 AM – 2 PM
�� Location: Down Syndrome Cheshire

Come along for a cuppa and a chat at our friendly drop-in session! This is a great chance to:
Find out about key health services that can support you and your family
Speak directly with professionals from the Sensory Processing Team, Starting Well, and Speech & Language Therapy

Get advice, ask questions, and access support in a relaxed and welcoming space

No need to book—just drop in! We look forward to seeing you there.

For more info, contact: contact.pcfcwac@gmail.com
TELEPHONE: 07900 840 867

Coffee & Chat Online 24th April 6pm-7:30pm (Evening)Relaxed and Easy going Vibes!
Meet other parent carers and share experiences in a safe supported space

Join our online coffee chat—a friendly space to connect, share, or simply relax.
Pop in or out whenever it suits you—no pressure!

Bring your favourite brew, sit back, and let's chat!

SAVE THE DATES....

New Financial Toolkit for Parents & Carers!
Friday 16th May 10:30am - 11:30am
We know that navigating the financial challenges of raising a child with additional needs can be overwhelming. That’s why we’re excited to share the Parent Carer Forum Cheshire West Financial Toolkit—a resource designed to help you find the support, benefits, and grants available to families like yours!
Topics Covered:

Benefits & financial support
Grants & funding opportunities
Help with energy bills & cost of living
Wills & trusts

Transition to adulthood & decision-making
Local and national resources

What does Preparation for Adulthood (PfA) mean?

PfA’s four key areas:

Employment – Work experience & career goals
Independent Living – Daily life skills & responsibilities
Friends, Relationships & Community – Social opportunities & networks
Good Health – Managing healthcare transitions & well-being

Planning early—not just from Year 9 but even in early years—creates more opportunities for children to explore, grow, and gain independence.

The SEND Code of Practice 2015 Chapter 8 “Preparing for Adulthood from the Earliest Years” provides a clear description of agencies’ responsibilities.”

Let’s plan with intention!
Join us to shape a future where young people with SEND have independence, opportunity, and choice.

More details coming soon!

Easter Holiday Fun!
Join us for a fantastic Easter Eggstravaganza—a fun and inclusive holiday session designed for children and young people with SEND! ��

Expect lots of fun activities, including:
�� Scavenger hunt & Easter egg hunt
�� Making cornflake chick nest cakes
�� Easter crafts & decoration
�� Classic games like pin the tail on the bunny
�� Mini Easter-themed physical activities

�� Sessions are FREE, but booking is essential!
�� Email bookings@endorphins.uk to secure your spot.

Come along, have fun, and make some wonderful Easter memories! ��✨

New Support for Families: Dynamic Support Keyworkers
Does your child or young person have a learning disability and/or autism and is at risk of mental health inpatient admission?

The Dynamic Support Keyworker service is here to help!

What do Keyworkers do?
�� Work closely with families and professionals to prevent hospital admissions where possible.
�� Ensure support is in place for a smoother transition if a hospital stay is necessary.
�� Help coordinate care and make sure services work together effectively.
�� Offer advice and guidance to empower families and improve access to the right support.

�� Who is eligible?
• Children and young people up to age 25 with a learning disability and/or autism.
• Those at risk of placement breakdown or needing Tier 4 mental health support.

�� How to get a Keyworker?
Referrals can be made for those on the Dynamic Support Database (DSD). To find out more, contact:
�� 01925 944443 (Option 2)
�� handw.cyp@cheshireandmerseyside.nhs.uk

�� This service aims to improve outcomes, reduce crisis situations, and ensure families feel heard and supported.

If you think this could help your family, reach out today!

Important Update on Disability Benefit Changes

The National Network Parent Carer Forum (NNPCF) understands that many families are deeply concerned about recent changes to key benefit entitlements, including Personal Independence Payment (PIP), Universal Credit, and the impact on Carer’s Allowance.

While the Green Paper primarily focuses on benefits for disabled adults, DLA (Disability Living Allowance) remains unaffected, except for a proposed increase in the upper age limit to 18. However, families with young disabled adults receiving PIP or Universal Credit may be particularly worried about how these changes could affect their loved ones.

Find out more:
Useful information from Contact on the Pathways to Work Disability Reform Green Paper:

Click here to read

Contact have also created an article answering key questions on disability welfare reform:

Click here to read

The NNPCF is committed to raising these concerns and will provide a response to the consultation. We will continue advocating for the needs of families and young people.

Contact have created social media posts for both links. You may find these posts useful to share with your families. A link to their Facebook account can be found here

Join Our Growing Team at the Parent Carer Forum – Vacancies Available

Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester? The Parent Carer Forum (PCF CWAC) is looking for enthusiastic individuals to join as school representatives for:

Specialist Schools
Mainstream schools & Resource Provisions
Nursery Settings
Post -16 Settings

Why Join Us?
Amplify Your Voice: Represent the perspectives of parents and carers in your school community. Your feedback will directly influence local services and SEND policies.

Make a Difference: Be part of a team that shapes positive changes for children and young people with SEND.

Flexibility: You can get involved at a pace that works for you—whether attending meetings, gathering parent feedback, or simply being a point of contact.

What Does a School Rep Do?
• Act as a bridge between parents, schools, and the forum.
• Share information and feedback with the PCF to support collective representation.
• Contribute to creating better opportunities and outcomes for families in your area.

How to Get Involved
Contact Us to express interest or find out more:

Learn More: Watch Our Video

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email contact.pcfcwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

SEND Youth Provision in Cheshire West: Safe Spaces, Skills & Support for Young People

jo.southall@hotmail.com (Joanne Southall) — Mon, 31 Mar 2025 12:35:54 GMT

These safe and welcoming spaces allow young people aged 11 to 25 to socialise, build life skills, and access support, all while having fun and meeting new friends.

What Does the SEND Youth Provision Offer?

The Choices SEND Projects run across Chester, Ellesmere Port, Northwich, and Winsford, offering:

✅ Social and Life Skills Development – Activities focus on personal safety, healthy relationships, budgeting, independent living, and teamwork.

✅ Creative & Recreational Fun – Enjoy arts and crafts, music, pool, table tennis, and healthy cooking.

✅ A Voice in Planning – Young people help shape events and activities that matter to them.

✅ One-to-One Support – Access guidance on mental health, relationships, and other concerns from trained youth workers.

These sessions create an environment where young people can thrive, gain confidence, and develop essential life skills in an informal, supportive setting.

Where & When?

Chester – Choices SEND Project

�� Northgate Locks Resource Centre, Canal Street, Chester, CH1 4EJ

�� Wednesdays, 6:30 PM – 8:30 PM

Ellesmere Port – Choices SEND Project

�� Salvation Army, Whitby Road, Ellesmere Port, CH65 6RS

�� Thursdays, 6:30 PM – 8:30 PM

Northwich – Choices SEND Project

�� Northwich and District Youth Centre, Winnington Lane, Northwich, CW8 1AW

�� Mondays, 7:00 PM – 9:00 PM

Winsford – Choices SEND Project

�� New Images Community Centre, Nixon Drive, Winsford, CW7 2HG

�� Thursdays, 7:00 PM – 9:00 PM

�� All sessions are free of charge!

The Cheshire West and Chester Youth Service is part of the Early Help and Prevention Service, offering a range of youth provisions alongside the SEND projects:

Open to all young people with or without additional needs

�� LGBTQ+ Youth Provision – Safe spaces for LGBTQ+ young people.

�� Youth Zones – Activity hubs with sports, arts, and social events.

��‍♂️ Detached Youth Work – Outreach support in community spaces.

�� Youth ASB Diversionary Events (YADE) – Pop-up youth zones tackling anti-social behaviour.

Young people can also access advice and guidance on key issues such as mental health, self-harm, relationships, substance use, and online safety.

Get Involved

If you know a young person who could benefit from SEND youth provision, or you’d like more information, you can contact:

�� Youth Work Officer – 01244 977720

�� Email – YoungPeoplesService@cheshirewestandchester.gov.uk

By providing safe spaces, fun activities, and essential life skills, these sessions help young people with SEND connect, grow, and thrive in their community.

Spread the word—this free resource could make a huge difference to a young person’s life!

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Update from Cabinet Member for Children and Families

jo.southall@hotmail.com (Joanne Southall) — Thu, 27 Mar 2025 15:47:16 GMT

It’s almost been a year since Parent Carers spoke passionately at the Council Chambers about the issues in the borough about Special Educational Needs & Disabilities (SEND). All the 68 councillors committed to making Cheshire West and Chester a SEND inclusive borough. You can view the details of that motion, including watching the parents' carers speak and the motion being passed here:

“Last year we passed a full motion at Council to become a SEND inclusive borough. It was an ambitious motion that looked at lots of different aspects of society, not just education or health.

We have made considerable progress since this point however still face many challenges. I’ll always be completely blunt and honest with anyone I speak to, and I know that the difficulties in our SEND service are well versed and understood. Over the past six months we have hugely invested into roles within the SEND team in the Council and have now recruited for over 20 roles. The main objectives of this investment were to increase the rate at which we complete and finalise EHCP’s, improve communication with parents and better equip all schools to work in a more inclusive way for children with SEND.

We have also recently recruited additional senior capacity for a new Director of Education and Inclusion post which will enable us to keep driving forward the changes we need.

The impact of these new posts, even in these early days, as we continue permanent recruitment is well documented in our SEND improvement reporting to various boards and we have seen a significant decrease in numbers of outstanding Education Health Care Plans (EHCPS) of the 300 plus over 20 weeks in August we are now down to 41 – which is not where we would want it to be but is a significant improvement).

I know it’s been a difficult time for parents and schools, and I believe that working together in partnership will improve outcomes for your children.”

Support families who have children with SEND through the council’s existing SEND service, school communities, and Integrated Care Board (ICB) to improve working practices, increase resources to address the increased demand and create greater inclusion.

As above the Council have made significant investment in our Local Authority (LA) SEND services, and our ICB colleagues reported to the last Strategic Group work they are leading to improve, for instance, the neurodiversity pathway. This work will be ongoing and we will launch a new governance framework for SEND in March 2025 as we have agreed, as a partnership, to develop a Partnership Board that will be independently Chaired until at least March 2026. The Department for Education (DfE) lead for SEN and a senior representative for National Health Service England (NHSE) will sit on our new board. I believe we have the governance in place now to ensure we really drive effective partnership.

Find innovative ways to support those that work with SEND to fulfil their legal obligations as in the Children and Families Act 2014 and the SEND code of practice.

We are seeing improvements in compliance and whilst we have not specifically undertaken an audit, feedback on the quality of the assessments is positive. We are exploring innovations to support our teams and our partners in their work.

Encourage and enable greater opportunity for co-production with the Parent Carer Forum to create systems that are more user friendly for families.

The voice of our children, our parents and our carers is crucial to drive meaningful change. We remain committed to this – if there are any issues or things we can do that you can see differently please let me know, however I can assure you that as Chair Julie will be central to the change programme we are embarked on alongside and with our Independent Partnership Board Chair.

Work with employers, schools and the third sector to increase opportunities for as they prepare for adulthood.

The Skills and Employment team at the council have 3 projects that include working with young people with SEN (although some also work with older or non-SEN residents):

We have commissioned a tailored learning contract through our Adult Skills Fund with Emperia Training who work with people with autism and down syndrome learners to get them employability qualifications and support into work.

The Local Supported Employment team work with 18+ residents with SEN to help them gain employment. This includes training employers and working with them to ‘carve’ job roles to find the best fit for the individual and the employer. This team is due to become part of a new project called ‘Connect to Work’ from the Autumn and will be funded for up to 5 years from DWP.

The Fresh Start team has been working with young people 16+ from September 2024 to give structured, but completely bespoke, 1:1 guidance. Often this is towards employment, but sometimes it is to education with a specific outcome in mind. So far Fresh start has supported 142 young people in the borough, 37 of which were SEN, with 30 gaining work, 12 moving into education, 43 gaining qualifications and 8 into training (14 of the 37 with SEN have positive outcomes so far). Fresh Start is funded through UKSPF until March 2026, but due to its success further funding is being sought.

Public Libraries have hosted Supported Internships and volunteering for SEND young adults at multiple sites including Ellesmere Port, Lache and Storyhouse libraries. We regularly have work experience across the service from a variety of schools.

Create more SEND friendly environments in the community.

Education Library Service (ELS) loan sensory story bags and story sacks to schools, nurseries and home educators. Also have braille, large print, and dyslexia friendly books for loan. Host weekly visits from subscribing special schools on site running activities and storytimes. Also work with the Sensory Storyteller CIC for special sessions. Delivered staff training on how to engage with pupils, supporting them and encouraging them to interact in activities. ELS creating story garden to offer outdoor sensory experience for SEND schools who visit us and increase range of activities.

Public Libraries

Collections – we have dyslexia-friendly books in all libraries for children and are currently adding to the collection. We have ‘Reading Well for teens’ collections as part of the Reading Agencies Books on Prescription scheme which cover topics such as mental health and neurodiversity: Reading Well for teens - The Reading Agency. The BorrowBox eBook and eAudiobook app has accessible features to support use.

BookTrust – the BookTrust team distribute Bookstart Packs for children with additional needs aged 0-5 via libraries and early years partners.

Environment - we have autism friendly guides to our libraries on the webpages e.g. little-sutton-library-autism-friendly-guide. Some libraries have Makaton-friendly signage in their buildings; entrance, exit, toilet etc.

Activities - We use Makaton at some story and rhyme sessions which are inclusive and open to all. Many activities are non-prescriptive to allow for a range of learners and participation.

Archives

As the design, construction and fitting out of the new centres for Cheshire Archives progresses, the project team will continue to consult the Corporate Disability Access Forum and other access groups to ensure that accessibility needs are considered including SEND. The project team is also working with a specialist in SEND provision for schools to ensure that the future Archives learning programme is SEND friendly.

Museums

Currently offer a Saturday STEM club with SEND adjustments to accommodate a range of learners. Grosvenor Museum Roman Day: for the ‘handling’ session, we offer a ‘121 box’ of objects for children to explore with a 121 adult in a quieter space. Free holiday activities are non-prescriptive to allow for a range of learners and participation. A SEND loan box – Roman Myths and Legends, specifically designed for SEND learners. Recently done workshops in partnership with Live Cheshire and Radiate Arts. In the past have done ‘Quiet afternoons’ Last Friday in the month at Grosvenor Museum.

Organise mandatory SEND training for all councillors.

This remains outstanding, however is something our future Director of Education, Inclusion and SEND will work to establish.

Support the cross-party call by the Local Government Association (LGA) for national SEND reform and increased funding.

We continue to lobby the government on this and Bridget Phillipson has made it clear SEND reform will be delivered in this parliament.

Work with the Department of Education and Ofsted to fully embed the recommendations from the high needs review and liaise with the LGA to institute a peer-led review into the service.

We are engaged with the DFE and Ofsted, we have had regular conversations with both about our journey. We are in the process of commissioning an LGA Peer Led review of the service, likely to take place in summer or autumn this year.

I know this is a lot of information and hopefully highlights to yourselves the level of work going into making our borough a more SEND inclusive one.

If you have any questions about any of the above or just want to give me your feedback of yours and your child’s experience, feel free to email me on Adam.langan@cheshirewestandchester.gov.uk

Thank you,

Adam

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Parent Carer Training

jo.southall@hotmail.com (Joanne Southall) — Fri, 21 Mar 2025 13:21:11 GMT

Empowering Parents, Transforming Services:

Our Unique Parent Volunteer Training

At the Parent Carer Forum Cheshire West, we believe that lived experience is the key to improving SEND services. Our recent six-week Parent Volunteer Training Programme was designed to equip parent carers with the knowledge, skills, and confidence to work alongside professionals, advocate for families, and influence real change.

This training has been an incredible journey of learning, collaboration, and powerful conversations—here’s how we did it!

Laying the Foundations: Understanding the SEND Landscape

Our first few weeks focused on understanding the complexities of SEND services, the different agencies involved, and the critical role of co-production.

Week 1: We launched our programme with an inspiring session featuring:

• Cllr Adam Llangan, Cabinet Member for Children and Families, who shared insights into local government and decision-making.

• Lisa Alfred from CONTACT, who connected our work to the national SEND landscape.

• Mark O’Grady & Sarah Symons, who provided an overview of the LiveWell Local Offer, GAPS, and how families can navigate local support.

Week 2: We welcomed IASS (Information, Advice, and Support Service) to train our volunteers on how to help families access SEND support. Navigating the system can be overwhelming, so equipping our reps with practical knowledge and signposting skills was essential.

Week 3: A deep dive into key SEND topics, including:

• Social Care Services – Understanding how to access assessments, direct payments, and short breaks.

• SEND Mediation & Tribunals – A case study on the challenges of appealing SEND decisions.

• The Role of a SENCO – A first-hand perspective from a school SENCO on the challenges of inclusion in mainstream and specialist settings.

Week 4: Bridging the Gap Between Parents & Professionals

One of the most powerful aspects of our training was the honest and open discussions between parent carers and professionals, particularly in education.

We were joined by the SEN Team, who provided a detailed overview of their structure and purpose. They shared insights into how they support schools, work with families, and navigate the complexities of SEND provision. This session gave our volunteers a clearer understanding of the education system and how they can effectively advocate for change.

�� “The education session felt more like a conversation than a lecture—it was so engaging and relevant!” – Parent Volunteer

Week 5: We explored co-production within the NHS, with an expert parent leader guiding us through how families and professionals can work together to improve health services.

Week 6: Our volunteers tackled some of the biggest challenges in SEND. A Focus on Health & Commissioning

As we progressed, our focus turned to health services and commissioning, two crucial areas where parent voice can shape better outcomes.

Health & SEND Governance – With Gill Tyler (DCO) explaining how services are commissioned under the Cheshire and Merseyside Integrated Care Board.

Commissioning of Services – With Steven Arnold, who walked us through how services like short breaks and carer support are commissioned, ensuring that parent voice is embedded at every stage.

These sessions were packed with valuable insights, equipping our volunteers with the knowledge to challenge, influence, and drive meaningful change in SEND services.

A Huge Congratulations to Our New Parent Volunteers! ��

Over the last six weeks, our volunteers have demonstrated incredible dedication, passion, and resilience. Whether they were able to attend every session or just a few, their commitment to amplifying parent voices and working in partnership with professionals is truly inspiring.

�� A huge thank you to all the professionals who contributed their time and expertise.

What Our Volunteers Are Saying

The feedback from our volunteers has been overwhelmingly positive, highlighting the value and impact of the training:

�� “Absolutely loved it. So interesting and I learned so much. Speakers were very relevant, and I feel more confident about where to find information now. Really enjoyed it ”

�� “The training was so informative. I learned an incredible amount about how the SEND system works and I can’t wait to get stuck in and help more now I’ve completed it.”

�� “The training was excellent. Rather than information being conveyed out, it was all delivered in an interactive way, particularly as we had lots of questions! I think we also felt heard, and that people in the professional posts are listening and working to deliver improvements. The training encompassed quite a breadth of SEND services, which enabled us to better understand how the services link together, what they can deliver, when, and how. Really excellent few weeks, thank you!”

�� “I agree, the session today was brilliant. I have been through the parent training before but found today really useful and interesting. Gillian was fantastic—she made so much sense and was so knowledgeable. I also loved how the education session became more of a group chat (and that all the slides were new and relevant). I’ve learned a lot!”

You can access the presentation slides from our 2025 Training Programme below.

Week 1
The Council Structure

Intro to PCF - PCF Structure

All about SEND 'Local Offer' and 'Live Well'

Council Comms Team, PCF Comms Team

Also from Week one Training - A Presentation on What is a Parent Carer Forum and Co-Production

Week 2
SENDIASS Information, Advice and Support Service

SEN Code of Practice

Understanding SEN Support & EHCPs

Education Health & Care Plans

Meeting Professionals

 Week 3
Social Care Overview

Co-Production

Mediation

The role of a SENCO

Week 4
Education Access

SEN Team

Specialist Teaching

Week 5
The Health Landscape

The Role of The DCO

Strategic Commissioning

Market Management

Our Ways of Working

The purpose/aim of the Parent Carer Forum:

Parent Carers and Professionals networking and sharing information.

Parent Carers sharing views and experiences with decision makers and influencing services to achieve the best possible outcomes for our children and young people.

Parent Carers meeting and sharing experiences with other Parent Carers.

Parent Carers possible involvement in Local Authority strategic meetings

Training and signposting for Parent Carers

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Supporting Families through Transitions and Pathways in Cheshire West and Chester

jo.southall@hotmail.com (Joanne Southall) — Thu, 13 Mar 2025 15:04:55 GMT

On March 13th, 2025, an informative session titled Transitions & Pathways took place to guide families navigating key life transitions for their children. This blog highlights the session's critical insights and available resources to support families in Cheshire West and Chester.

Early Help Navigators: Bridging the Gap for Families

The Early Help Navigators are a recently introduced initiative providing accessible family support in key communities. Operating across four focus areas (Stanlaw Abbey and Portside in Ellesmere Port, Over in Winsford, Blacon and Victoria in Chester, and Northwich Victoria in Northwich), these Navigators are pivotal in offering guidance, referrals, and a listening ear to families in need.

What Can Navigators Do?

Navigators provide a range of support services, including:

· Accompanying families to GP or Citizens Advice appointments

· Facilitating referrals to food, baby, and kids' banks

· Assisting with family support services and partner-led TAF (Team Around the Family) interventions

· Offering help with paperwork, providing guidance, and acting as a friendly point of contact for general advice

Accessing the Service

Families can connect with Navigators via:

· Drop-in sessions at local Children’s Centers every Monday

· Community events and activities such as 'Let's Play' and 'Let's Chat' sessions

· Online booking for one-on-one appointments

Note: Professionals cannot directly refer families; self-referrals from families or young people are required.

Navigating the Autism Pathway in The Early Years: A Parent's Experience

A parent described their child's journey from age 2 to receiving an autism assessment and subsequently being diagnosed with Autism and Developmental Language Disorder (DLD). The family's experience illustrated the importance of persistence in advocating for their child's needs. Initially, both school staff and health visitors did not express concerns; however, these issues were eventually identified through an EHCP needs assessment, leading to the implementation of a plan that supported their child's success in school.

The family faced significant challenges at home, dealing with frequent meltdowns and difficulties in communication, which added strain to their daily routines. They often felt isolated and overwhelmed by the lack of understanding and support from those around them. Despite these hardships, their determination to seek help and resources ultimately led to positive outcomes for their child.

Key Takeaways for Families Navigating Autism Pathways:

· Early concerns may be dismissed; persistence is crucial.

· Access key services such as Information Advice Support Services for assistance with not feeling heard.

· Utilize support services for sleep, sensory, and toileting issues.

· Unsure where to begin? Contact the Parent Carer Forum (PCF).

· Document concerns and maintain consistent communication with all professionals

· Explore resources like the Early Years Roadmap to effectively inform your approach to available support.

Transitioning to Specialist High School from a Mainstream Primary: A Parents Perspective Vanessa

A parent shared her experiences regarding the transition from a mainstream primary school to a specialist high school. She provided valuable insights on utilising outreach support from the primary school and developing an enhanced transition plan in collaboration with both schools.

She also spoke about involving the child in preparing for the transition by creating a 'One Page Profile' or 'All About Me' book to take to their new school on their visits like her son Reuben did.

Preparing for Adulthood: Empowering Young People

“Young disabled people have made it clear that they want the same as all young people. For them, the most important things are to have friends to have a good time with, to have a career and to be seen as independent adults. It is also obvious that if planning for good health does not happen, none of the other things are possible.”

(Getting a life – 400 yp 2008-2011)

The National Development Team for Inclusion (NDTi) showcased their outstanding work and their collaboration with our local authority to improve the preparation for adulthood. Jo highlights the significance of a holistic approach to preparing for adulthood. This planning should begin early, not just from Year 9, but even in the early years. It involves creating numerous opportunities for children to explore, develop their interests, and build their independence.

The focus is on four core pathways:

1. Employment: Encouraging work experience and goal setting for future careers

2. Independent Living: Promoting skills for managing daily life and responsibilities

3. Friends, Relationships, and Community: Ensuring social opportunities and networks

4. Good Health: Managing healthcare transitions and promoting well-being

"Planning with intention" ensures young people with SEND gain independence and opportunities aligned with their aspirations.

The SEND Code of Practice 2015 Chapter 8 “Preparing for Adulthood from the Earliest Years” provides a clear description of agencies’ responsibilities.

Young people's views “I realise how little independence I actually learnt at school – now I am trying to find things on my own I want to get beyond the stage of being at home with nothing to do and no work”.

SEND Information, Advice, and Support Service (IASS)

The IASS team is dedicated to helping families navigate the often-complex SEN system.

Key Transition Guidance from SENDIASS

Transitioning to secondary education can be daunting for children with additional needs. The following strategies were discussed to ease this shift:

Key Dates: Primary school applications close by January 15th, 2025, and secondary school applications by October 31st, 2024
Enhanced Transitions: Special arrangements such as extra visits, meetings with key staff, and structured timetables can ease anxiety
Building Profiles: Creating SEND profiles and one-page profiles helps staff understand a child’s unique needs

Proactive communication with new school staff and regular follow-ups are key to ensuring your child’s well-being.

Plan ahead: Know deadlines for primary, secondary, and post-16 applications
Create a SEND profile: Document your child’s needs, daily support routines, and key information to ensure continuity during school transitions
Meet with new school contacts: Arrange visits to meet SENCOs, discuss your child’s requirements, and explore additional support strategies
Be proactive: Clearly communicate any concerns before and after the move, ensuring regular follow-ups with key staff
Prepare for adulthood: Ask about social care, health transitions, and employment opportunities to ensure holistic support post-education

Contact IASS:

· Phone: 0300 123 7001

· Email: iasservice@cheshirewestandchester.gov.uk

· Hours: Monday – Thursday 9.00am – 5.00pm, Friday 9.00am – 4.30pm

To view the recording and find out more from the professionals CLICK HERE >>>

Final Thoughts

Moving between phases of life can be challenging, but with the right guidance and resources, families can feel empowered to support their children through every stage. For more resources, visit:

Early Years Roadmap

Preparing for Adulthood Tools & Resources

What’s On Events

If you or your family need support, please do not hesitate to connect with the services available throughout Cheshire West and Chester. If you need guidance on where to start, please do not hesitate to contact us.

To see other events coming up or to catch up on past events & presentations...

click below

Transitions & Pathways Recording

jo.southall@hotmail.com (Joanne Southall) — Thu, 13 Mar 2025 13:47:28 GMT

Want to learn more about preparing for transitions and pathways available?

Watch our VIRTUAL Forum from Thursday 13th March.

This session focuses on key education transition phases and pathways, offering valuable insights and real parent experiences.

• Gain insights into the SEND pathway and transition phases.
• Learn about strategies to support smooth transitions from education to adulthood.
• Discover the latest initiatives from professionals working with SEND families.

Transitions Forum Recording:

Early Help Navigators

Amanda Leigh

Early Help Navigator

Early Help and Prevention Service

Transition To High School – Parents Perspective

Vanessa Usai – Mainstream Primary to Special School

IASS – Key Transition Information

National Development Team for Inclusion (NDTI)

Presentation Slides from the Event - available here to download and catch up on all the resources shared.

Transitions Blog:

To see other events coming up or to catch up on past events & presentations...

click below

Contact & NNPCF National Conference 2025

jo.southall@hotmail.com (Joanne Southall) — Thu, 06 Mar 2025 20:05:52 GMT

Shaping the Future of SEND: Reflections on the Contact & NNPCF Conference & How it reflects PCF CWaCs work

Last week, parent carer forums from across the country came together for the Contact & NNPCF Conference 2024-25, a key event in the SEND sector that brings parent representatives and professionals together to discuss the future of SEND services. The event focused on co-production, policy developments, and strengthening parent voice, reinforcing the role that Parent Carer Forums (PCFs) play in shaping SEND strategy both locally and nationally.

Key Highlights from the Conference

The conference delivered a wealth of insights and actionable strategies, including:

Dynamic Keynote Sessions: National experts shared their visions on how collaborative working and co-production can drive real change within SEND services. Their insights highlighted the importance of embracing innovation and shared leadership.

Interactive Workshops: Attendees participated in sessions designed to build skills in governance, policy influence, and effective communication. These workshops encouraged active dialogue, ensuring that all voices—especially those of families—were heard and valued.

Strategic Networking Opportunities: The event created spaces for meaningful connections between parent volunteers, professionals, and policymakers. Participants left with strengthened networks, ready to collaborate on future initiatives.

Best Practice Sharing: Through case studies and panel discussions, the conference showcased successful examples of how parent-led contributions are making a difference in local and national SEND strategies.

Focus on Co-Production: Central to the conference was the drive to embed co-production at every level—promoting joint decision-making between parents and professionals to improve service delivery and accountability.

Read more about the conference here. https://contact.org.uk/contact-nnpcf-conference-2024-25/

How This Links to PCF CWAC’s Work

At Parent Carer Forum Cheshire West and Chester (PCF CWAC), we are deeply committed to strengthening parent participation and ensuring that families’ voices are central to local decision-making. The key themes of the conference—building strong partnerships, improving engagement with families, and influencing policy change—resonate with the work we are doing across Cheshire West and Chester.

Some of the areas where we are making an impact include:

✅ Working alongside local professionals in Education, Health, Social Care, and Commissioning to improve services through co-production and working together

✅ Developing our volunteer training programme, equipping parents with the skills and confidence to engage with professionals and advocate for families

✅ Drafting the SEND Strategy Plan and actively participating in the SEND Strategy workstreams, ensuring that parent voice from the PCF Survey, Meaningful Change Document and SEND Scrutiny is at the heart of system-wide improvements

✅ Creating spaces for collaboration, such as forums and training events, where professionals and parents can work together in partnership towards meaningful change

Bringing National Learning into Local Action

The discussions at the Contact & NNPCF Conference reinforced the importance of collaborative working and embedding co-production at every level. One key takeaway was the need to avoid creating unnecessary extra meetings and instead make the most of existing opportunities to build relationships and influence change effectively. This aligns with how PCF CWAC is approaching our work—ensuring that parents and professionals come together in a way that is both impactful and sustainable.

We are excited to take these national conversations forward and continue embedding the principles of true co-production & Working in Partnership in Cheshire West and Chester’s SEND strategy.

➡️ Want to get involved or learn more? Get in touch with us to see how you can be part of shaping SEND services in our area.

To learn more about the conference, go to CONTACT conference page to view the video, alongside presentations from the day.

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events...

Newsletter February 2025

jo.southall@hotmail.com (Joanne Southall) — Sat, 22 Feb 2025 21:05:41 GMT

PCF Volunteer Training
Our training journey began with a solid foundation in Week 1, featuring expert contributions from leaders like Cllr Adam Llangan and Lisa Alfred from CONTACT. Building on that momentum, Week 4 broadened the discussion with presentations from the SEN and Autism teams, focusing on the roles of inclusion officers, specialist education placements, and the latest DfE guidance.
In Week 2, IASS led an engaging session that provided practical strategies for accessing the right information and services, while Week 3 offered an in-depth exploration of essential topic’s from social care assessments and mediation processes to the evolving roles of SENCOs and the power of co-production. These sessions not only delivered expert insights but also fostered a safe space for honest conversations, where both professionals and parents shared their real challenges and successes. The training is equipping our volunteers with the skills and confidence needed to support families navigating the SEND system. We are incredibly grateful for the passion and commitment of our volunteers and professionals as they work together to break down barriers and drive meaningful change for SEND families.

If you’re inspired by our work and wish to join our team, please get in touch via our contact page .

�� Thank You for Joining the Neurodevelopmental Forum! ��

A huge thank you to everyone who attended and contributed to the discussion on support for neurodivergent children and young people in Cheshire West and Chester.

Check out the blog and slides from the event

#CoProduction #InclusionMatters #Neurodiversity #SEND #ParentCarerVoice

�� Join Us for our Online Forum-Transitions & Pathways ��

Are you navigating the educational transition phases for your child with SEND? Join us on March 13th, 2025, for an insightful online event. This session will focus on key education transition phases and pathways, offering valuable insights and real parent experiences.

We’ll hear from key professionals, including a special speaker from the National Development Team for Inclusion (NDTI), funded by the DfE, who have been working with our Local Authority on Preparation for Adulthood.

✨ What to Expect:
• Hear from parents about their real-life experiences.
• Gain insights into the SEND pathway and transition phases.
• Learn about strategies to support smooth transitions from education to adulthood.
• Discover the latest initiatives from professionals working with SEND families.

�� RSVP Here: https://www.pcfcheshirewest.org/transitions-march25

We look forward to seeing you there!

#SEND #TransitionPhases #EducationPathways #ParentCarerForum #CheshireWest #NDTI #PreparationForAdulthood

☕ Coffee & Chat – Ellesmere Port (Evening)

Are you a parent carer of a child or young person with SEND? Join us for a friendly and informal Coffee & Chat session on Monday, 17th March, from 6 PM to 7 PM at Theatre Porto, Whitby Park, Ellesmere Port.

This is a great chance to:
✅ Meet other SEND parents and carers
✅ Share experiences in a supportive space ✅ Enjoy a relaxed chat over tea or coffee

No need to book—just come along! All SEND parents, carers, and young people are welcome. ��

Find out more: www.pcfcheshirewest.org

#SENDSupport #ParentCarerForum #EllesmerePort #CoffeeAndChat #CheshireWest

�� Coffee & Chat ☕
Join us for an informal Coffee & Chat session on Thursday, 20th March, from 10 AM to 12 PM at Live Cheshire, Chester!

Hosted by PCF - Information, Advice & Support Service (IASS), this is a great opportunity to:
✅ Get impartial advice and support for parents, carers, and young people with SEND ✅ Ask questions and share feedback ✅ Connect with other parents and carers in a relaxed setting

No need to book—just drop in! All are welcome. ��

#SENDSupport #ParentCarerForum #CheshireWest #IASS #CoffeeAndChat

SAVE THE DATES....

Your Futures Fair - Cheshire West

Are you or someone you know planning for life after school or college? The Your Futures Fair is specifically for young people with EHCPs (Education, Health, and Care Plans) and additional needs, offering tailored opportunities and support!

4th March 2025
Time: 10:00 AM – 2:30 PM
Location: Dee Banks School, Chester

This event is packed with opportunities to explore education, employment, and training options. Meet local providers, learn about support services, and discover the next steps to shape your future in a way that works for you!

Free tickets available here: Your Futures Fair Tickets

Spread the word to ensure every young person with additional needs has the chance to plan their future with confidence!

#CheshireWest #YourFuturesFair #EHCP #AdditionalNeeds #Education #Employment #Opportunities

�� SPOTSS Spring 2025 Newsletter is here! ��
Check out the latest updates from the Sensory Processing OT Support Service (SPOTSS)! ��
�� Highlights in this issue:
�� AHP Team of the Year! - Huge congratulations to the team for their recognition at Mid Cheshire Hospital NHS Trust! ��
�� Website Update! - new site is live with referral info, training links & resources for schools and parents.
�� Universal Training - Free training sessions for schools —
�� Sensory Spotlight: Vestibular System - Understanding movement, balance & how to support sensory needs!
�� New! SPOTSS Info Line via Eventbrite for Parents Carers Parents across Cheshire West & East can now get information to :
�� Discuss:
✅ The SPOTSS service offer
✅ How to access support
✅ What input from the service could look like ✅ Broad sensory advice

#SPOTSS #SensorySupport #SEND #OccupationalTherapy #ParentSupport #InclusiveEducation

��️ New Speech & Language Therapy (SALT) Pathway Roadmap! ��️

If you’re looking for guidance on Speech and Language Therapy (SALT) support, check out the CCICP SALT Pathway Roadmap! This resource outlines the journey for children and young people accessing SALT services, helping families and professionals understand the steps involved.

�� What you’ll find in the roadmap:
✅ How to access SALT support
✅ Pathways for different levels of need
✅ Guidance for parents, schools, and professionals

�� Got questions? Contact ccicp.therapyservices@mcht.nhs.uk for more information.

#SpeechAndLanguageTherapy #SALT #SEND #ParentSupport #InclusiveEducation Sent from my iPhone

PCF BLOGS.....

In order to keep you up to date on all of the workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website.

Discover the Parent Carer Forum (PCF): Who We Are in 10 Minutes

At the Parent Carer Forum (PCF), we’re always looking for new ways to connect with families and share what we do. To offer a more accessible and engaging way of learning about us, we’ve created a 10-minute recording that highlights who we are, what we do, and how we support SEND families across Cheshire West and Chester.

This recording is perfect if you want to understand the work of the PCF but don’t have time to attend a meeting or read through detailed information.

Here’s a sneak peek inside our Parent Volunteer Handbook:

�� Welcome Letter– Get acquainted with our community!

�� What is the Parent Carer Forum? – Discover our mission and how we’re making a difference.

❤️ Core Values – Learn about the principles that unite us.

✅ What We Do…and Don't! – Understand our approach and what you can expect.

�� Role of the Representative – Your role in supporting and representing parents and carers.

�� Key Contacts & Legislation– Essential info at your fingertips!

This is just the start. We offer training and support- all designed to empower our reps in their role. ��

Looking forward to an amazing journey together!

�� Join Our Growing Team at the Parent Carer Forum – Vacancies Available! ��

Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester? �� The Parent Carer Forum (PCF CWAC) is looking for enthusiastic individuals to join as school representatives for:

�� Cloughwood Academy
�� Hinderton School
�� Hebden Green School
�� Various mainstream schools & Resource Provisions
��Nursery Settings
��Post -16 Settings

Why Join Us?

�� Amplify Your Voice: Represent the perspectives of parents and carers in your school community. Your feedback will directly influence local services and SEND policies.

�� Make a Difference: Be part of a team that shapes positive changes for children and young people with SEND.

��Flexibility: You can get involved at a pace that works for you—whether attending meetings, gathering parent feedback, or simply being a point of contact.

What Does a School Rep Do?
• Act as a bridge between parents, schools, and the forum.
• Share information and feedback with the PCF to support collective representation.
• Contribute to creating better opportunities and outcomes for families in your area.

How to Get Involved

�� Contact Us to express interest or find out more:

�� https://www.pcfcheshirewest.org/contact

�� Learn More: Watch Our Video https://youtu.be/vcfmJHiGoKw

Don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

�� Have Your Say on Ofsted’s Proposed Changes! ��

Ofsted has launched a consultation on its proposed changes to education inspections, aiming to make them fairer and more transparent. One of the key proposals is to replace single-word grades with a more detailed report card system, assessing areas like curriculum, teaching quality, student achievement, leadership, and values.

However, there are concerns that these changes could increase pressure on schools and may not fully reflect the diverse needs of students, especially those with SEND.

�� This is an important opportunity for parents, carers, and professionals to have their voices heard.

�� Read about the proposals here:
https://www.gov.uk/government/news/ofsted-sets-out-proposals-for-fairer-education-inspections-and-new-more-detailed-report-cards

�� Share your views in the consultation:
https://www.gov.uk/government/consultations/improving-the-way-ofsted-inspects-education

�� For a critical review of these changes, read Special Needs Jungle’s analysis here:
https://www.specialneedsjungle.com/

Your feedback can help shape a more inclusive and effective inspection system. Let’s make sure the SEND community is part of this conversation!

#SEND #OfstedConsultation #HaveYourSay #EducationMatters Sent from my iPhone

Dear Colleagues,
I am writing to let you know that the Department for Education and the Council for Disabled Children have just published two sets of guidance to support school governing boards in understanding their role and responsibilities in relation to children and young people with special educational needs (SEN) and disabilities and empowering them to hold their schools to account.
We would like to invite you please to help raise awareness and use of these publications:
SEN and disability duties: guidance for school governing boards
This guidance from the Department for Education provides a high level summary of the expectations of boards in relation to disability and SEN. It includes a checklist for governors/trustees and suggestions about how to use school performance data and build an evidence base to underpin its strategic oversight.
Equality Act 2010 and disabled pupils: A guide for governors and trustees
The Council for Disabled Children guide which was commissioned by the Department, focuses in more detail on the Equality Act duties to disabled pupils. It sets out the individually owed duties and the more strategic duties; and again it promotes a discussion about the evidence that governing boards need in order to understand how well the duties are being met in their school.
To illustrate how the duties work in practice, the guide uses examples from schools and from case law where claim

Research Opportunity for Parents of Autistic Children moving to Adult Mental Health Services
Are you a parent of an autistic young person who has experienced the transition from Child and Adolescent Mental Health Services (CAMHS) to Adult Mental Health Services (AMHS)?
A doctoral research study from Royal Holloway, University of London, is looking for at least eight participants to share their experiences in a remote, one-hour interview.
Existing research highlights that autistic young adults are more likely to fall through the gap between CAMHS and AMHS, often leaving parents to provide additional emotional support. This study aims to explore how parents experience this transition and the impact it has on them.
This research has been ethically approved and is not affiliated with the NHS.
If you’re interested or would like more information, please get in touch with Charlotte Roche, Trainee Clinical Psychologist.
Feel free to share with anyone who may be interested!
#Autism #CAMHStoAMHS #ParentCarers #ResearchOpportunity #SEND

CATCH is a free mobile app for expectant mums, parents & carers of children aged 0-5! Download today to access reliable health information with health reminders like vaccination dates, guidance for your child's age range and local support services!

http://www.catchapp.co.uk

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

SPOTSS Spring 2025 Newsletter

jo.southall@hotmail.com (Joanne Southall) — Tue, 18 Feb 2025 10:52:20 GMT

SPOTSS Spring 2025 Newsletter is here!

Check out the latest updates from the Sensory Processing OT Support Service (SPOTSS)!

Highlights in this issue:

AHP Team of the Year! - Huge congratulations to the team for their recognition at Mid Cheshire Hospital NHS Trust!

Website Update! - Our new site is live with referral info, training links & resources.

Check it out here: SPOTSS Website

Universal Training - Free training sessions for schools & parent now open for booking on Eventbrite

Sensory Spotlight: Vestibular System - Understanding movement, balance & how to support sensory needs!

Got a question? Contact us at ccicp.sensoryotadmin@mcht.nhs.uk

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events...

Neurodevelopmental Forum

jo.southall@hotmail.com (Joanne Southall) — Fri, 14 Feb 2025 14:24:28 GMT

Reflecting on the Neurodevelopmental Forum

On February 11th, 2025, parents, carers, and professionals gathered at Hartford Golf Club for the Neurodevelopmental Forum—a day dedicated to discussing support for neurodivergent children and young people in Cheshire West and Chester. The event, hosted by the Parent Carer Forum (PCF), brought together experts across education, health, and social care to share updates, strategies, and initiatives that aim to improve inclusion and support for families.

Key Themes and Takeaways

Inclusion Matters: Making Change Happen

Paul Arista opened the forum with a reminder of why inclusion is at the heart of Cheshire West and Chester’s education strategy. The borough is working towards a future where every child—regardless of their needs—is welcomed and supported in local schools. With a focus on early intervention and the Inclusion Matters strategy aims

This means:

Identifying children’s needs early and ensuring they receive appropriate support.

Ensuring full-time, meaningful education for all children.

Improving educational outcomes across all key stages.

Supporting school staff so they can better meet the emotional and educational needs of children.

Preparing young people for adulthood with a clear and consistent strategy.

Neurodiversity Pathways: The Future of Support

Gill Tyler from the NHS presented updates on neurodiversity pathways, explaining how services across Cheshire & Merseyside are evolving to provide earlier, needs-led support rather than waiting for a formal diagnosis

Key developments include:

A Profiling Tool designed to help families and professionals understand a child’s needs across nine dimensions, such as speech, attention, sensory processing, and emotional regulation.

A new early help model offering support through education, health, and social care whilst on long waiting lists.

Improvements in ADHD and autism pathways, aiming for quicker access to support and shared care for ADHD medication.

Families expressed hope that these changes would reduce long waiting times and ensure that children receive the help they need when they need it.

Speech and Language Therapy (SALT) Sara Caldwell shared valuable insights into the services they offer for children with communication challenges. They highlighted how their work focuses on supporting children with speech, language, and communication needs, providing tailored therapy and interventions to help improve communication skills. The team discussed their role in both early identification and ongoing support, working collaboratively with families and schools to create individualised plans that enhance children’s ability to express themselves and interact effectively. Their services aim to empower children, boost confidence, and promote better outcomes across education and social settings.

Spotlight on Sensory Needs: The Role of SPOTSS

The Sensory Processing Occupational Therapy Support Service (SPOTSS) team shared practical strategies for supporting children with sensory needs at home and in school. From sensory ladders to personalised regulation plans, the session offered valuable insights into how different environments can either help or hinder a child’s ability to learn and thrive.

Parents left with simple but effective techniques to try at home, such as using deep pressure activities (hugs, weighted blankets) for calming or introducing movement breaks to help with focus.

Understanding the Role of a SENCO

Carli Willis, an experienced SENCO, gave a much-needed overview of what a Special Educational Needs Coordinator (SENCO) does and how they can support families.

Some key responsibilities include:

Identifying children with additional needs and ensuring they get support.

Working with parents, teachers, and external professionals to create inclusive learning environments.

Supporting transitions, whether that’s into school, between year groups, or from primary to secondary education.

Advising on EHCPs, reasonable adjustments, and access arrangements.

Parents found this session particularly useful, as many still struggle with knowing who to turn to in schools when concerns arise.

The PINS Project: Co-Producing Inclusion in Schools

A highlight of the day was the Partnership for Inclusion of Neurodiversity in Schools (PINS) Project, a government-funded initiative testing new ways to improve inclusion in mainstream schools.

Cheshire West’s four pilot schools—Neston Primary, St Winefride’s, Farndon Primary, and Little Sutton Primary—are focusing on whole-school approaches to neurodiversity, including:

Staff training on neurodiverse learning styles and reasonable adjustments.

Parent engagement through surveys, coffee mornings, and co-production meetings.

Sensory environment audits to create more inclusive classrooms.

Initial feedback from parents has been mixed—while many feel welcome in their child’s school, others report barriers to communication, inconsistencies in teacher knowledge, and a lack of support during key transitions (especially into high school).

Quick wins suggested by parents included:

More SEND coffee mornings to build relationships between families and school staff.

Schools regularly sharing SEND information with ALL parents—not just those who ask.

Better awareness of ‘masking’ and how it impacts neurodivergent children in the classroom.

A Huge Thank You to Our Amazing Marketplace !

It was a great opportunity to learn about some of the outstanding professionals and services who work tirelessly to support children and young people. A brief introduction from them all at the start of the day made parents aware of all the great services in the room, with time to connect with them during the breaks and at the end of the day.

A massive thank you to all including:
The Autism Team

CWP

Witherslack

Bright Futures

Youth Services

Starting Well

Koala

SALT, OT & SPOTSS Services

Final Thoughts: What’s Next?

As the forum wrapped up, everyone enjoyed lunch, made friends and networked. The Parent Carer Forum are committed to continuing our work in co-production, ensuring that parents remain central to SEND decision-making and raising awareness of local support.

For families, professionals, and decision-makers, the message was clear: Inclusion isn’t just a word—it’s a commitment and it’s EVERYONES responsibility!

You can view the slides from the presentation here ….

Get Involved!

The Parent Carer Forum wants to hear from YOU! Whether you’re a parent, teacher, or professional, your experiences and insights are vital in shaping the future of SEND support in Cheshire West.

Join a local SEND coffee morning.

Share your experiences—good or bad—so we can work towards real, lasting change.

Together, we can build a more inclusive future for every child.

To see other events coming up or to catch up on past events & presentations...

click below

Get to Know Us Better

jo.southall@hotmail.com (Joanne Southall) — Wed, 29 Jan 2025 20:30:11 GMT

Discover the Parent Carer Forum (PCF): Who We Are in 10 Minutes

This recording is perfect if you want to understand the work of the PCF but don’t have time to attend a meeting or read through detailed information.

Why Listen to Our Recording?

In just 10 minutes, you’ll:

Learn Who We Are: Hear about our mission, values, and the parent-led nature of the forum.
Discover What We Do: From gathering families’ voices to collaborating with professionals, we break down how we work to influence positive change.
Understand How We Operate: Find out how we connect with families through surveys, focus groups, and events, and how you can get involved.

We’ve designed this recording to be an accessible and flexible way to learn about the PCF, whether you’re at home, on the school run, or simply need a quick overview.

Listen now here....

This recording is just one way to connect with the PCF.

We encourage you to explore more of what we offer:

Join Our Events: Attend our coffee mornings, focus groups, or school rep sessions to share your experiences and meet other families.
Follow Us Online: Stay up to date with news and opportunities via Facebook, YouTube, and newsletters.
Reach Out Directly: Contact us via email or phone if you have specific questions or want to share your feedback.

Your voice matters, and the PCF is here to amplify it. We hope this recording provides a helpful introduction to who we are and how we work. Take a few minutes to listen, and let’s start a conversation about improving services for children and young people with SEND.

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2025...

Newsletter January 2025

jo.southall@hotmail.com (Joanne Southall) — Mon, 20 Jan 2025 20:29:05 GMT

Before Christmas, we met with Ofsted to provide an update on parents' experiences since our last inspection in 2022. The meeting was led by the same inspectors who conducted the 2022 inspection, so they were already familiar with the issues and challenges parents have been facing.

As a Parent Carer Forum (PCF), we share your frustration regarding delays in EHCP completion rates. During the meeting, we shared our recommendations on improving communication and processes to better support parents.

We remain committed to amplifying your voices and sharing your feedback to drive meaningful improvements for everyone.

Please use the link below to view Cheshire West and Chester's first SEND Newsletter...

�� Join Us for a Coffee & Chat Drop-In Session! ☕️��
�� Topic: Short Breaks & Wraparound Care ��
Do you struggle with wraparound care or need a break from your caring role?

This session is for YOU! ��
Come along to:

��Learn about Wraparound Care: Support available outside school hours for SEND families, including after-school, weekends, and holidays.

��Explore Short Breaks: Find out how to access services that give you a break while your child receives quality care.

��‍♀️Ask Questions & Give Feedback: Your chance to chat with service providers and share your thoughts.

��Meet Other Parents & Carers: Enjoy a coffee and connect with others in a relaxed, informal setting.

We’re here to help you navigate support options! ��

�� Everyone is welcome! Let’s chat, share, and support each other! ��

SAVE THE DATES....

PCF Virtual Forums via ZOOM

Community Connections Service - Update from Steve Arnold, Strategic Commissioning Programme Manager, Children and Families

It has been brought to the attention of Cheshire West and Chester Council that Parent Carers who are currently accessing the Community Connections Service are facing increased costs for individual services, memberships, and activities.

To clarify, should any Parent Carers be experiencing these difficulties we would like to take this opportunity to advise them to contact Disability Positive in the first instance, who can support and advise on how to maximise the use of the current agreed funding.

Where there is a clear increase in cost that is impacting access to a short break, Disability Positive will review/agree where suitable, an increase to the current package in line with the increased cost up to the maximum value of £1,000.
For any parent carers already in receipt of the maximum amount of Community Connections funding (£1,000) and experiencing ongoing difficulties in accessing a short break due to increased costs of previously agreed activities, we would encourage you, in the first instance to speak with Disability Positive who are happy to liaise with Children’s Social Care and Children’s Commissioners in order for them to explore where possible any viable alternatives.

Cheshire West and Chester Council values and respects the dedication of our Parent Carer community and strives to remain fair and equitable to all. We would encourage any Parent Carers who are eligible but have yet to access the community connections service come forward and make contact with Disability Positive.

Disability Positive contact details are as follows: Tel: 01606 331853

or email: CommunityC@disabilitypositive.org

Note: If you have any feedback relating to this communication and your experience of accessing the Community Connections funding please contact secretary.pcf.cwac@gmail.com

PCF BLOGS.....

In order to keep you up to date on all of the workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website.

Purpose of Our Blogs Page
Our Blogs Page serves as a dynamic platform to connect, inform, and empower. Here’s how?
Educate & Inform
We share key updates, resources, and insights to keep parents and carers in the know.
Articles like the Cheshire Neurodevelopment Network and Autism and Masking blog
Empower
From practical advice to personal stories, we offer guidance to help families navigate SEND challenges.
Collaborative pieces like the IASS & PCF blog.
Amplify Voices
We showcase the lived experiences of parents and carers to drive meaningful change.
Stories like the PCF survey impact into the SEND scrutiny report, CWAC inclusive borough Motion, and the SEND summit.
Promote Collaboration
We highlight partnerships and initiatives that improve services for SEND families.
Blogs like the Partnership Inclusive Nurodiverstiy Schools project
Our Blogs Page is where information meets inspiration, fostering a stronger, more connected community.
Explore our latest posts here https://www.pcfcheshirewest.org/pfc-stories

Free Adult ADHD Course
Are you or someone you know navigating life with ADHD?
Check out this FREE online course tailored for adults with ADHD or those supporting them. It’s packed with practical tips, strategies, and resources to help manage everyday challenges and thrive.
Sign up here: www.pcfcheshirewest.org/adult-adhd-cours e
Don’t miss this opportunity to learn, connect, and grow! Share with anyone who might benefit.

�� Join Our Growing Team at the Parent Carer Forum – Vacancies Available! ��

Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester? �� The Parent Carer Forum (PCF CWAC) is looking for enthusiastic individuals to join as school representatives for:

�� Cloughwood Academy
�� Hinderton School
�� Hebden Green School
�� Various mainstream schools & Resource Provisions
��Nursery Settings
��Post -16 Settings

Why Join Us?

�� Amplify Your Voice: Represent the perspectives of parents and carers in your school community. Your feedback will directly influence local services and SEND policies.

�� Make a Difference: Be part of a team that shapes positive changes for children and young people with SEND.

��Flexibility: You can get involved at a pace that works for you—whether attending meetings, gathering parent feedback, or simply being a point of contact.

What Does a School Rep Do?
• Act as a bridge between parents, schools, and the forum.
• Share information and feedback with the PCF to support collective representation.
• Contribute to creating better opportunities and outcomes for families in your area.

How to Get Involved

�� Contact Us to express interest or find out more:

�� https://www.pcfcheshirewest.org/contact

�� Learn More: Watch Our Video https://youtu.be/vcfmJHiGoKw

Don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

Technology Enabled Care Soft Marketing Engagement

Cheshire West and Chester Council is developing a new Technology Enabled Care (TEC) service. TEC is a way of offering a less restrictive means of support to those who need care or providing unpaid care and include equipment such as falls detectors, room sensors, epilepsy sensors on smart watches and specialist apps on smartphone.

The Council is gathering some initial thoughts and ideas from local people and is keen to hear from people who have direct experience of using technology to meet their care and support needs, or in their unpaid caring role as well as the general population, to see what is important to them and how technology can be used to improve lives.

Responses will be used to inform and shape the future TEC service and its delivery.
Cllr Sheila Little, Cabinet Member for Adult Social Care said: “We aim to commission a high-quality cutting-edge TEC service that will cater to the diverse needs of our residents, ensuring they have access to the right technology at the right time, in the right way, that continues to promote their independence and wellbeing. We urge people to share their views by completing a questionnaire.”

For those with lived experience , including those who currently access TEC, families, friends, and carers: https://forms.office.com/e/N29Azkm8p7

For the general public : https://forms.office.com/e/VrT2CB7x21

If you have any questions, please contact ageingwellcommissioning@cheshirewestandchester.gov.uk

Positive Mental Health for All- Join Cheshire West Voluntray Action for Their Second Event!
After the success of the first engagement event, CWVA. Are excited to announce booking is now open for our next session:
Date: Friday, February 7th
Time: 9:30 AM - 12:30 PM
Location: Cheshire FA, Hartford
Book your place here (please note, you’ll need to complete a quick one-time registration on our new booking system). https://book.plinth.org.uk/e/hphamAWfSF0kuybQA5BG
This project is all about improving mental health outcomes for eight under-served communities:
• Asylum seekers / refugees
• Gypsy / Traveller / Roma
• Polish community
• LGBTQIA+
• People with autism
• People with ADHD
• People with significant sight loss
• People with significant hearing loss
Our second event will focus especially on the last four groups, with valuable input from specialist VCSE organisations. We’ll also explore intersectionality and touch on the other communities involved.
What to expect:
• Hear insights from lived and professional experiences
• Share your thoughts, questions, and ideas
• Access our online resources
Let’s come together as staff and volunteers across public and VCSE sectors to create better mental health outcomes for everyone.
We can’t wait to see you there!
Any questions please contact Andrew Herbert (he/him)
Strategic Development Lead - Mental Health & Community Hubs, Cheshire West Voluntary Action
07908 100067
Working hours: 26.5 hours flexibly, typically Mon-Wed
For more information, visit our new Cheshire West Voluntary Action website.
http://www.cwva.org.uk/
#MentalHealthForAll #InclusiveCommunities #CheshireWest

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Adult ADHD Self Support Courses

jo.southall@hotmail.com (Joanne Southall) — Tue, 07 Jan 2025 19:30:56 GMT

Please find attached flyers for upcoming Adult ADHD Self Support Courses that are being held across the borough as part of the Mental Health Course Prospectus 2024/25.

Delivered by a Qualified and Experienced ADHD and Executive Function Coach in several locations, please see links below for area details...

If you have any additional access requirements for this content or for further information regarding disability, accessibility, as well as further training, please contact Peter Grime, the Senior Access Officer for Cheshire West and Chester Council, at peter.grime@cheshirewestandchester.gov.uk

or alternatively, mail the equalities mail box at EQUALITIES@cheshirewestandchester.gov.uk

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Newsletter December 2024

jo.southall@hotmail.com (Joanne Southall) — Tue, 07 Jan 2025 17:07:14 GMT

Join Our Growing Team at the Parent Carer Forum – Vacancies Available!
Are you a parent or carer of a child with additional needs or a disability in Cheshire West and Chester? �� The Parent Carer Forum (PCF CWAC) is looking for enthusiastic individuals to join as school representatives for:
�� Cloughwood Academy
�� Hinderton School
�� Hebden Green School
�� Various mainstream schools & Resource Provisions
��Nursery Settings
��Post -16 Settings

Why Join Us?
�� Amplify Your Voice: Represent the perspectives of parents and carers in your school community. Your feedback will directly influence local services and SEND policies.

�� Make a Difference: Be part of a team that shapes positive changes for children and young people with SEND.

��Flexibility: You can get involved at a pace that works for you—whether attending meetings, gathering parent feedback, or simply being a point of contact.

What Does a School Rep Do?
• Act as a bridge between parents, schools, and the forum.
• Share information and feedback with the PCF to support collective representation.
• Contribute to creating better opportunities and outcomes for families in your area.

How to Get Involved

What’s a Panel? Event Recap

We recently hosted the “What’s a Panel?” event, featuring Karen Cove, a Senior SEN Leader,
who shared her expertise on SEND panels and their critical role in decision-making. This
session aimed to demystify the process for parents and carers. A heartfelt thank you to all
attendees for their patience during the technical hiccups and for contributing thoughtful
questions that made the presentation thought provoking and engaging.
Understanding SEND Panels: What Are They and What Do They Do?
SEND panels are multi-disciplinary groups responsible for decisions that shape the educational
support provided to children with special educational needs and disabilities (SEND). Karen
explained that these panels handle:
● SENDIP ( Early Years)
● EHCNA – primary and secondary
● Annual review panel
● PFA panel (Preparation For Adulthood)
● Top Up Panel
● EOTAS Panel (Education Other Than At School)

In chapter 9 of the SEND code of practice it says –
“It is helpful for local authorities to set up moderating groups to support transparency in decision-making. Such groups can improve the consistency of decision-making about whether to carry out an EHC needs assessment and whether to issue an EHC plan.”

Who Attends the Panel?
Open to professionals working with children and young people in the Borough – usually the professionals are – Health Visitors / Teachers / Head teachers / SENCO’s / Resource Provision managers / Early Years consultants / Educational Psychologists / Young People's Services / Youth Offending Service
● Voluntary
● Training
● TOR
● Confidential
● Preparation

Deciding whether to issue a plan
In deciding whether to make special educational provision in accordance with an EHC plan, the local authority should consider all the information gathered during the EHC needs assessment and set it alongside that available to the local authority prior to the assessment

Using the assessment information
The information from the EHC needs assessment confirms the information available on the nature and extent of the child or young person’s SEN
● whether the special educational provision required to meet the child or young person’s needs can reasonably be provided from within the resources normally available to mainstream early years providers, schools and post-16 institutions, or
● whether it may be necessary for the local authority to make special educational provision in accordance with an EHC plan

Thank You!
A big thank you to Karen Cove for her invaluable expertise and adaptability during the session.
Thanks also to everyone who participated—your thought provoking questions and enthusiasm.
For more updates and information on upcoming events, visit Parent Carer Forum Cheshire
West Parent Carer Forum | Cheshire West | Chester
Any further questions please email contact.pcfcwac@gmail.com
#SENDSupport #EHCP #ParentCarerForum #UnderstandingPanels

Update on the Brighter Futures Training in Autistic girls, Masking and PDA
A big thank you to everyone who attended the recent Brighter Futures workshop Your participation and feedback mean so much to us.

We know many of you are were waiting for the recording, and we sincerely apologise for the delay. It’s now ready to share with you!
You can access the slides, documents and the recording here...

Thank you to everyone who attended the PCF Short Breaks & Wraparound Care SIP & Learn at Live Cheshire

Parent Carers met with Local Authority Commissioners and service providers to share their views and experiences of ‘Short Breaks’ and wraparound care for disabled children. This was a great opportunity for professionals to understand the lived experience of families and the challenges that they face with childcare and finding supportive and inclusive activities for their children. If you would like to know more about ‘Short Breaks’ then please go to the Local Offer website
If you missed today, we will be running this event again on the 23rd January in Northwich Down Syndrome Cheshire pop along to see us.

Cheshire West and Chester Council are developing a new Short Breaks Commissioning Strategy that will set out a vision to provide short breaks for parents/carers with children/young people with Special Education Needs and
Disabilities (SEND). The vision is to create a supportive and inclusive environment where disabled children and young people can thrive while providing their families with an essential short break. They aim to commission high-quality short breaks that cater to the diverse needs of children and young people with disabilities, ensuring they have access to enriching experiences that promote their development, socialisation and wellbeing.

They are gathering some initial thoughts and ideas from people with lived experience through a series of workshops for parents, carers and young people. They would welcome the opportunity to meet as many of you as possible to hear your experiences of short breaks, what works well, what needs improvement and your
ideas for the future.

They are also engaging with children and young people, various providers, as well as colleagues from across the Council to ensure that we are discussing this as widely as possible.

Once this information has been gathered, they would welcome the opportunity to come back to parents/carers and young people to co-produce the Short Breaks Commissioning Strategy to ensure that it is fit for the future and reflective of your needs.

Find out more
To find out more about the current Short Breaks Commissioning Strategy, it can be
found on the Live Well Website by clicking on the following link below

Get involved
If you would like to book on one of the face to face workshops, please click on the following link to book your place: Short Breaks booking form or call 0151 356 6558.

If you are unable to make one of the face to face workshops but would like to be involved in this, please contact
aiminghighfordisabledchildren@cheshirewestandchester.gov.uk

to look at booking an alternative date and time.

Have Your Say on Disabled Children’s Social Care Law in England!

Contact has announced extra online sessions to gather feedback on proposed changes to the law around disabled children’s social care in England. This is your chance to share your views and ensure that the voices of families and carers are heard.

The sessions will discuss:
• How proposed changes might impact families.
• Whether the plans address the needs of disabled children effectively.
• Your experiences and suggestions for improvement.

Dates for the Extra Sessions:

Online events
Evening online public event: 16 December, 7:30pm-9:00pm

Lunch time online public event (lunch time): 6 January, 12:30pm-2:00pm

Join the Conversation
These free, online sessions are open to all families and carers of disabled children.

Find out more and register here:
Click here to contact: Extra Sessions on Disabled Children’s Social Care Law

Let’s work together to make sure these changes truly reflect the needs of our community!

�� Merry Christmas from the Parent Carer Forum Cheshire West! ��

As the festive season approaches, we want to wish all our families a joyful and peaceful Christmas. �� Whether your Christmas plans include chicken nuggets for Christmas dinner, crafting a new sensory diet and visual timetables to see you through, or simply taking a moment for yourself, remember: you are not alone. ��

If you’re looking for local support this Christmas, visit our blog on navigating the SEND system to find helpful resources and services tailored to families in Cheshire West.

National Support:

Contact: Support and information for families with disabled children – 0808 808 3555.
Visit Contact’s website https://contact.org.uk/help-for-families/listening-ear/
Scope: Support for disabled people and their families – 0808 800 3333.
Learn more https://www.scope.org.uk/helpline
Mind: Mental health support – 0300 123 3393.

Tips for Coping at Christmas

Get support https://www.mind.org.uk/information-support/tips-for-everyday-living/christmas-and-mental-health/christmas-coping-tips/
Samaritans: 24/7 listening service – 116 123. Contact them https://www.samaritans.org/
mental heath for children and young people https://www.youngminds.org.uk/

This season can look different for every family, and that’s okay �� Take time to rest, recharge, and enjoy the little moments. We look forward to supporting you in the New Year. ��✨

With warm wishes,
The Parent Carer Forum Cheshire West Team ��

#MerryChristmas #SENDSupport #HereForYou

Join us for a Relaxed and Friendly Catch-Up!

Are you a parent or carer of a child or young person with SEND? We’d love to invite you to our PCF School Rep Coffee & Chat event:

Date: Wednesday 18th December
Time: 6 PM - 7 PM
Location: Theatre Porto, Whitby Park, Ellesmere Port

This is a great opportunity to:
Meet other SEND parents and carers in a warm, welcoming space.
Share experiences and have casual conversations over a cup of tea or coffee.
Connect with others who understand the joys and challenges of supporting children with special needs.

Whether you’re looking for friendly faces, new connections, or just a chat, this event is for you. Bring the kids along, too—we look forward to seeing you there!

For more details, visit: www.pcfcheshirewest.org/whats-on

All SEND parents, carers, children, and young people are welcome!

#SENDCommunity #ParentCarerForum #CheshireWest

�� Join Us for a Coffee & Chat Drop-In Session! ☕️��
�� Topic: Short Breaks & Wraparound Care ��
Do you struggle with wraparound care or need a break from your caring role?

This session is for YOU! ��
Come along to:

��Learn about Wraparound Care: Support available outside school hours for SEND families, including after-school, weekends, and holidays.

��Explore Short Breaks: Find out how to access services that give you a break while your child receives quality care.

��‍♀️Ask Questions & Give Feedback: Your chance to chat with service providers and share your thoughts.

��Meet Other Parents & Carers: Enjoy a coffee and connect with others in a relaxed, informal setting.

We’re here to help you navigate support options! ��

�� Everyone is welcome! Let’s chat, share, and support each other! ��

SAVE THE DATES....

PCF Virtual Forums via ZOOM

Thursday 13th March 2025 – Zoom
Transitions and Pathways.

NEW!!! PCF BLOGS.....

In order to keep you up to date on all of the workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website.

�� Your Voices Heard Nationally on SEND Issues! ��

The Parent Carer Forum Cheshire West is committed to amplifying your voice—not only through the National Network of Parent Carer Forums (NNPCF) but also by feeding back directly with local MPs to push for meaningful change in SEND support and policies. ��
Together, we’re making sure your experiences and insights influence decision-makers, ensuring SEND services reflect the needs of our children. ��✨

SIP & LEARN: EHCP Process with IASS

Review our recent Sip and Learn session with IASS, where we delved into the EHCP (Education, Health, and Care Plan) process! It was fantastic to see so many parents and carers engaging, sharing experiences, and asking important questions.

For those who couldn’t make it this time, don’t worry! We’ll be running this session again in March at LIVE! Cheshire. It’s a great opportunity to learn more about the EHCP process in a relaxed setting with expert guidance from IASS.

For more info, check out the event page here: Sip and Learn Coffee Event with IASS and the relevant documents that support the process including: SEN support and Quality First Teaching, SEN funding in Mainstream Schools and more ….

Don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

Please see below the HAF SEND booklet for Winter.
Places can be booked via the individual booking options for each provider, found on the flyer.
For more information AimingHighForDisabledChildren@cheshirewest.gov.uk

FREE EVENT…..
Date: Thursday 13th February
Time: 10am-2pm
Venue: Canalside Conference Centre, 34 -36 Brooks Lane, Middlewich, Cheshire, CW10 0JG

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

The Panel Process - What’s a Panel? Event Recap and Q&A Highlights

jo.southall@hotmail.com (Joanne Southall) — Wed, 18 Dec 2024 14:29:31 GMT

A heartfelt thank you to all attendees for their patience during the technical hiccups and for contributing thoughtful questions that made the presentation thought provoking and engaging.

Understanding SEND Panels: What Are They and What Do They Do?

SEND panels are multi-disciplinary groups responsible for decisions that shape the educational support provided to children with special educational needs and disabilities (SEND). Karen explained that these panels handle:

SENDIP ( Early Years)
EHCNA – primary and secondary
Annual review panel
PFA panel (Preparation For Adulthood)
Top Up Panel
EOTAS Panel (Education Other Than At School)

In chapter 9 of the SEND code of practice it says –

“It is helpful for local authorities to set up moderating groups to support transparency in decision-making. Such groups can improve the consistency of decision-making about whether to carry out an EHC needs assessment and whether to issue an EHC plan.”

Who Attends the Panel?

Open to professionals working with children and young people in the Borough – usually the professionals are – Health Visitors / Teachers / Head teachers / SENCO’s / Resource Provision managers / Early Years consultants / Educational Psychologists / Young People's Services / Youth Offending Service

Voluntary
Training
TOR
Confidential
Preparation

Deciding whether to issue a plan

In deciding whether to make special educational provision in accordance with an EHC plan, the local authority should consider all the information gathered during the EHC needs assessment and set it alongside that available to the local authority prior to the assessment.

Using the assessment information

The information from the EHC needs assessment confirms the information available on the nature and extent of the child or young person’s SEN

whether the special educational provision required to meet the child or young person’s needs can reasonably be provided from within the resources normally available to mainstream early years providers, schools and post-16 institutions, or
whether it may be necessary for the local authority to make special educational provision in accordance with an EHC plan

Key Questions and Answers from the Event

Q. Who decides on moves to specialist provision, and when can this be requested?

A. This can be requested at 2 points either when a new assessment has been concluded and a plan has been agreed to be written or this can be requested when a child or young person has an Education, Health and Care plan and is having an annual review.

Q. Do you provide minutes / detailed and transparent information (anonymised if required) to parents of the panel discussions regarding their child?

A.The discussions at panel are not recorded, the decision is recorded and the wording agreed at panel to explain the decision.

Q. Can you explain what is meant by ‘the legal test’?

A. If a local authority (LA) is requested to carry out an EHC needs assessment by a parent, young person, school or college, it must consider:

whether the child or young person has or may have special educational needs (SEN); and
whether they may need special educational provision to be made through an EHC plan.

If the answer to both of these questions is yes, the LA must carry out an EHC needs assessment.

This test is set out in the law (section 36(8) of the Children and Families Act 2014).

More information can be found here IPSEA’s guide.

Q. Is there a tick list/criteria that shows the legal test is met? Do you publish that anywhere?

A: The inclusion framework is used when working with parents. It is available on the Livewell site.

Q. How does the panel address gaps in school submissions and is there training for SENCOS?

A. At the SEND summit held in October to professionals and parents, Karen presented the ‘Fit to Submit’ for everyone to get a better understanding of what helps panels make decisions. Incomplete or inaccurate submissions can delay decisions. Karen highlighted ongoing efforts to train SENCOs and other settings to enhance the quality of documentation submitted, you can review our blog and Karen’s presentation for the SEND Summit here . Training for SENCOs is planned in the new year around all statutory processes.

Q. Can parents submit additional evidence, like private assessments?

A. Yes, parents are encouraged to provide evidence from all legally trained professionals such as private assessments or reports from specialists like speech and language therapists for example.

Q. Is there training for panel members?

A. Yes, there is training provided for panel members. They are required to do this training and commit a significant amount of time to reading all the relevant cases to attend the panel.

Q. Why does the Local Authority rely on its own policies when deciding whether to assess for an EHCP needs assessment, particularly when these policies sometimes focus on whether a school has provided evidence of a targeted approach through ‘assess, plan, do, review’ (APDR)? Isn’t this approach contrary to the legal test in Section 36(8) of the Children and Families Act 2014, which does not require schools to have fully completed these cycles? How does the LA justify saying ‘no’ based on what a school hasn’t provided, especially when there may be other evidence indicating that a child’s needs may call for an EHCP?

A. When making a decision to complete an assessment the LA can only apply the legal test: · whether the child or young person has or may have special educational needs (SEN); and · whether they may need special educational provision to be made through an EHC plan.

Panel is an evidenced based service and as such requires evidence to support BOTH parts of the test. The LA does not have its own policy in relation to this; however, it requests that settings complete certain documentation to ensure all of the information is provided to the panel to allow them to make an informed decision. One of these documents is a SEND profile in this document settings are able to outline what professionals are working with the child / young person. A further important aspect of the SEND profile is the provision map, this allows panel members to see what provision is in place for the child, the frequency and timings of each intervention and the cost of these interventions to the setting. Panel members use this document in particular hen looking at the second part of the legal test to determine whether or not the child's needs can be met from resources already available to school (Element 2 £6000) or whether they may require provision beyond this that may need to be provided through an EHC plan. There are occasions when professional reports also indicate a level of provision and these are also considered. This is all outlined in our panel guidance to members.

The first part of the legal test is relatively straightforward and often this is agreed at panel based on the evidence however often there is insufficient evidence to agree the second part of the test. This often comes primarily from the setting who know the child and can outline what individual targeted intervention the child receives outside of good quality first teaching and above which can be provided by element 2 funding.

Q. How does the Local Authority demonstrate flexibility in considering EHC needs assessment requests that do not strictly align with the LA’s Assess Plan Do Review policy? What measures are in place to ensure that decisions are based on the child or young person’s individual circumstances and evidence, rather than rigid adherence to internal policies?

A. All applications are considered on an individual basis with whatever evidence has been provided. However there needs to be sufficient evidence to meet both parts of the test. As mentioned above schools are urged to complete the appropriate paperwork to ensure an accurate decision can be made.

Funding Questions

Karen also addressed pre questions about funding, emphasising that these discussions are not related to panel decisions. Funding complexities require detailed conversations that weren’t fully explored during this session. Encouragingly, Karen expressed interest in hosting a separate session to clarify funding-related issues if there’s demand from parents and carers.

Review

To support attendees and others seeking insights into SEND panels, please review the resources that were discussed

Thank You!

A big thank you to Karen Cove for her invaluable expertise and adaptability during the session. Thanks also to everyone who participated—your thought provoking questions and enthusiasm.

Any further questions please email contact.pcfcwac@gmail.com

For more updates and information on upcoming events, visit click below...

A Workshop on Autistic Girls, Masking and PDA

jo.southall@hotmail.com (Joanne Southall) — Mon, 16 Dec 2024 14:38:52 GMT

Key Highlights from the Session

Introduction to Autism in Girls: The workshop opened with an overview of how autism manifests in girls, highlighting differences in diagnosis rates and behavioural patterns.
Masking: A deep dive into the concept of masking shed light on why many girls remain undiagnosed and the long-term impact of masking on mental health.
Pathological Demand Avoidance (PDA): Participants learned about the traits of PDA and practical strategies for reducing anxiety and supporting children with PDA in daily life.
Case Studies and Q&A: Real-life examples helped to contextualised the theory, and an interactive Q&A session allowed parents to connect the information to their own experiences.

A Collaborative Approach

The session emphasised collaboration between families, schools, and communities to accommodate the unique needs of girls with autism. Tailored strategies, such as sensory-friendly environments and alternative communication methods, were discussed as ways to create a supportive atmosphere.

A Valuable Resource

This workshop is part of the forum’s ongoing commitment to empower parents with knowledge and tools. By shedding light on the nuanced needs of autistic individuals, the forum aims to foster greater understanding and inclusion.

For those who couldn’t attend, a recording of the workshop is available below.

Also below are links to the presentation slides, further resources and useful information.

Bright Futures offers a range of workshops for free including workshops for families and schools. If you’re interested in joining future workshops or have ideas for topics, don’t hesitate to reach out. Together, we can continue to build a community that uplifts and supports one another.

Feel free to contact Bright Futures for more information...

brightfuturesschool@brightfuturescare.co.uk

01925 750 249

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Parent Carer Representatives

jo.southall@hotmail.com (Joanne Southall) — Thu, 28 Nov 2024 15:12:26 GMT

Here’s a sneak peek inside our Parent Volunteer Handbook:

�� Welcome Letter– Get acquainted with our community!

�� What is the Parent Carer Forum? – Discover our mission and how we’re making a difference.

❤️ Core Values – Learn about the principles that unite us.

✅ What We Do…and Don't! – Understand our approach and what you can expect.

�� Role of the Representative – Your role in supporting and representing parents and carers.

�� Key Contacts & Legislation– Essential info at your fingertips!

This is just the start. We offer training and support- all designed to empower our reps in their role. ��

Looking forward to an amazing journey together!

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Code of Conduct

jo.southall@hotmail.com (Joanne Southall) — Thu, 28 Nov 2024 14:48:47 GMT

At PCF Cheshire West, we're dedicated to fostering a culture where every individual feels welcome, valued, and respected so that we can work in partnership to improve the outcomes for our families and their children.

Why Our Code of Conduct Matters:

✅ Purpose: Our Code of Conduct sets clear expectations for how we interact with one another. It’s designed to ensure a respectful, productive, and safe environment for all Parent Carers, the Parent Carer Forum (PCF), and associated professionals. By following these guidelines, we can communicate and collaborate effectively, driving positive change within our community.

✅ Inclusivity & Support: We believe in embracing diversity and being there for one another. Every voice in our community matters, and your experiences shape the future.

✅ Equality & Respect: Our commitment to equality is unwavering. We’re here to maintain an environment where everyone is treated with fairness and respect.

✅ Positivity & Change: Together, we’re focused on driving positive change and continuously improving. Our efforts today are about creating a lasting impact that benefits our community for years to come.

�� Our Vision at the Heart:

Our vision of a compassionate, inclusive environment where every voice is respected and empowered is the foundation of our Code of Conduct. Each principle reflects our commitment to respect, inclusivity, and positive collaboration, ensuring our community thrives and supports one another. ��

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Independent Travel Training

jo.southall@hotmail.com (Joanne Southall) — Wed, 20 Nov 2024 17:49:25 GMT

Cheshire West and Chester Council are reintroducing Independent Travel Training this winter. Independent Travel Training is designed to give children and young people with Special Educational Needs/Disability the skills and confidence they need to travel independently. Take up of this offer is not mandatory but it is a great opportunity to learn lifelong skills for the future.

What is Independent Travel Training?

Independent Travel Training supports children and young people to get more out of life through learning new skills and building their confidence. The programme teaches individuals how to travel a specific route on their own in a safe and responsible way. It aims to increase their independence to enable them to access future learning, training, employment and social opportunities.

It is a free service offered to children and young people with Special Educational Needs (SEN) who are eligible for travel assistance from the Council (visit the Cheshire West and Chester website for information about travel assistance eligibility for SEN: Special Educational Needs (SEN)/Disability | Cheshire West and Chester Council) and have access to a suitable public transport route.

For more information, you can download a leaflet about Independent Travel Training for children and young people.

What are the benefits of Independent Travel Training?

The ability for the trainee to travel on their own
The use of sustainable forms of travel (such as walking, cycling and public transport)
Increased independence, confidence and self-esteem
Access to future learning, training and future employment opportunities
Increased opportunities to participate in social and leisure activities
Improvement in personal health, well-being and quality of life
Less reliance on family and friends

What does Independent Travel Training involve?

Independent Travel Training aims to increase individuals’ independence to help them access future learning, training, employment and social opportunities.Independent Travel Training is tailored to the individual and could include:

Journey planning and how to use timetables
Personal safety and road safety
Public transport skills including how to buy tickets
Using technology to support independence
Emergency procedures

If you would like your child or young person to receive Independent Travel Training and support to enable them to travel on their own, you should discuss this with your key worker or allocated social worker.

Further information

If you want to know more about Independent Travel Training, please contact: Independent Travel Training Team, Cheshire West and Chester Council.

Email: traveltraining@cheshirewestandchester.gov.uk

Tel: 0300 123 7039

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

SEND Scrutiny Report Approved: A Collaborative Achievement

jo.southall@hotmail.com (Joanne Southall) — Wed, 20 Nov 2024 16:37:14 GMT

We are excited to share that the Scrutiny Report on Special Educational Needs and Disabilities (SEND) has been approved, marking a significant step forward in improving outcomes for children and young people with SEND in Cheshire West. This report is the result of extensive collaboration, bringing together the voices of families, the Parent Carer Forum (PCF), council officers, schools, health professionals, and other key stakeholders.

The Role of Parent Carers in Shaping the Report

At the core of this review are the contributions of parent carers , whose dedication and insights ensured the report reflects the real experiences of families navigating the SEND system. Special recognition is owed to:

Cheshire West Parent Carer Forum (PCF) : Their 2024 survey provided invaluable data on the challenges faced by families, directly influencing the report’s recommendations and ensuring accountability measures. .
CWAC SEND Accountability Group : Their Meaningful Change document offered vital, community-driven recommendations that highlight the voices of families from across the borough.
Individual Parent Carers : Many families shared deeply personal and, at times, difficult stories during scrutiny sessions. Their contributions offered powerful insights into both the strengths and weaknesses of local SEND provision.

The Scrutiny Task Group greatly appreciated the effort and commitment of everyone who contributed to this report and emphasised the importance of continuing this partnership as improvements are implemented.

Key Findings and Recommendations

The report highlighted several pressing challenges, including:

Severe delays in EHCP processes , with compliance rates significantly below the national average.
Breakdowns in communication , leaving families feeling unsupported and overwhelmed.
Inconsistent inclusivity and support across educational settings, particularly during key transition periods .

Among the 45 recommendations , some of the most notable include:

Strengthening Collaboration : Establishing clearer communication mechanisms between the SEN Team, schools, and families, supported by accessible management structures and escalation policies.
Transparent Processes : Creating a clear roadmap for families to navigate the SEND system, simplifying EHCP processes, and implementing effective tracking tools.
Supporting Schools and SENCOs : Providing robust training and resources to empower schools to offer early and effective support for children with SEND.
National Advocacy : Lobbying the government to address systemic issues, such as increased funding for SENCO capacity and improved post-16 provisions, to alleviate local pressures.

A Milestone for Collaboration

This report serves as a testament to the power of collective effort. Families, professionals, and the Council worked together to identify challenges and recommend actionable solutions. Moving forward, the Task Group has committed to regular reviews to ensure these recommendations translate into tangible improvements.

As a Parent Carer Forum, we are committed to continuing our advocacy, amplifying the voices of our community, and working alongside professionals to see these recommendations implemented. While this report represents a significant milestone, achieving a truly inclusive SEND system will require ongoing effort, collaboration, and accountability.

Thank You to All Involved

We extend our deepest gratitude to every parent carer, professional, and organisation that contributed to this review. Your time, honesty, and dedication have been instrumental in shaping a brighter future for children and young people with SEND in Cheshire West.

You can access the full report and watch the People Overview Scrutiny Committee meeting via the links below:

• Read the full report here

• Watch the scrutiny meeting here

If you have any other questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Newsletter November 2024

jo.southall@hotmail.com (Joanne Southall) — Mon, 18 Nov 2024 17:03:03 GMT

�� PINS Project Now Underway in Cheshire West and Chester! ��

The Partnerships for Inclusion of Neurodiversity in Schools (PINS) project is now rolling out across England! The Cheshire West and Chester Parent Carer Forum (PCF) is proud to be part of the Steering Group and is working closely with 4 local schools: Little Sutton C of E Primary, St. Winefride’s Catholic Primary, Neston Primary, and Farndon Primary.

As a partnership approach, our goal is to strengthen relationships between schools and parent carers, helping create inclusive environments that support neurodiverse children. Each school has completed a self-evaluation on Inclusion and Neurodiversity, and parent surveys have provided valuable insights.

Together, we’re building a collaborative approach to enhance neurodiversity inclusion in schools. Watch some of the training our schools have participated in here:
• Re-Introduction to PINS
• Embracing Difference
• Understanding Needs

If you would like more information about the project, or if your child attends one of the PINS Project schools and you’re interested in getting involved, please email Vanessa Usai at secretary.pcf.cwac@gmail.com.

Thank You for Attending the Mental Health Forum! ��

We’re so grateful to the 70+ Parents/Carers and Professionals who joined us. It was a full day packed with valuable information and important conversations on mental health and communication. ��

Hope you found it useful and enjoyed the food! ��️��

Don't worry if you were unable to attend the event or would like to take a another look at the information from the professionals.
All the presentations from the event are now available on our website...

☕️ Here’s a recap of our Sip & Learn with IASS! ☕️

Thank you to everyone who joined us for coffee and a great conversation with IASS (Information, Advice and Support Service)! �� This event was a fantastic opportunity for parents and carers to learn more about how IASS supports families and collaborates with the Parent Carer Forum Cheshire West to advocate for the needs of our community. ��

Together, we’re making sure every voice is heard and every question answered. �� Missed the event?

NEW PCF School's Representatives Lead.

Hi, I’m Kate, and I’m delighted to share a bit about myself.
As a proud parent of a neurodivergent son, and being neurodivergent myself, our family has a deep love for life and nature. We also understand the unique challenges and complexities that come with being neurodivergent.

In July 2024, I joined the Parent Carer Forum (PCF) as the school representative for Whitby Heath Primary School in Ellesmere Port. Driven by a desire to help and support other parents, I strive to connect families with the services and community they need.

Recently, I’ve taken on the role of Lead School Representative, where I’ll be supporting all other PCF school reps, where we aim to foster a supportive environment for every family, ensuring that each child's needs are met with understanding and care.

�� Success Story: Cheshire West & Chester Parent Carer Forum Using Survey Data to Drive Change! ��

Lucy and Julie from Cheshire West & Chester Parent Carer Forum (CW&C PCF) recently shared how their bi-annual parent carer survey has made a big impact on building an inclusive SEND community in Cheshire West! ��✨

In a chat with Contact Associate Laura Burling, they discuss how the survey data has strengthened partnerships and influenced meaningful changes in the area. They’re passionate about inspiring other forums and proving that together, we can make a real difference! ��

Cheshire West and Chester Council are developing a new Short Breaks Commissioning Strategy that will set out a vision to provide short breaks for parents/carers with children/young people with Special Education Needs and
Disabilities (SEND). The vision is to create a supportive and inclusive environment where disabled children and young people can thrive while providing their families with an essential short break. They aim to commission high-quality short breaks that cater to the diverse needs of children and young people with disabilities, ensuring
they have access to enriching experiences that promote their development, socialisation and wellbeing.

They are gathering some initial thoughts and ideas from people with lived experience through a series of workshops for parents, carers and young people. They would welcome the opportunity to meet as many of you as possible to hear your experiences of short breaks, what works well, what needs improvement and your ideas for the future.

They are also engaging with children and young people, various providers, as well as colleagues from across the Council to ensure that we are discussing this as widely as possible.

Once this information has been gathered, they would welcome the opportunity to come back to parents/carers and young people to co-produce the Short Breaks Commissioning Strategy to ensure that it is fit for the future and reflective of your needs.

Find out more
To find out more about the current Short Breaks Commissioning Strategy, it can be found on the Live Well Website by clicking on the following link below: Short Breaks Commissioning Strategy 2021 - 2025 | Live Well Cheshire West

Get involved
If you would like to book on one of the face to face workshops, please click on the following link to book your place: Short Breaks booking form or call 0151 356 6558.

If you are unable to make one of the face to face workshops but would like to be involved in this, please contact
aiminghighfordisabledchildren@cheshirewestandchester.gov.uk to look at booking an alternative date and time.

Cheshire West and Chester Council are reintroducing Independent Travel Training this winter. Independent Travel Training is designed to give children and young people with Special Educational Needs/Disability the skills and confidence they need to travel independently.

It is a free service offered to children and young people with Special Educational Needs (SEN) who are eligible for travel assistance from the Council (visit the Cheshire West and Chester website for information about travel assistance eligibility for SEN: Special Educational Needs (SEN)/Disability | Cheshire West and Chester Council ) and have access to a suitable public transport route.

Take up of this offer is not mandatory but it is a great opportunity to learn lifelong skills for the future.

�� Join Us for a Coffee & Chat Drop-In Session! ☕️��
�� Topic: Short Breaks & Wraparound Care ��
Do you struggle with wraparound care or need a break from your caring role?
This session is for YOU! ��
Come along to:
��Learn about Wraparound Care: Support available outside school hours for SEND families, including after-school, weekends, and holidays.
��Explore Short Breaks: Find out how to access services that give you a break while your child receives quality care.
��‍♀️Ask Questions & Give Feedback: Your chance to chat with service providers and share your thoughts.
��Meet Other Parents & Carers: Enjoy a coffee and connect with others in a relaxed, informal setting.
We’re here to help you navigate support options! ��
�� Everyone is welcome! Let’s chat, share, and support each other! ��

FREE TRAINING OPPORTUNITY!

We are excited to offer a FREE online training course exclusively for our members and their families.

This is a fantastic opportunity to enhance your skills and knowledge.
Don’t miss out on this chance to learn and grow

PCF Event - Online
“Are you a parent or carer wanting to learn more about the SEND panel process? Join us for our Understanding Panel event!”
Details:
Date: Wednesday, December 11th
Time: 10:00 - 11:30 AM
We’ll cover:
• What is a panel?
• Types of panels
• Who sits on the panel
• How decisions are made
• Fit to Submit
FREE Zoom Event! All parents and carers are welcome!

SAVE THE DATES....

PCF Virtual Forums via ZOOM

Thursday 13th March 2025 – Zoom
Transitions and Pathways.

NEW!!! PCF BLOGS.....

In order to keep you up to date on all of the workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website.

�� Are you navigating the world of SEND? ��

If you’re a parent or carer feeling overwhelmed by the SEND (Special Educational Needs and Disabilities) system, Navigating the system is hard. Here to help is a few go to places to get you started �� This provides practical information, guidance, and support to help families understand SEND processes and services. ��✨

From services to support like Disability Positive, Cheshire Warrington Carers and Koloa to peer groups such as TinySteps, Space and Autism Cheshire. ��

Need help getting started? Contact us at contact.pcfcwac@gmail.com / message/ phone: 07900 840867 and we can get you on your way.

It's time to share your experiences with GP services in Cheshire & Merseyside. Your feedback will help improve access and services for all. Take the survey now.

NESTON AFTER SCHOOL CLUB
Our sessions take place at Neston Community and Youth Centre every Thursday
17:00 - 19:00
Join us for the following range of amazing activities:
Arts and Crafts
VR
Dance
Music
Board games & Chess tournaments
Biscuit & cake decorating
Sensory Play
Contact our bookings team to book your place!

Sadly, we know that schools are struggling to adapt to the needs of PDA children. It can feel overwhelming supporting a PDAer who is struggling in education if you can’t access any help.
In our School phobia/EBSA resource you can learn about alternative education, strategies for home support and accessing the right SEN provisions to ensure your child’s needs are met and understood.
Whether you're a parent, carer, or educator, this resource is packed with strategies, practical advice and recommended approaches to help you advocate for your child’s needs.

��
I'm so pleased to share that Cheshire and Wirral Partnership NHS Foundation Trust (CWP) is offering �� Cognitive Behavioural Therapy (CBT) group interventions for parents of anxious children this autumn!
These supportive and non-judgemental sessions are designed to equip parents with the tools they need to help children cope with anxiety—whether you're facing mild or severe cases. Sessions are tailored for different age groups and needs, including:
��-�� (�� ) for parents of school-aged children (6 to 14 years) with moderate to severe anxiety.
�� (��) for parents of primary-aged children (5 to 11 years) with mild to moderate anxiety.
The groups will help parents understand anxiety, teach coping strategies, and provide confidence-building skills that make a real difference in family life.
�� !
- Ellesmere Port & Winsford for Fear-Less (in-person)
- Online for Timid to Tiger

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Collaboration with Local MPs

jo.southall@hotmail.com (Joanne Southall) — Mon, 11 Nov 2024 22:18:03 GMT

Recently, Julie had insightful discussions with Samantha Dixon, MP for Chester North and Neston, and Esther McVey, MP for Tatton.

During her meeting with Samantha Dixon, Julie highlighted the role of the Parent Carer Forum within the National Network of Parent Carer Forums and shared the key findings from our PCF Survey. They discussed how these results can drive positive change in the borough, with a focus on placing SEND families at the forefront of decision-making. One critical issue raised was the lack of wrap-around and holiday cover for SEND families. Samantha has committed to working with us to ensure that SEND families in our community see meaningful improvements. ��

Julie also met with Esther McVey to discuss the challenges our SEND families are facing locally and how we can help drive positive change moving forward. Esther has agreed to regular follow-up meetings and expressed interest in collaborating with our counterparts in Cheshire East Parent Carer Forum and Warrington Parents and Carers - Warrpac. Together, we are stronger! ��

Engaging with our local MPs is crucial because it ensures that the voices and concerns of our community are heard at the highest levels. By sharing the findings from our PCF Survey, we can provide our representatives with the data and insights they need to advocate for the issues that matter most to us. This collaboration is key to driving meaningful change and ensuring that local needs are prioritised in policy-making decisions.

More meetings are scheduled with MPs across the borough to continue advocating for the needs of our SEND families. We are dedicated to making sure every family’s voice is heard wide and far.

#SENDSupport #CommunityFirst #PCFSurvey #ParentCarerForum #ChesterNorth #Tatton #CheshireEast #Warrington #StrongerTogether #MakingADifference

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To read our 2024 PCF survey and report please

click below

Overwhelmed by the SEND system?

jo.southall@hotmail.com (Joanne Southall) — Mon, 11 Nov 2024 21:51:34 GMT

Disability Positive is here to stand by you through every step of your journey.

They offer a wide range of services designed to lighten your load and ensure that you and your child receive the care and support you deserve:

Advocacy: Let Disability Positive advocate on your behalf, ensuring your voice is heard in all situations.
Care Support Services: Help tailored to the unique needs of your family.
Community Connections: Helping you access funding and practical support for short breaks, giving you the respite you need.
The Buzz & The Sensory Hive: Spaces that provide enrichment and support, fostering a sense of community and connection.
Befriending Service: Building connections to prevent isolation and offer companionship

For more information on these services, visit Disability Positive

Services Archive - Disability Positive

Cheshire & Warrington Carers Trust is another invaluable resource dedicated to supporting carers through the emotional and practical challenges they face:

Carer’s Helpline: Available Monday to Friday, providing information, advice, and emotional support to carers.
Monthly Support Groups & Lunch Clubs: Opportunities to connect with other carers, share experiences, and take a well-deserved break.
Benefits Advice & Form Filling: Expert help with navigating the complexities of benefits applications, from Blue Badge to PIP.
Specialist Support: Tailored advice for parent carers and those juggling work with their caring responsibilities.
Social Events & Wellbeing Fund: Providing carers with the chance to unwind and recharge, with personalised breaks funded through their Wellbeing Fund.

Discover more about their offerings at Cheshire & Warrington Carers Trust

Cheshire & Warrington Carers Trust (cheshireandwarringtoncarers.org)

For families needing free, impartial legal advice, Information Advice Support Services (IASS) is a lifeline.

They provide confidential support to help you navigate the complex SEND landscape:

Legal Guidance: Understand your rights and the law surrounding school admissions, exclusions, and SEND provisions.
EHC Plans: Get the support you need throughout the Education, Health, and Care (EHC) assessment process.
Meeting Preparation & Advocacy: Empower yourself with expert advice and preparation for crucial meetings.
Resolving Disagreements: Assistance with mediation and tribunals to ensure your child’s needs are met.

Learn more about how IASS can support you by visiting IASS

More to explore

Discover the Local Offer: Your One-Stop -Shop Resource for SEND Support!

The Local Offer is here to provide essential information, services, advice, and support for children and young people aged 0-25 with special educational needs and disabilities (SEND) and their families.

What Can You Find in the Local Offer?

Getting Started: Find out where to begin your journey.

Parent/Carer Support: Resources and advice tailored for you.

Education, Health, and Care Assessments and Plans: Guidance on assessments and planning.

Early Years and Education: Support for early years and educational needs.

Health: Information on health services and support.

Social Care: Access to social care services.

Preparing for Adulthood: Resources to aid transition into adulthood.

Activities and Short Breaks: Fun and respite opportunities for families.

Funding and Finance: Financial advice and funding options.

Travel and Transport: Information on travel and transport services.

Explore all that the Local Offer has to offer here

Meet other parents-peer support

The best support in the world is connecting to other parents

Tiny Steps - Providing inclusive SEN sessions and activities for children and young people with additional needs. For children and families in the Northwich/Winsford area in Cheshire West and Chester.

Space - Providing accessible play and support to children with additional needs and their families.

Cheshire Autism Practical Support - If you think a member of your family may have an Autism Spectrum Condition, this site can give you information and support as you navigate your way through the emotional journey of life with a dependent who is going to need more help than an average person.

Down Syndrome Cheshire - We support people of all ages with Down syndrome to unlock their potential and lead happy and fulfilling lives by changing perceptions, creating opportunities and educating the wider community.

Koala North West

Facebook Groups

SEND Around Cheshire

Autism Cheshire

There is of course national support.

CONTACT - have a listening ear service and lots of resources for support. Including free workshops for parents

IPSEA - for free independent legal advice, information and support

Remember, you don’t have to navigate this journey alone. These services are here to support you every step of the way, providing not just practical help, but also the emotional backing you need to keep moving forward. Accessing one of these services open the doors for more. It can be overwhelming we at the PCF will help get you started.

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

SIP and Learn Coffee Event with IASS

jo.southall@hotmail.com (Joanne Southall) — Mon, 11 Nov 2024 13:22:03 GMT

Our recent Support, Information, and Participation (SIP) and Learn Coffee event, joined by the Information, Advice, and Support Service (IASS), was a wonderful opportunity to bring together parents, carers, and professionals committed to supporting children and young people with Special Educational Needs and Disabilities (SEND). For many years, our Parent Carer Forum (PCF) has collaborated with IASS to provide families with guidance and empower them in navigating the educational system. This event underscored our mutual goal: to equip parents and carers with the knowledge needed to make informed decisions about their child’s support and educational journey.

Empowering Parents with Information:

At the event, IASS highlighted the importance of empowering families to manage the SEND process confidently and independently. Their service provides unbiased information and support tailored to each family’s situation. IASS’s involvement in meetings is based on careful consideration of the family’s needs, not all families need direct meeting support and after pre-meeting phone support many families are able to navigate meetings independently or with support from others for example a friend or family member.

Throughout the session, IASS shared essential insights on several areas:

The SEND Code of Practice: IASS walked us through the SEND Code of Practice, which sets legal expectations for schools in supporting students with SEND. Parents were directed to this guide which offers detailed guidance on the roles and duties of schools and local authorities, and this parent’s guide summarising these responsibilities in a family-friendly format.
Support in Mainstream Schools: For parents new to the process, understanding what effective support looks like in mainstream schools is crucial. IASS introduced the concept of Quality First Teaching (QFT) —a foundation of good teaching practices to support pupils with SEND. IASS shared examples of how QFT can benefit children with specific needs, such as ADHD, and parents were encouraged to discuss QFT strategies with their child’s school. You can find more about QFT here
Funding and the Inclusion Framework: Funding for SEND support is often complex, but IASS explained the tiered system, which ranges from universal support to high-needs support. They highlighted the SEND Inclusion Framework, which outlines the various types of support and funding options available. This resource can help parents identify what level of support their child should be receiving for the needs they have, which can be found here .
The EHCP Process: IASS also detailed the steps involved in securing an Education, Health, and Care Plan (EHCP). This process of good practice as set out in SEND Code of Practice Includes the “Assess, Plan, Do, Review” cycle, which schools should follow to provide ongoing, tailored support. IASS emphasised the importance of working closely with the school’s Special Educational Needs Coordinator (SENCO) to ensure that a child’s needs are accurately identified and supported. In discussing the EHCP process, IASS emphasised the legal threshold that must be met to secure an Education, Health, and Care Plan. According to the SEND Code of Practice, an EHCP is required when a child or young person has special educational needs that cannot be met within the standard resources and support available in a mainstream school. The legal threshold is that the child must have needs that “require special educational provision to be made for them” beyond what is typically provided through regular SEND support. The process begins with an assessment, conducted by the local authority, to determine if the child’s needs are sufficiently complex or severe to warrant additional resources and specialised intervention. If the threshold is met, the EHCP becomes a legally binding document, outlining the specific support and services the child is entitled to receive. Parents can refer to the SEND Code of Practice for further details on this process and their rights.

Real Stories: Parents Share Their Experiences

One of the most valuable aspects of this event was hearing directly from parents at various stages of their SEND journey. These personal stories highlighted shared challenges and successes:

Delays in EHCP Issuance: Some parents expressed frustration over delays in issuing EHCPs due to the lack of Educational Psychologist which can impact timely access to necessary resources and support.
The Importance of SEND Registration: Several parents were surprised to learn that their child could be on the SEND register at school. They were also introduced to tools such as the SEND profile, and an Individual Education Plan (IEP)which tracks a child’s needs, involved professionals, and the support being provided. This profile can be an effective starting point for collaborative discussions with the school’s SENCO. You can view the SEND profile and other resources for SENCOs here .
- During the event, parents shared experiences around annual reviews and reassessments, highlighting the evolving nature of SEND support needs. One parent discussed how their child, who has been in a specialist educational needs school since early years, now seems to benefit more from a mainstream setting due to significant changes in their development. IASS addressed this scenario, explaining that when a child’s needs change drastically, as in this case, families may consider requesting a reassessment of needs to ensure the support remains relevant and effective. IASS emphasised that the annual review is a key opportunity to request such reassessments if there are concerns that current provisions are no longer suitable. They also noted that in urgent situations, if waiting for the next scheduled annual review is not feasible, an early review can be requested. This proactive approach helps ensure that the child’s educational environment aligns with their evolving needs, maximising their potential for success.
Leaving with Actionable Steps: Many parents expressed appreciation for the practical advice shared at the event. They left with a clearer understanding of the actions they could take to enhance their child’s support network and felt empowered to advocate for their needs.

Continuing the Journey: Resources and Support from IASS

IASS provides impartial, confidential information and guidance, ensuring families have access to the latest resources in SEND law, health, social care, and local policies. For those seeking help with upcoming meetings, IASS can also help parents prepare and, In some cases provide in-person support.

You can learn more about IASS’s offerings in their leaflet below
or get in touch through the following:

Phone: 0300 123 7001

Email: iasservice@cheshirewestandchester.gov.uk

The Parent Carer Forum (PCF) and Information, Advice, and Support Service (IASS) have a longstanding partnership focused on empowering families navigating the SEND system. Through collaborative events and ongoing joint efforts, PCF and IASS work together to provide parents and carers with essential guidance, ensuring they have the information needed to make informed decisions about their child’s support. While PCF advocates for the broader needs and priorities of the SEND community, IASS offers families individualised, impartial support tailored to their unique circumstances. This synergy allows both organisations to reinforce one another’s efforts, creating a supportive network that emphasises the rights and voices of families within the SEND landscape.

Together, IASS and PCF continue to support and empower the SEND community, and we look forward to more events that build knowledge, confidence, and a supportive network for all families.

Presentation and Resources from the event are available below:

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

PCF Mission, Vision and Values

jo.southall@hotmail.com (Joanne Southall) — Wed, 16 Oct 2024 19:15:18 GMT

Our vision statement reflects the core values and goals of the Parent Carer Forum (PCF). Here's what it means:

Compassionate and Inclusive Environment: The PCF is committed to creating a space where everyone feels welcome and valued, ensuring that all voices, especially those of parents and young people with Special Educational Needs and Disabilities (SEND), are heard and respected.

Empowerment and Respect: The PCF aims to empower individuals by ensuring their opinions and experiences are not just acknowledged but actively considered in decision-making processes. Respect is central to this empowerment, recognizing the worth and dignity of every individual involved.

Professionalism and Diligence: The forum's team of parent volunteers is described as professional and hardworking, meaning they approach their responsibilities with seriousness, dedication, and a commitment to high standards.

Driving Positive Change: The PCF is focused on making meaningful improvements in the lives of those with SEND. This involves being open, honest, and transparent in their actions and communications, fostering trust and clarity.

Collaboration and Accountability: Working together is key to the PCF's approach. They believe in collaboration, both within their team and with external stakeholders, to achieve their goals. They also hold themselves accountable, meaning they take responsibility for their actions and the outcomes of their efforts.

Inclusivity and Compassionate Support: The PCF promotes an inclusive environment where everyone’s voice matters. They encourage a compassionate approach, supporting each member of the community and ensuring that different perspectives and needs are considered.

Representation and Advocacy: The vision emphasises the importance of representing the diverse needs of the community. The PCF seeks to be a voice for parents and young people with SEND, advocating for their interests and working towards solutions that benefit them.

Commitment to Improvement: The statement concludes with a commitment to continuous improvement and making a positive impact. The PCF is dedicated to creating a better future by addressing current challenges and adapting to the evolving needs of their community.

Mission Statement: Here's a breakdown of the purpose and goals of what the PCF Mission statement means:

Voice for Parents and Carers: The primary goal of the PCF is to represent as many parents and carers as possible, ensuring that their concerns, needs, and perspectives are heard by decision-makers. The PCF serves as a collective voice for the community, advocating on their behalf.

Influencing Service Decisions: The PCF aims to impact decisions related to services for families with Special Educational Needs and Disabilities (SEND). By highlighting gaps or deficiencies in these services, the forum seeks to influence changes that better meet the needs of the community.

Providing Information and Signposting: A key role of the PCF is to offer valuable information to parents, carers, professionals, and voluntary organisations. This includes guiding them to the right resources, services, and support systems that can help them navigate the challenges associated with SEND.

Co-Producing Improvements: The PCF is dedicated to working collaboratively with local authorities, service providers, and other stakeholders to develop and improve SEND services. "Co-production" means they actively involve parents and carers in the process of creating and enhancing services, ensuring that the changes reflect the real needs and experiences of those they represent.

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Focus Group Update

jo.southall@hotmail.com (Joanne Southall) — Wed, 16 Oct 2024 15:56:18 GMT

We are thrilled to announce the completion of the position statement document from the significant research paper titled "Approaches to Supporting Autistic Children and Young People in Cheshire West and Chester." This comprehensive document has been agreed following consultation with various Education and Health staff and parent carers and autistic individuals. It aims to describe acceptable language and what helps autistic children and young people in our schools.

Background and Process

Dr. Kate Hughes recently met with the Parent Carer Forum (PCF) management group to present the initial draft of this paper. The discussion highlighted the need for a refined approach to ensure that the document meets its intended goals:

Promote Common Language: The paper supports the use of consistent and respectful terminology regarding autism across Cheshire West and Chester.
Framework of Good Practice: It outlines a framework of effective practice, based on information from the Autism Education Trust and Person-Centred Practice.
Common Approaches to Intervention: The paper describes the most frequently quoted approaches to intervention, briefly listing advantages and disadvantages as described in the research

The Role of Parents and Carer

The first presentation with the parent carer management group prompted further input from the wider community which led valuable feedback session with a group of parents and carers. This input was crucial in refining the paper to better align with the needs and expectations of the community. The revised draft was then discussed in detail during a focus group meeting, ensuring that the final version accurately reflects the collective insights and recommendations.

Additional Materials

To further support the dissemination of this important document, The PCF prepared a call-to-action letter. This letter emphasises the significance of the paper and will accompany it when sent to professionals in education, health, and social services. The aim is to underscore the importance of the document and encourage its use in practice.

Availability and Access

We are pleased to inform you that the final version of the paper will sit on the LiveWell site. This resource is designed to inform and support parents, carers, young people, and professionals in Cheshire West and Chester. We have requested that an easy read version should be created and will eventually sit alongside side the the paper. We will share this as soon as it’s done. This has been included in the School's Bulletin's next addition.

We like to thank Dr Kate Hughes for her time listening to parents carers, children and young people and autistic individuals throughout the process.

We extend our deepest gratitude to all the parents and carers who contributed their time and feedback. Your involvement has been instrumental in shaping this important document.

Thank you for your ongoing support and dedication to enhancing the lives of autistic children and young people in our community.

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Newsletter October 2024

jo.southall@hotmail.com (Joanne Southall) — Tue, 15 Oct 2024 15:33:14 GMT

Chairperson’s Statement

"It’s been a busy start to the school year, and your Parent Carer Reps have been working diligently to ensure your voices are heard both locally and nationally. We’ve met with several local MPs, advocating for much-needed changes to the national SEND system. Additionally, we’ve engaged with local councillors to share your concerns and request that the PCF survey be included in the official scrutiny process. We also had the opportunity to present the survey results and our recommendations at the inaugural SEND Summit. Rest assured, we will continue to represent your views and drive forward the changes that matter to you."

Reflecting on the SEND Summit 2024: An Inspiring and Collaborative Event
Yesterday, we had the privilege of attending the SEND Summit 2024, held on October 10th, which turned out to be an incredibly successful and impactful event. With 270 attendees, including parent carers, educators, local authorities, and healthcare professionals, the day was a testament to the commitment and passion of all stakeholders working to improve outcomes for children and young people with Special Educational Needs and Disabilities (SEND).

The event kicked off with a warm welcome from Cheshire West & Chesters Leader Councillor Louise Gittins, setting the scene for the day. This was followed by a presentation from Debbie Edwards, Head of Education and Inclusion on the national and local context of SEND, offering vital insights into the challenges and progress being made. We learned that over 1.6 million children in England have special educational needs, with a growing number of Education, Health, and Care Plans (EHCPs), both nationally and within the Cheshire West and Chester (CW&C) region.

A notable highlight was the "Fit to Submit" presentation, delivered by Gill Tyler , (Designated Clinical Officer) and Karen Cove (Senior Manager Education Access/ SEN Team and Specialist Teaching) , which focused on the importance of ensuring that EHCP submissions are comprehensive, clear, and child centred. This sparked lively discussions during the tabletop activities, where attendees shared ideas on improving quality assurance processes and ensuring that the voice of the child is always central to the submission process.

A key focus was the Neurodiversity Recovery Programme, which aims to implement a standardised, needs-led, early-help approach using the Portsmouth Model. This will require support across our nine Places/Local Authority areas, aligned to the profiling tool. To achieve this, a survey has been developed to conduct a gap analysis across the 9 dimensions identified in the Portsmouth Profiling Tool, assessed by age and stage, and across our 9 Places in Cheshire & Merseyside. All stakeholders to participate in the survey to contribute to this essential analysis. Support Offer Survey Link

Kevin Burns Send Attendance Advisor for the Department of Education introduced the concept of "Ordinarily Available" provision, a framework aimed at defining what should be available in schools to support SEND pupils before the need for an EHCP. His session included a Mentimeter activity, fostering a collaborative atmosphere as participants engaged in real-time feedback and suggestions on how to close gaps in provision and improve communication across the board.

A personal highlight was Julie Duff's moving presentation on the "Parents' Voice." Julie, representing the Parent Carer Forum, emphasised the importance of co-production and collaboration between parents, professionals, and decision-makers. Her presentation reinforced the message that effective SEND support is built on the collective input of everyone involved, especially families, whose lived experiences provide invaluable insight.

Throughout the day, attendees engaged in a series of networking sessions, interactive activities, and feedback discussions. The atmosphere was vibrant, with a genuine sense of community and shared purpose. Conversations were rich, solutions-focused, and grounded in a collective desire to ensure that all children with SEND receive the support they deserve.
The summit concluded with remarks from Councillor Adam Langan Cabinet Member for Childrens and Families in CW&C, who reinforced the importance of maintaining momentum and taking tangible next steps based on the discussions. As the event wrapped up with further networking opportunities, there was a strong sense of optimism and commitment to continue working together toward a better future for SEND provision.

In summary, the SEND Summit 2024 was an inspiring event that brought together a diverse and passionate group of individuals, all working toward the shared goal of improving SEND services. The turnout was fantastic, and the energy in the room was palpable. With such a wide range of stakeholders involved, including parent carers who play a crucial role in this space, the event highlighted the power of collaboration and the importance of putting the needs of children and young people at the heart of everything we do.

We are committed to keeping everyone updated on the progress and outcomes from the SEND Summit. Regular updates will be shared, including key actions from your feedback and developments like the Neurodiversity Recovery Programme and gap analysis survey. Stay tuned for more information as we work together to improve SEND provision.

PCF Survey - Council's Scrutiny Process - Update
SEND Scrutiny Process Update
We wanted to update you on the scrutiny process and the key issues you've raised. While the panel may not choose to review every issue we've put forward, rest assured that your concerns have been heard and are being taken into account.
Find out more in our latest blog!

Attention Parents and Carers!
Following the recent SEND Scrutiny Meeting we attended, the Chair is eager to hear from more parents about your personal journeys and experiences with SEND support.
We’re inviting you to join an online meeting on 22nd October from 10-11am to share your thoughts and help shape future services. Your voice matters, and this is a great opportunity to make an impact!
To register your interest, please complete the form using the link below.

Need help with the EHCP process?
Don’t forget to pop the 24th October in your diary We're here to support you!

Join us for the first Parent Carer Forum (PCF) Coffee Morning of the academic year at Down Syndrome Cheshire

Come along to connect with other parents and receive expert advice from the Information Advice and Support Services (IASS) Whether you're new to the EHCP process or need guidance, IASS provides impartial and up-to-date information on:

Education, health, and social care
National & local policy
Your rights & options
How to participate and find the support you need

Don’t miss out on this valuable opportunity to get the support you deserve. We look forward to seeing you there!

Mental Health Forum!
All SEND parents and caregivers welcome! Whether you can stay for the whole event or just pop in for a coffee, we’d love to see you there!
We’ve got an informative day planned with:
A range of services and charities sharing what’s available in the area
Information on support and services while waiting for appointments or assessments
Parent Support & Resilience training
… and of course, lunch and refreshments included!
This is a great opportunity to connect with other parents and carers while getting helpful advice and support for your children's & young people's mental health journey.

FREE TRAINING OPPORTUNITY!

We are excited to offer a FREE online training course exclusively for our members and their families.

This is a fantastic opportunity to enhance your skills and knowledge.
Don’t miss out on this chance to learn and grow

Join Us for a Coffee & Chat Drop-In Session!

Topic: Short Breaks & Wraparound Care

Do you struggle with wraparound care or need a break from your caring role?

This session is for YOU! ��

Come along to:

��Learn about Wraparound Care: Support available outside school hours for SEND families, including after-school, weekends, and holidays.

��Explore Short Breaks: Find out how to access services that give you a break while your child receives quality care.

��‍♀️Ask Questions & Give Feedback: Your chance to chat with service providers and share your thoughts.

��Meet Other Parents & Carers: Enjoy a coffee and connect with others in a relaxed, informal setting.

We’re here to help you navigate support options! ��

�� Everyone is welcome! Let’s chat, share, and support each other! ��

SAVE THE DATES....

PCF Virtual Forums via ZOOM

Wednesday 11th December 2024– Zoom
EHCP Mock Panel
How the process works and decisions are made.

Thursday 13th March 2025 – Zoom
Transitions and Pathways.

NEW!!! PCF BLOGS.....

In order to keep you up to date on all of th workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website. Take a look at our first blog about the importance of co-production.

�� Annual Health Check Update ��

Stay informed with the latest updates from the Project Support Officer for Cheshire West, Starting Well, and Learning Disability & Autism. Learn more about the definition of disability and the criteria for accessing Annual Health Checks.

Latest Updates for Cheshire Neurodevelopment Clinical Network and Cheshire & Merseyside Neurodiversity Program!

PCF CWaC are attending local meetings (Cheshire Neurodevelopmental Clinical Network) and regional meetings at the Cheshire and Merseyside ICB level.

Both PCF Cheshire West and East have been at the forefront, pushing for changes that matter most to families.

Your feedback and involvement has been and still is vital in shaping the future of support in our community.

We dive into the progress being made towards a more neuro-affirmative system across Cheshire and Merseyside. From streamlining pathways to innovative projects supporting families, there’s a lot happening and a lot to be done!

✨ Information Advice Support Services (IASS) ✨

Do you have a child or young person with SEND? IASS offers free, impartial legal advice to help you navigate the complexities of the education, health, and care systems.

Their confidential service provides parents, children, and young people with the advice and information needed to make informed decisions. Here’s how they can help:

⭐️ Listening & Encouragement: Empowering you to confidently express your views.

⭐️ Meeting Preparation: Trained staff ready to help you prepare for important meetings.

⭐️ SEND Support: Guidance on Special Educational Needs and Disability (SEND) support in schools/settings.

⭐️ School Funding & Provision: Information on what’s available and how it’s funded.

⭐️ Legal Advice: The law on school admissions, appeals, and exclusions where there is SEND.

⭐️ EHC Plans: Support throughout the Education, Health and Care (EHC) assessment and planning process.

⭐️ Health & Care Assessments: Guidance on your child’s health and care needs.

⭐️ Local Policy & Practice: Advice on local regulations and policies.

⭐️ Home Education & School Transport: Information on elective home education and school transport.

⭐️ Medical Needs & Attendance: Support for children with medical needs and advice on school attendance.

⭐️ Local Offer & Personal Budgets: Information on the Local Offer and advice on personalisation and personal budgets.

⭐️ SEN Law & Disability: Understanding and applying SEN Law, with help from independently trained staff.

⭐️ Resolving Disagreements: Assistance with mediation, tribunals, and more.

⭐️ Collaboration: Working with the parent carer forum, the local authority, and other organizations to ensure your voice is heard.

Don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook .

�� October is ADHD Awareness Month!��

Free Webinars! ��

Check out this helpful guide to understanding ADHD and gain insights into how you can support children with ADHD on their journey to success.

- ADHD burnout

- ⁠ADHD executive functioning

- ⁠ADHD dysregulation

- ⁠ADHD early years

And more!

FREE event in developing research projects on areas that people with lived experience said are important to them. This year’s focus is Growing Older with Intellectual Disabilities
Date: Friday 18 October 2024
Time: 9.30am-3.00pm
Venue: Crowne Plaza, Trinity Street, Chester CH1 2BD

Though at Café 71 the Spider Project talk about mental health everyday, today is a great prompt to have important conversations and be a little kinder to yourself
Don't forget they are here 10am-10pm everyday of the year in person or over the phone (01244 393139)

There's other support out there as well as Café 71

Their Vision

A world where Autistic parents are empowered, celebrated, and supported to thrive. We envision a society where their unique perspectives are valued, their voices are amplified, and their families flourish without judgement or barriers.

��

I'm so pleased to share that Cheshire and Wirral Partnership NHS Foundation Trust (CWP) is offering �� Cognitive Behavioural Therapy (CBT) group interventions for parents of anxious children this autumn!

These supportive and non-judgemental sessions are designed to equip parents with the tools they need to help children cope with anxiety—whether you're facing mild or severe cases. Sessions are tailored for different age groups and needs, including:

��-�� (�� ) for parents of school-aged children (6 to 14 years) with moderate to severe anxiety.

�� (��) for parents of primary-aged children (5 to 11 years) with mild to moderate anxiety.

The groups will help parents understand anxiety, teach coping strategies, and provide confidence-building skills that make a real difference in family life.

�� !

- Ellesmere Port & Winsford for Fear-Less (in-person)

- Online for Timid to Tiger

October Half Term sessions
Bookings are now open for our October Half Term sessions!
We will be hosting our 2024 Energise Spooktacular throughout the UK this coming October... Take a look at what some of our areas have in store

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

SEND Summit

jo.southall@hotmail.com (Joanne Southall) — Mon, 14 Oct 2024 10:36:29 GMT

We had the privilege of attending the SEND Summit 2024, held on October 10th, which turned out to be an incredibly successful and impactful event. With 270 attendees, including parent carers, educators, local authorities, and healthcare professionals, the day was a testament to the commitment and passion of all stakeholders working to improve outcomes for children and young people with Special Educational Needs and Disabilities (SEND).

Kevin Burns, SEND Attendance Advisor for the Department of Education introduced the concept of "Ordinarily Available" provision, a framework aimed at defining what should be available in schools to support SEND pupils before the need for an EHCP. His session included a Mentimeter activity, fostering a collaborative atmosphere as participants engaged in real-time feedback and suggestions on how to close gaps in provision and improve communication across the board.

The summit concluded with remarks from Councillor Adam Langan Cabinet Member for Children's and Families in CW&C, who reinforced the importance of maintaining momentum and taking tangible next steps based on the discussions. As the event wrapped up with further networking opportunities, there was a strong sense of optimism and commitment to continue working together toward a better future for SEND provision.

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Annual Health Check Update

jo.southall@hotmail.com (Joanne Southall) — Mon, 07 Oct 2024 08:39:58 GMT

Learning Difficulty is where you have a diagnosis of something like ADHD, dyslexia, dyscalculia or even autism. It does not stop you learning or coping with normal everyday life but it can make things harder and may impact on your mental health and wellbeing.

A Learning Disability is clearly defined as a significantly reduced ability to understand complex information or learn new skills, a reduced ability to cope independently which started before adulthood and has a lasting effect on development.

There are set criteria for meeting a Learning Disability, and a person must meet all 3 to receive this label:

Significantly reduced ability to understand new or complex information and to learn new skills (impaired intelligence)
A reduced ability to cope independently, i.e. impaired social /adaptive functioning
The above started before adulthood and has a lasting effect on development.

The legal definition of a Learning disability can be found here in NICE guidance

Keeping with the NHS guidance relates to the three areas:

Lower intellectual ability
Impairment of social or adaptive functioning
Onset in childhood.

Anyone with a Learning Disability aged 14 year or above can access an Annual Health Check at your local GP practice. GP’s offer this as an additional service and it is not something that they have to do, although in Cheshire West these checks are available. Please check via the NHS App or with Practice if the person in your care has the Learning Disability code listed on their records.

If you believe someone in your care should be registered with the GP as having a Learning Disability and the practice disagree, you can ask for advice from the local community Learning Disability Team run by Cheshire and Wirral Partnership Trust on 01244397222 or email cwp.westcldt@nhs.net

When I recently asked for feedback about your experiences of Annual Health Checks, concerns were raised about consistency and the quality of these checks. In the first instance, contact your local practice if you are unhappy about the Annual Health Check. However, there are several resources online to help explain what the checks should contain, and links are below which may help. These resources are also in ‘Easy Read’ for the patients themselves and Mencap have recently translated them into a variety of languages.

FROM MENCAP

Mencap launches new GP resources for Black, Asian and Minority Ethnic people with a learning disability | Mencap

https://www.mencap.org.uk/easyread/annual-health-checks

https://www.mencap.org.uk/advice-and-support/health/why-annual-health-checks-are-so-important-people-learning-disability

FROM THE NHS

Learning disabilities - Annual health checks - NHS www.nhs.uk

The most recent LeDeR report on the learning from avoidable deaths has noticed a slight improvement in the average life expectancy of those with a learning disability from 61.8 years to 62.9 years in 2022. If you would like to read the report, follow this link https://www.kcl.ac.uk/research/leder for both the full and easy read options. One aspect that was raised in the report was the quality of the Annual Health Checks and a national audit will be undertaken soon to understand what we can learn from each other about improving these checks.

Learning Disability Register leaflet

NHS England have just published an information leaflet which was made by family carers, people with a learning disability, people from charities and NHS staff, about the GP (doctor) Learning Disability Register.

The Learning Disability Register leaflet helps people think about whether their child or someone they care for could be considered to have a learning disability. If so, they should be on their local GP practice’s Learning Disability Register, to help them get the help they need. There are plain English, easy read and accessible versions of the leaflet in the link above.

This information can be used by staff in GP practices, health professionals, schools and colleges and charities, as well as parents and carers of children who have a learning disability.

In the meantime, in Cheshire West, we are working on generating a forum for the staff who are delivering these checks so we can share good practice, let them know about any training on offer, circulate the most recent guidance on delivery of Annual Health Checks and feedback anything we receive from the Parent Carer Forum in relation to the checks.

Please do not hesitate to get in touch if you have any specific queries about the checks to tracy.millington@cheshireandmerseyside.nhs.uk

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

Council's Scrutiny Process

jo.southall@hotmail.com (Joanne Southall) — Wed, 02 Oct 2024 09:31:17 GMT

The PCF represented your voices at Cheshire West and Chester's (CWaC) scrutiny process last week.

Our main purpose was to share your views and experiences with the panel whilst ensuring that the data from our latest survey was written into the scrutiny process to ensure that quantifiable measures are put in place to ensure that your voices are being heard.

The following topics are currently under consideration:

1. Wraparound Care & Short Breaks

2. Communication & Culture

3. Waiting Times

4. Compliance

5. PCF Survey Data

We will keep you updated on what the panel decides to scrutinise further and any actions that will follow from these discussions.

We would like to thank everyone who filled the survey out for use to provide a robust presentation for the task force to consider and for the third sector for their contributions to the presentation.

Thank you for your ongoing engagement and support. We remain committed to ensuring your voice continues to shape these important conversations.

Understanding the SEND Scrutiny Process and How Your Voices help Shape the Future

At PCF Cheshire West, we have always been committed to ensuring that the voices of parents, carers, and children are heard and acted upon. The results of our recent survey, which gathered critical insights from families navigating the Special Educational Needs and Disabilities (SEND) system, were presented during the public scrutiny process. This was a crucial step in holding services accountable and pushing for meaningful improvements within our community.

The Role of the Survey in SEND Scrutiny

The time and trust you placed in completing the survey provided us with more than just data; it gave us a powerful tool for action. The survey results were shared as part of the public SEND scrutiny meeting, helping to initiate thorough investigations into the key issues that impact families in Cheshire West.

The scrutiny process involved a range of "expert witnesses," including professionals, parent carers, and cross-party Councillors. Together, they will analyse the data in detail, allowing the scrutiny committee to ask informed questions and conduct a thorough inquiry into the most pressing issues affecting SEND families.

Key Challenges Presented to Scrutiny

We presented several significant challenges that families have been facing, including:

Communication Issues: Delays, lack of responsiveness, and breakdowns in communication between services.
EHCP Process: Frustrations with delays in assessments, refusals to assess, and lack of support during the Education, Health, and Care Plan (EHCP) process.
Access to Services: Long wait times and eligibility barriers that prevented children from receiving essential support.
Emotional Toll: The overwhelming stress and frustration families experienced due to the lack of adequate support.
Wraparound Care and short breaks: the lack of services for families with send children and young people.

The Scrutiny Process: Focus Areas

The scrutiny panel will review the key issues raised, and while not every concern may be selected for further investigation, we made sure your voices were at the heart of the discussions. Our primary goal was to present your views and experiences clearly, ensuring that the data from our latest survey was embedded in the scrutiny process. This helps establish quantifiable measures to ensure that your concerns are being heard and addressed. An example of how this can be done was presented to the panel.

CLICK HERE to see the presentation that we presented for more details.

We will keep you informed on what the panel decides to scrutinise further and any resulting actions that may follow.

Joint Efforts: Collaborative Action

We would like to thank everyone who participated in the survey, enabling us to present a robust case to the scrutiny panel. Furthermore we would like to thank are charities from the third sector for their input into the presentation presented at scrutiny. Your contributions help provide the evidence needed to advocate for change.

Thank you for your ongoing support and engagement. Together, we will keep working to create lasting improvements for all SEND families in Cheshire West.

To read our 2024 PCF survey and report please

click below

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

Join us and have your voice heard at any of our events in 2024/25...

What We Do

jo.southall@hotmail.com (Joanne Southall) — Mon, 30 Sep 2024 20:36:43 GMT

Here’s What We Do—and What We Don’t—at Cheshire West & Chester PCF

What We Do:

We Listen:

We’re all ears! Through our active social media platforms, focus groups, forums, and coffee mornings, we gather your thoughts, experiences, and concerns. These insights become the foundation of our work.

�� We Feed Back:

Your feedback matters! We regularly meet with our steering group to discuss what we’ve heard from you. We make sure your voices are echoed in all the right places.

�� We Co-Produce:

We work alongside the Local Authority on a range of important projects—from the SEND high needs review to the Autism/ADHD pathway. Our goal? To ensure that the policies shaping the future of our children and young people truly reflect your needs and aspirations.

❗ We Signpost:

We signpost families to the services that can help in their situation.

�� We Keep You Informed:

Transparency is key! We provide updates through our website, social media, newsletters, and meetings. Whether it’s through a regular report or a quick post, we make sure you know what’s happening and what’s being done on your behalf.

�� We Plan for the Future:

Every year, we gather our school reps to review what we’ve accomplished and plan for the year ahead. We focus on the themes that matter most to you, and yes—we even enjoy a lovely lunch while doing it!

What We Don’t Do:

❌ We’re Not in a Fight:

We believe in respectful dialogue. Engaging with the Local Authority in a direct yet constructive manner is how we make our voices heard. Confrontation and aggression don’t align with our approach.

❌ We Don’t Provide Services Directly:

Our role isn’t to offer direct support or services to families. We maintain our independence to critically assess the services that families use and need. Providing services would conflict with our mission to be an objective advocate.

❌ We’re Not a Protest Group:

Sitting down with decision-makers and clearly presenting our positions is the most effective way to achieve our goals. Co-production, not protest, is at the heart of what we do.

❌ We Don’t Advocate Individual Cases:

While we don’t take on individual cases, we do listen to your stories. When multiple families share similar experiences, it can highlight larger national issues. These stories help us bring attention to broader concerns in our ongoing dialogue with policymakers.

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see events coming up or to catch up on past events & presentations...

click below

Cheshire Neurodevelopmental Clinical Network and Cheshire & Merseyside Neurodiversity Program Key Updates and Progress

contact.pcfcwac@gmail.com (Sarah Nafisi) — Mon, 30 Sep 2024 15:48:12 GMT

PCF CWaC highlighted in our recent survey the emotional toll it taken on families around long wait times and concerns over eligibility and referrals process and having your child’s needs identified early by professionals.

Your voice is continuing to be feed into this process.

Coordinated Efforts Across Cheshire & Merseyside

The Cheshire & Merseyside Neurodevelopmental Network is becoming the central coordinator for neurodiversity work across the region. Despite the complexity of engaging at both local and regional levels, the network is streamlining efforts to ensure consistency. A crucial ADHD and Autism workshop held on July 15th emphasised the integration of health and education services, with a goal of developing a unified model by December 2024.

Portsmouth Model Influences Local Strategy

The Portsmouth model, which focuses on a needs-led approach rather than a diagnosis-led one, has been well-received as a framework for Cheshire & Merseyside. The Portsmouth Model is a needs-led framework that prioritises providing support based on individual needs rather than waiting for formal diagnoses. It allows for ** immediate interventions and adjustments ** in mainstream settings, particularly helpful during long waits for ND (neurodevelopmental) assessments. While complementing the ND pathways, it also offers valuable insights for paediatricians, aiding in diagnosis by providing a clear understanding of a child's developmental needs. This ensures that children receive timely, tailored support while awaiting formal diagnoses like ADHD or autism.

Challenges with Long Waiting Times & Transparency

The network acknowledges the long waiting times for assessments and is shifting its focus toward addressing immediate needs rather than solely waiting for diagnoses. The term “Waiting well” is under reconsideration due to mixed reactions from those with lived experiences, and alternative terminology is being developed. Additionally, there are significant disparities in how waiting times are communicated across service providers. For example, Cheshire and Wirral Partnership NHS Foundation Trust (CWP) makes its data publicly available on the MyMind website, while other providers like Mid Cheshire Hospitals NHS Foundation Trust (MCHT) and East Cheshire Trust (ECT) do not offer similar transparency. ECT currently has 120 patients on its waiting list with an approximate one-year wait time, while MCHT's wait time for Autism assessments is around 15 months. There are varying degrees of transparency in how waiting times are communicated across service providers. Efforts are being made to ensure more consistent and accurate reporting to provide families with clear expectations and timelines.

Innovative Local Practices

Cheshire and Wirral Partnership NHS Foundation Trust (CWP) is pioneering several innovative practices to improve the quality of Autism and ADHD referrals. These include close collaboration with schools, offering drop-in sessions for parents, and providing person-centred feedback after assessments. Additionally, new resources like guides and educational films are being developed with parents and neurodiverse children and young people to better support families and young people.

Reducing Inequalities in Service Delivery

The network is working to prevent inequalities across Cheshire by encouraging providers to share best practices and learn from each other. An upcoming all-day workshop will focus on unifying service delivery approaches, addressing disparities, and ensuring consistent support across the region.

Enhanced Communication and Information Initiatives

A new project, led by local parents and professionals, is underway to improve communication resources across Cheshire & Merseyside. The project, expected to deliver new materials by November 2024, aims to align professional practices with parental perspectives and ensure better information sharing with families.

Intersection of Mental Health and Neurodiversity

Recognising the growing complexity of needs, the network is dedicating time in each meeting to discuss the crucial link between mental health and neurodiversity. This focus will help in developing more holistic support strategies.

Next Steps and Local Focus

There will be a Cheshire East Place-based meeting and Cheshire West Place-based meeting established. Although some providers are shared across Places, there are needs, issues and data that need focus at Place-level to feed into Cheshire & Merseyside workstreams.

Place-focused meetings will address specific local needs, ensuring that these are integrated into broader Cheshire & Merseyside initiatives. The network is committed to maintaining transparency, improving communication, and reducing inequalities as it moves forward.

PCF CWaC

There is a wealth of work being undertaken at Place level and Cheshire & Merseyside level.

We will continue to feedback parents voice into these workstreams. PCF thanks the professionals for listening and acting up on the concerns that the PCFs from both West and East continues to highlight.

Furthers updated will be communicated.

If you have questions or want to share your experiences of the pathways, please do not hesitate to contact me,
Lucy Kennerley

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To read our 2024 PCF survey and report please

click below

Newsletter September 2024

jo.southall@hotmail.com (Joanne Southall) — Mon, 23 Sep 2024 15:28:48 GMT

Chairperson’s Statement

Now that the autumn term is well underway, we thought it was a good opportunity to bring you up to speed on the work that has taken place over the summer months and let you know of some key dates for your diaries for the rest of 2024.

Raising your voices with MP's
It has been a busy summer behind the scenes, ensuring we made the most of the Parliamentary summer recess to meet with as many Cheshire MPs as possible. So far, we’ve met with Samantha Dixon, MP for Chester North and Neston, Andrew Cooper, MP for Mid Cheshire, Esther McVey, MP for Tatton, Justin Madders, MP for Ellesmere Port, and Mike Amesbury, MP for Runcorn. We also have additional meetings scheduled with other Cheshire MPs.
The primary focus of these meetings has been to discuss the role of the Parent Carer Forum, how it aligns with the National Network of Parent Carer Forums, and to present the findings of the PCF survey. Our aim is to explore how these insights can drive meaningful change within the borough, ensuring that families with children who have Special Educational Needs and Disabilities (SEND) are prioritised in decision-making processes. We also raised the issue of the lack of wraparound care and holiday cover for SEND families.

SEND School provision
In 2019, Cheshire West and Chester conducted a consultation called the "High Needs Review," aimed at increasing school capacity for children with Special Educational Needs and Disabilities (SEND) across the borough. Following this consultation, the council has announced a significant expansion in school places for children with SEND. This includes the approval of 93 additional resourced provision places and 32 special school places.
In response to this announcement, the Parent Carer Forum (PCF) has been working closely with the council to address your questions and concerns. Please find attached a list of these questions, along with the council’s responses below.

PCF Survey - Council's Scrutiny Process

The purpose of a council's scrutiny process is to provide oversight, accountability, and transparency in local government. It ensures that decisions made by the council and its executive are effective, efficient, and in the best interest of the community. The key purposes of the scrutiny process include:

1. Holding the executive to account
2. Improving policy and services
3. Engaging the public
4. Ensuring value for money
5. Monitoring performance

Overall, the scrutiny process acts as a check and balance within local government to improve governance and decision-making.

The Parent Carer Forum (PCF) will be representing your voices at Cheshire West and Chester's (CWaC) scrutiny process later this month. We will present findings from the recent PCF Survey, which highlights key issues around communication, compliance, and culture. In addition, we will share feedback from various focus groups we’ve held, where concerns such as the lack of wraparound care and holiday provision have been raised.

As we are all getting back into the new school term we thought it was a good opportunity to remind our audience what the role of the PCF is.

What is the Parent Carer Forum?
The Parent Carer Forum (PCF) is a voluntary representative body, working tirelessly to ensure all children with SEND achieve the best possible outcomes.

Here's what you need to know:
Our Mission: We amplify the voices of parents and carers, working independently from local authorities and health services, yet closely collaborating with them to shape and improve services.
How We Operate: We're funded by a grant from the Department for Education, which supports our development and strategic involvement. As part of the National Network of Parent Carer Forums, we also influence decisions at a national level.
Our Leadership: Our Steering Group is a mix of passionate Parent and Carer volunteers, alongside professionals from Health, Education, Social Care, and more. This team ensures that your feedback reaches those who can make a difference.

#ParentCarerForumCWaC #SEND #CommunityVoice #MakingADifference

We are delighted that the results of the PCF survey are being taken seriously. The PCF have been asked to present the findings of the survey at the inaugural SEND Summit in October. The purpose of this summit will be to look at both the national and local context and consider how collectively we can work together to resolve some of the local challenges.

We will be specifically looking at the issue of communication with parents.

The audience will included SENCo's, CWaC counsellors, Governors, Head teachers, NHS staff as well as the Education team and us - the parents who have then most important voice of all!

You DO NOT need to book for this event, come along and join us for a coffee!

SAVE THE DATES....

PCF Virtual Forums via ZOOM

Wednesday 11th December 2024– Zoom
EHCP Mock Panel
How the process works and decisions are made.

Thursday 13th March 2025 – Zoom
Transitions and Pathways.

Thursday 28th November 2024 – Zoom
Parent Training.

Thank you for everyone who joined us for our AGM on the 3rd July 2024
Don't worry if you missed it, the AGM PowerPoint (PPT) presentation and Annual Report are available via the link below....

PCF BLOGS..... In order to keep you up to date on all of th workstreams we are attending to ensure that your experiences are heard we are creating a new BLOG area on our website. Take a look at our first blog about the importance of co-production.

�� Co-Production: Shaping the Future Together ��
As highlighted in our latest survey, - CLICK HERE TO VIEW SURVEY - our top priority is hitting the reset button on the Co-production Charter between parents and stakeholders.
Co-production is at the heart of parent carer participation. It means that parent carer forums play an integral and equal role in the decision-making process. We’re fully engaged in shaping, developing, implementing, and evaluating the services and systems that impact our children. ��
�� Why Co-Production Matters
Evidence shows that partnerships built on co-production often make the best use of time and resources, all while improving outcomes for disabled children. ✅
�� Moving Forward Together
We’re excited to collaborate with parents and professionals to create a new Co-production Charter that meets the unique needs of Cheshire West and Chester’s families of children and young people with SEND. ��

Exciting News from Our PCF Rep!
We are thrilled to share a series of videos that our PCF representative has helped co-produce alongside talented young people and adults with learning disabilities, all about getting involved at Cheshire and Wirral Partnership NHS Foundation Trust (CWP)!
This collaborative project includes a short animation where the participants wrote the script, drew the illustrations, and even voiced the characters! It’s a fantastic example of creativity and teamwork, and everyone truly enjoyed the process.
Let’s celebrate their hard work !
#CoProduction #SENDVoices #OurVoiceMatters #LearningDisabilities #Community

Our Voice Matters is a series of videos coproduced with Young People and Adults with a Learning Disability about getting involved at Cheshire and Wirral Partnership NHS Trust (CWP).

For more information on getting involved in Children and Young People’s services please contact Claire.evans71@nhs.net
For more information on getting involved in Adult Learning Disability Services please contact l.gledhill@nhs.net

The Starting Well Service would like to hear about your experience of accessing the Service as a parent / carer.

Your feedback is anonymous and will be used to review and develop the Services on offer.

Please share your feedback using the link below. Thank you.

forms.office.com/r/VaKfkvdBZ8

Feedback form closes on 20th September 2024.

#Chester #ellesmereport #Neston #Frodsham #Northwich #Winsford #cheshirewestandchester

NHS England Learning Disability and Autism Advisory Group

The advisory group helps NHS England with work that affects people with a learning disability, autistic

people and families.

The group is made up of over 20 experts by experience which includes people with a learning disability, autistic people and family carers.

Members are used to speaking out and have lots of connections with local and national learning disability and autism groups.

Find out what the advisory group has been telling us and what we've been doing about it on You Said, We Did.

We are looking for autistic people, people with a learning disability and family carers to join our advisory group

NHS England Learning Disability and Autism Programme is looking for autistic people, people with a learning disability and family carers to join its advisory group.

We want members who can share their experiences of different health services and work with us to improve the health system.

We want to include members with links to groups and networks from all backgrounds and communities.

Shared on the behalf of NHSE Youth Forum and Youth Advisory Network

Incredibly exciting news! Here are the links for the NHS Youth Forum Surveys ��

Contact’s cutting the cost survey. It’s a chance for families across the UK to have your voice heard about the financial impact of having disabled children.

The survey looks at everything from extra costs to a parent carer’s capacity to take part in paid work.

What does the survey cover?

The survey includes questions on your energy costs, the impact of unsuitable housing and your experience of getting adaptations.

There are questions on the costs of assessments, equipment and therapies. There are also questions on the extra costs of having a child out of school due to their additional needs.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Inclusive Parks

jo.southall@hotmail.com (Joanne Southall) — Thu, 19 Sep 2024 18:42:19 GMT

Last September, a key discussion took place between Clark Chris Shaw, PCF representative Maylynda, Tiny Steps (a local SEND charity for all children with additional needs) , and other parents about the need for inclusive play areas.

The focus was on ensuring accessibility for all children, especially those with additional needs, to fully enjoy playground facilities. After securing funding, we were pleased to be included in the refurbishment of Belmont Play Area, with work set to begin in March 2025.

Co-Production in Action

Cheshire West and Chester Council recently installed a wheelchair swing at Marbury Country Park, marking a milestone in inclusive play. This achievement highlights the power of co-production—where parents, children, authorities, and organisations collaborate from start to finish to meet community needs.

What Co-Production Looks Like

Listening to the Community:

The Council actively engaged parents in discussions. Parents like Charlotte, a mother of a disabled child, contributed to Belmont Park’s plans and felt her ideas were valued.

Collaborating with Experts:

The Council partnered with PiPA PLAY, an organisation dedicated to creating accessible play areas, to assess various playgrounds for inclusivity improvements.

Making Informed Decisions:

PiPA PLAY recommended Marbury Park for a wheelchair swing due to its inclusive facilities. The Council acted on these suggestions, ensuring the right equipment was installed in the best location.

Feedback and Impact

Families like Charlotte’s were thrilled. She shared,

"Providing our children the chance to experience a swing, just like other kids, is profoundly moving."

Her son Oscar, who is non-mobile and non-verbal, spent 30 minutes enjoying the wheelchair swing, and the ease of access made a huge difference for their family.

Laura Clifton also expressed her gratitude:

"It’s wonderful to see progress that will benefit my daughter and other families in our community."

The Importance of Co-Production

Co-production ensures services genuinely meet the needs of those who use them, fostering ownership and inclusion within the community.

A Special Thanks!

Special thanks to Maylinda Gaunt, Laura Clifton, Charlotte Trow, and Tiny Steps for their invaluable contributions. This project demonstrates the positive impact of collaboration between parents, councils, and organisations.

Our PCF representative, Maylinda, will keep parents and the council informed on improvements, including updates on Belmont Park’s inclusivity efforts. Stay tuned!

If you have any questions, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see events coming up or to catch up on past events & presentations...

click below

Co-Production: Shaping the Future Together

jo.southall@hotmail.com (Joanne Southall) — Thu, 05 Sep 2024 21:18:13 GMT

As highlighted in our latest survey , our top priority is hitting the reset button on the Co-production Charter between parents and stakeholders.

Why Co-Production Matters

Evidence shows that partnerships built on co-production often make the best use of time and resources, all while improving outcomes for disabled children.

Learn More About Co-Production

In these videos, forums, local authorities, health providers, and commissioners share how co-production has improved services.

Dive Deeper into Co-Production

Read more about co-production in our Parent Carer Forum Handbook:

Moving Forward Together

We’re excited to collaborate with parents and professionals to create a new Co-production Charter that meets the unique needs of Cheshire West and Chester’s families of children and young people with SEND.

If you have any question about PCF, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see events coming up or to catch up on past events & presentations...

click below

Working Together for SEND Families

Wed, 04 Sep 2024 19:06:57 GMT

Our commitment to co-production means partnering with local experts - you, the parents and carers - to shape services based on lived experiences.

Partnering with Local Campaigners

Campaign groups play a vital role in raising awareness and advocating for change on specific issues.

To amplify our collective impact, we encourage campaigners to share the valuable insights and feedback they receive from parents with us. By bringing these concerns to PCF CWAC, we ensure they reach decision-makers who can drive real change.

The Power of Parent Voice

Your voice matters!

The insights you share guide our discussions with local authorities and service providers. We urge campaigners to share concerns and experiences they gather, so we can effectively represent the broader community. Plus, if parents need further support, we ask campaigners to signpost them to our forum, ensuring every voice is heard and every family gets the right support.

Supporting & Collaborating

While PCF CWAC doesn’t directly campaign due to funding and governance constraints, we support campaign groups by sharing information, raising awareness, and collaborating where our goals align. Together, we can achieve better outcomes for the families we serve.

Challenge

The PCF can challenge the Local Authority on issues related to SEND services and advocate for improvements, but it does not have the authority to hold the council legally accountable. The Forum's role is to provide feedback, raise concerns, and work collaboratively to influence positive change, while formal accountability mechanisms are typically the responsibility of regulatory bodies or legal systems.

At PCF CWAC, our open-door policy and commitment to co-production ensure we remain strong advocates for parents and carers. We invite campaigners to collaborate with us, sharing the parent voice so we can drive positive change at every level.

If you have any question about PCF, please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see events coming up or to catch up on past events & presentations...

click below

Newsletter July 2024

jo.southall@hotmail.com (Joanne Southall) — Sat, 17 Aug 2024 11:06:13 GMT

Chairperson’s Statement

It has been a challenging year, with many of our parent volunteers facing personal difficulties due to a flawed SEND system. Nonetheless, we are striving to effect change so future parents don't face the same issues. We've continued to amplify the voices of Parent Carers in Cheshire West. Our Parent Carer Forum (PCF) has grown by 15%, now reaching 700 members, mainly through our bi-annual survey and increased social media presence.
Despite challenges, we met our Action Plan commitments from last year's AGM report. We conducted three in-person forums attended by over 160 families, two online forums reaching 60 families, and held 20 coffee events with partner charities. Over 40 professionals participated in these forums to answer your questions, discuss plans, and provide resources. We also represented your voices at borough meetings, although we've faced frustration with the lack of progress and co-production, as reflected in our survey recommendations.

Vision Statement

We asked our PCF school, parent and Management reps, 3 words they would use to describe the PCF.

From these words, we crafted our vision statement that we feel reflects our values and vision.
At Parent Carer Forum we strive to create a compassionate and inclusive environment where every voice is respected and empowered. Our professional and diligent team of parent volunteers are dedicated to driving positive change through openness, transparency, and understanding. We stand with the parents and young people with SEND in the borough. We hold ourselves accountable to challenge and support each member, fostering an inclusive voice and encouraging a respectful and compassionate approach. By working collaboratively, we aim to improve tomorrow and represent the diverse needs of our community, ensuring that we make a positive change.

Catch up with our previous event...

Thank you for everyone who joined us for our AGM on the 3rd July 2024
Don't worry if you missed it, the AGM PowerPoint (PPT) presentation and Annual Report are available via the link below....

Sip & Learn Thursday 18th July at 10am - This event is open to all carers in the Cheshire area so please share on your own social media.

Jane Hudson from Co-op Estate Planning Advisory Team will be joining us in the DSC Hub next month
.They are specialists in legal, Estate and later life planning and can provide lots of valuable advice and assistance

.

You DO NOT need to book for this event, come along and join us for a coffee!

Summary 2023/24 Workstreams PCF Representatives have attended.....

Co CHAIR - REVIEW OF 2023/24
Short Breaks & HAF
Over the past year I have taken part in the quarterly contract review meetings for the Short Breaks service which includes Community Connections and Endorphins. I have met with the commissioners and the providers to look at how well the services are running, the data that they have gathered and the feedback from families. I have been able to ask questions and raise issues that parents have highlighted to us throughout the year at meetings and through the survey.

I was also part of meetings about the Holiday Activity and Food (HAF) SEND Winter and and Easter holiday provision, looking at applications along with the commissioners and trying to improve the communication/reach of the programme.

Partnership for Inclusion of Neurodiversity Steering Group (PINS)
I have been part of the Partnership for Inclusion of Neurodiversity Steering Group together with professionals from Health, Education and Social Care. We have been meeting for a couple of months now to plan the project and identify schools to take part. We have selected 4 schools that meet the criteria for the project and they have all agreed to take part. Each school has completed a 'Self Evaluation Form' where they have rated how well they think they are doing with many different aspects of Inclusion of Neurodiversity in their school and have identified areas where they would like to improve. The parents in each school have also been asked to complete a survey and have been invited along to a coffee morning that myself and Jo S have facilitated. It has been great to meet parents and talk and listen to them about their experiences. We will now work together with the Steering Group and each individual school to develop a bespoke plan of training and support for each school and each group of parents.

Learning Disabilities Partnership Board (LDPB)
I have attended several meetings of the Learning Disabilities Partnership Board (LDPB)that is made up of adults with learning disabilities, carers and professionals from Health and Social Care. The meetings have been a great way of learning about adult services and making contacts and it has been interesting to learn about the experiences of adults with disabilities and their carers. I have also been to some meetings of a subgroup of the LDPB that has been formed by professionals working with adults with Profound Intellectual and Multiple Disabilities (PIMD).

I have been part of the 'Wraparound Focus Group' with a range of professionals from the Local Authority. We have met several times this year with the aim of improving the access to wraparound care for children and young people with SEND, particularly those in special schools.

Internally, I've also been to meetings about Communication, School Reps, the Parent Management Group and Steering Group!

COMMUNICATING THE VISION WORKSTREAM

The workstream aim is to communicate the Inclusion Matters strategy with all key stakeholders in the borough. The Parent Carer Forum is integral to ensuring that parents voices are heard in the implementation of this strategy. We have received commitment from CWaC leaders that the results of the PCF survey will feed into the metrics that will measure the success of this strategy. We have also requested to have parents of children with SEND voices heard when schools/LA roll out the new Government School Attendance Policy in September ensuring that reasonable adjustments are in place for our families whose children struggle with attending school. We know how imperative it is that CWaC parents and children’s voices are heard when new national polices are rolled out.

Clinical Neurodevelopment Network Summary

The Clinical Neurodevelopment Network (CNDN) was established to review and standardise pre- and post-diagnostic support, pathways, and communication. The CNDN is made up of professionals including: - Autism and ADHD Clinical Lead, Mid Cheshire Hospitals NHS Foundation Trust - CYP Clinical Lead for Neurodevelopment services, CWP, Consultant Community Paediatrician, Countess of Chester Hospitals, Operational Manager, Bridgewater Community Healthcare NHS Foundation Trust, CwaC PCF and CE PCF representative.

Sub-Committee Work:

Reviewed all template letters from different providers.
Co-produced new template letters with the Cheshire West and Cheshire East Parent Carer Forums (PCF).
Examined referral acceptance/rejection letters.
Discussed support available while waiting for appointments, ensuring hidden waits in pathways are identified and communicated.

Communication Efforts:

The Clinical Network Communication Subgroup is currently paused. Contact is now leading the review and improvement of communication with individuals on the pathway for Cheshire East.

Funding and Projects:

The Cheshire and Merseyside Transforming Care Programme awarded non-recurrent funding to the Integrated Care Board in Cheshire East Place.
This funding supports improved communication and information initiatives for the local neurodiversity pathway.
Cheshire East Place is piloting this work, with a review at the Cheshire and Merseyside level, as part of broader efforts to standardise pre- and post-diagnostic support, pathways, and communication.
A waiting Well offer has been established in North Cheshire East and is reported to be going well by parent and carers.

Waiting Well Initiatives
To enhance these initiatives, members of the Clinical Network are asked to contribute to the waiting well offer by sharing existing training and drop-in sessions.
The goal is to organise our collective skills into a comprehensive waiting well initiative.
A meeting will be convened soon to coordinate existing offers, ensuring there is a clear, balanced offer for families without over- or under-utilising resources. Part of the Clinical Network’s remit is to make recommendations that address health inequalities across Cheshire. The Group agreed that the waiting well initiative needs to be rolled out across Cheshire. Work is ongoing in West Cheshire to agree standards and approach. A further update on this will be provided.

Cheshire West & Chester All Age Autism Partnership Board Update

The Parent Carer Forum is part of the Cheshire West & Chester All Age Autism Partnership Board, which works to improve the lives of Autistic people, their families, and carers. By coordinating efforts across the region, the Board aims to enhance the services and opportunities available to the Autistic community.

Purpose & Responsibilities:

The Board’s main goal is to make life better for Autistic individuals and their families by improving services and opportunities.
It supports and adapts the Government’s National Strategy for Autistic Children, Young People, and Adults (2021-2026) to fit local needs.
The Board values input from those with lived experience, ensuring they play a key role in shaping services.

Objectives:
- The Board aligns its work with the National Strategy’s six priorities:
1. Increase understanding and acceptance of autism.
2. Improve access to education for Autistic children and young people.
3. Support smooth transitions to adulthood for Autistic youth.
4. Boost employment opportunities for Autistic individuals.
5. Address health and care disparities.
6. Create appropriate community support.

Activities:
Develop and implement an all-age health and wellbeing autism strategy.
Track the progress of working groups focused on specific goals.
Work with other local groups to ensure a unified approach.

Governance:
The Board follows the 2009 guidelines for the Autism Strategy.
It regularly reports to the relevant governing body.
Members include representatives from healthcare, social care, education, and justice sectors, as well as individuals with lived experience.

The PCF look forward to working in partnership with the board and providing updates where possible to our families.

Focus Group Update..

Approaches to Support Autistic Children and Young People in Cheshire West and Chester- information for parent carers and professionals.
The research paper written by the Principal Educational Psychologist aims to promote consistent and respectful language regarding autistic individuals to avoid stigmatisation and to outline effective support strategies for autistic children and young people in schools and settings. The principal educational psychologist presented a position paper at the PCF management meeting, seeking feedback from parents and carers which prompted
the need to seek more parent carers views. After receiving substantial initial feedback, a revised draft will be discussed in detail during a focus group meeting. The final paper will be available on the LiveWell site for parents, carers, and professionals in Cheshire West and Chester.
We will share this when it is available.

We have set up a webpage where we will be sharing Summer holiday information. Any inclusive clubs and activities in CWaC we hear about, we will add on this page so please keep checking on the run up to end of term.

Exciting things are happening at Cheshire West Youth Service as they launch their Re-energised Youth Service that has been reshaped to match the emerging needs of the young people they support. They have opportunities ranging from entry level 3 hours , the new Youth Work apprenticeship qualification to Qualified JNC Youth Worker roles. They also have the new Youth Inclusion Role that will support their SEND young people ensuring no one is excluded from attending our Youth Work provision.

Our Roles are:
1 x Youth Service Senior Practice Lead
3 x Youth Worker
12 x Youth Support Worker positions
4 x Youth Inclusion Work positions

Would you like to be part of the Doctorate in Educational and Child Psychology Service User Group

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Recording and Documents from our AGM 2024

jo.southall@hotmail.com (Joanne Southall) — Thu, 04 Jul 2024 12:46:01 GMT

Watch our Annual General Meeting (AGM) from 3rd July

Thank you for everyone who joined us for our AGM.

The AGM Powerpoint (PPT) presentation and Annual Report are available below.

We presented our Survey Results and recommendations during the meeting. The full survey can be found here...

To catch up on other events and news, see our latest newsletters....

Survey 2024

jo.southall@hotmail.com (Joanne Southall) — Thu, 04 Jul 2024 09:56:39 GMT

We extend our heartfelt gratitude to parent carers who have taken the time to fill out our 2024 survey.

We understand the frustration of sharing lived experiences without seeing an impact. We have read hundreds of comments from survey participants, and each one has touched our hearts. We want to assure parent carers that their voices have been heard and fed back to leaders in the Council and the SEND Strategy Board. As a result, there is a commitment from those at the very top to address concerns working in equal partnership with parent and carers. We will keep members and the wider community updated as we take recommendations from the survey into actionable steps with professionals and key stakeholders.

PCF Survey 2024 Summary Report:

1. National backdrop

2. Demographics

3. Overall Themes

4. Comparison with 2022

5. New question analysis

6. Support

7. Co-production and culture

8. Conclusion

9. Recommendations

is available here...

Survey 2024 Results & Further Analysis

a full report of survey results is available to view here

click the button below to view...

You can view a full list of the questions used in our 2024 survey on the button below...

Thank you to all the parents and carers that completed our recent survey.

We will keep you informed of any work streams and service decisions influenced from your feedback.

If you need any question about our survey please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see other events coming up in 2024 or to catch up on past events & presentations...

click below

CWaC becoming a SEND inclusive borough

jo.southall@hotmail.com (Joanne Southall) — Tue, 18 Jun 2024 22:03:40 GMT

CWaC becoming a SEND inclusive borough and the work of the PCF to hear the voices of parents via our 2024 survey.

Our Vice Chair Kennerley Lucy spoke at the Council meeting in Winsford last night. She was there to talk about the work of the PCF and how we amplify the voices of our parent carers in Cheshire West. Speaking alongside her was Mary from Live Cheshire CWaC SEND Accountability and Jen Ifer a parent representative from Greenbank school. Cheshire West and Chester Council were proposing to pass a motion to become an SEND inclusive borough. The motion passed and an agreement to include the results of the PCF survey were included in the motion.

We would like to thank counsellors for passing this motion and look forward to implementing the recommendations of our report.

Lucy's Speech from the council meeting...

Good evening,

I'm Lucy, a proud parent of two children with special educational needs and disabilities (SEND). I’m honoured to represent the Parent Carer Forum (PCF) in Cheshire West and Chester.

We are a group of passionate parent carer volunteers, dedicated to ensuring the best outcomes for all SEND children and young people. We achieve this by working collaboratively with the professionals', ensuring co-production is at the heart of our ethos.

Recently, the PCF conducted a survey to amplify the voices of parent carers and their children, shedding light on their experiences, concerns, and challenges regarding SEND provisions in the borough. The survey revealed persistent communication issues, sparking a growing sense of frustration among families. It highlights the urgent need for collaboration, transparency, and empathy within the system. In response, we've recommended the establishment of a new co-production charter, enhancing staff training, and nurturing a culture of empathy and respect.

We thank leaders for their commitment to working with us in implementing our recommendations to address the challenges that our families endure.

We all acknowledge the widespread disappointment felt by SEND families in our borough. That's why today, we proudly stand in support of the motion to Become an Inclusive Borough.

This motion will enhance all our efforts to support individuals with SEND in our community. It reaffirms the PCF's recommendations, underscoring the importance of working in equal partnership with leaders from all sectors of SEND services. It demands ownership and accountability, enhanced accessibility, and better training for educators and professionals.

Together, we affirm our dedication to building an Inclusive Borough where individuals with SEND are not just included and valued, but truly supported.

I want to express my heartfelt gratitude to all our PCF volunteers who have dedicated themselves tirelessly over the years to advocate for the best outcomes for children and young people. They have done so, whilst balancing their own responsibilities and caring duties. Additionally, I extend deep appreciation to all parent carers who, on a daily basis, work tirelessly to champion the rights of their own children.

Finally, I’d like to thank the Council for supporting the cause to make Cheshire West and Chester an inclusive borough.

Thank you.

Thanks also to the parents reps and every parent who has trusted us with your stories over the years. Change doesn’t happen over night but with good relationships and a commitment to co production anything is possible.

You can watch the speeches below

Coverage from the meeting can be found in the Northwich Guardian

' Councillors back plan for greater SEND inclusion and support' ...

If you need any question about our survey please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see other events coming up in 2024 or to catch up on past events & presentations...

click below

Newsletter May 2024

jo.southall@hotmail.com (Joanne Southall) — Wed, 22 May 2024 18:29:49 GMT

PCF Survey Results May 2024

We extend our heartfelt gratitude to parent carers who have taken the time to fill out our 2024 survey. We understand the frustration of sharing lived experiences without seeing an impact. We have read hundreds of comments from survey participants, and each one has touched our hearts. We want to assure parent carers that their voices have been heard and fed back to leaders in the Council and the SEND Strategy Board. As a result, there is a commitment from those at the very top to address concerns working in equal partnership with parents and carers. We will keep members and the wider community updated as we take recommendations from the survey into actionable steps with professionals and key stakeholders.

PCF Survey 2024 Summary Report, Results & Further Analysis

a full report of survey results is available to view on the button below...

PCF In-Person Event

DON’T FORGET TO BOOK YOUR TICKETS
This event has a packed agenda including presentations from the …..
The Adult Social Care and Transitions Team.
Hall Smith Whittingham Solicitors (Wills and Trusts, Deputyships and Mental Capacity).
Transition to Adulthood from a Medical Perspective.
And so much more!
Follow our Facebook page to view the full agenda soon.
For all Parents and Carers of children/young people who have any Special Educational Needs &/or Disabilities (SEND) (no diagnosis needed)
If you cannot make it we can ask your questions on your behalf and get back to you with a response, please contact us Phone: 07900 840867
Email: contact.pcfcwac@gmail.com
Presentations from the day will be shared on our website after the event...

Did you miss the PCF March Virtual Forum?
Please use the link below to access the Recordings and presentations from our online forum:

You can hear about the following topics:

Short Breaks and Wrap-Around Care - Update.

EOTAS – Education Other Than At School - What is it?

With much more to come in 2024 don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

Discover Live Well Cheshire West.

SEN Managers.
In the link below you will find the roles and responsibilities (as of November 2023) of the SEN Managers. At the bottom of the page, you will find the contact details for the team.

Information, Advice and Support Service (IASS)

We have updated the Information, Advice and Support Service page on Live Well, so you can find out more about what the service provides as well as finding a wide range of information covering subjects including Special Educational Needs (SEN) Support, Education Health and Care Needs Assessments and Plans, Meetings, Choosing a New School, Disagreements and Mediation and much more.. To find out more information or to contact the service please click below...

What do we mean by Transition to Adulthood?

From Year 9 onwards your child’s school will encourage them to start thinking a lot more about their future, particularly about what job they may like to do and about how they might like to live. This might seem scary but there are lots of people who can offer information, advices and guidance to help you make your decisions.

Cheshire West and Chester Council's has the same aspiration for all children and young people (including young people with special needs) - that they achieve well in their early years at school and in college; lead happy and fulfilled life; and have choice and control.

Our newly updated Local Offer has now been updated to include information in one place which includes information on supported internships, college information, supported employment, education information and services, health services and information and social care information and services and case studies from young people. For more information please see the links below:

View our Pathway to Adulthood - Post 16 Options, Training and Employment

or View our Accessible - Pathway to Adulthood - Post 16 Options, Training and Employment by clicking below...

We are delighted to announce that the Contact Business Development team have some dates for online workshops for parents/carers of children aged 0 to 5 with SEND in ENGLAND. We would love it if you would share this information with any families who might find this useful. All of our workshops are interactive, so parents will be able to ask our very experienced and knowledgeable trainers all their most challenging questions! Or they can just sit and observe if they don’t like to speak up.

Subjects that we cover include Toilet Training, Sleep, Speech and Language, Social Communication, Money Matters, Education, Anxiety, Behaviour.

To find out more click on Early Years Workshops for parents and carers This link will be updated regularly as we add more workshops throughout the year, so do check again later if you can’t find what you want.

Are running a public consultation on their draft Adult Social Care Strategy, 'Enabling Great Lives'. Their 'Enabling Great Lives' draft strategy summarises how they plan to continue to improve Adult Social Care services over time and work with people in West Cheshire and all their partners to turn their ambitions into reality.

This intends to be an overarching strategy document which provides a framework for how services will be delivered.

The Russet School
Family & Toddler Sessions
Great fun today exploring different textures and giving new challenges a go!
Come along and join the fun – no need to book
Play based learning sessions for children with additional needs aged 6 months to 5 years and their families.
Every Friday morning at 9.30 – 11.00 term time,

at Victoria Rd Children's Centre, Neumann St, Northwich CW9 5UT

The Ice Cream Farm SEN Sessions

Mark your calendars for ...
Sunday 19th May
All dates are available to book here

Reasonable Adjustments Check List

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Newsletter March 2024

jo.southall@hotmail.com (Joanne Southall) — Thu, 21 Mar 2024 19:35:55 GMT

PCF February In-Person Forum - "Live Well" Live!

Live Well - Meeting the professionals behind the services that support your child/young person and an update from Gill Tyler on Cheshire & Merseyside – PINS Project 2024 - 2025

If you were unable to attend this event, please use the link below to access the presentations

SHORT BREAKS/WRAPAROUND CARE UPDATE FROM THE LOCAL AUTHORITY

We are very sorry to announce that the provider in the Ellesmere Port area who was due to provide SEND after school clubs and holiday clubs from the 1 ^st March has had to withdraw. We are disappointed and we are sure many of you are too. We are continuing our search for more providers in Ellesmere Port and across the borough to commission for this important work.

We will also continue to develop this area of service for children, young people and their families as part of our local delivery plan for the National Wraparound Childcare Programme which begins in September 2024 and aspires for all parents and carers of primary school-aged children who need it to be able to access term time childcare in their local area from 8am-6pm by September 2026.

For more information on the National Wraparound Childcare Programme please visit the following websites:

wraparound-childcare-guidance-for-local-authorities

and wraparound-childcare-guidance-for-schools

PARENTAL RIGHT TO REQUEST

Parents have a right to request that schools consider providing wraparound or holiday childcare for children from reception up to the end of key stage 3 (year 9) and up to age 18 for disabled children. You can make the request to the school your child attends.

If you would like to know how your school should respond to such requests here is a link to the guidance for schools: responding-to-requests-for-wraparound-childcare

TAX FREE CHILDCARE, TAX CREDITS AND UNIVERSAL CREDIT

You may be eligible for financial help with paying for childcare. Visit Childcare Choices for more information.

Thank you to the 369 people who completed the PCF 2024 Survey - this is an amazing response. We are now in the process of analysing your responses and will share the results with you in due course.
We have updated our database with our new members, if you are recieving this Newletter for the first time a "Very Warm Welcome"
Dont forget to follow us on Social Media and visit our website for the latest news and events.

Wednesday 20th March⋅10:30am – 11.30am

Virtual Meeting on Zoom:

At the meeting - You will get to hear about and have your say on the following topics:

Short Breaks and Wrap-Around Care - Update.

EOTAS – Education Other Than At School - What is it?

Chance to ask questions and listen to presentations from the Service Professionals.

To book your place please use the link below...

Wednesday 22nd May⋅10:00am – 2:00pm

At:

Holiday Inn, Cheshire Oaks

Lower Mersey Street Ellesmere Port CH65 2AL

At the meeting - You will get to hear about and have your say on the following topics:

Preparation to Adulthood

Supported Internships - What happens when my EHCP ceases?

Social care - Supported Living / Direct Payments

Transitioning to Adulthood services

Marketplace - Stands & Information on activities, groups and services in your area will also be available.

Free Parking, Free Lunch, Free Tea/Coffee & Cakes, Wheelchair Accessible.

With much more to come in 2024 don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

Go to our Easter Activities page for all the latest information on what is available over the holidays...

Click below to take a virtual tour of our incredible facilities!

Mercury College are proud to be hosting a one-day FREE TRAINING EVENT in Manchester for parents/carers of young adults with learning disabilities, often in association with autism and complex care needs including behaviours of concern, on the topic ‘Preparing for Adulthood’

Are you an Individual Employer of your own PA/carers?
Do you want to update your PA’s training or even add to it?
Then check out what we have organised for March – all training is FREE.
First Aid:
22nd March 2024 (Full day 9.30-4.30pm)
Manual Handling (9.30am-4pm)
11th March 2024
27th March 2024
Safeguarding (half day, am; 9.30-1pm) pm; 1pm-4pm)
5th March 2024 (pm)
19th March 2024 (am)
Good Employer Training (9.30-4pm)
13th March 2024
All training is in house at our head office in Northwich https://rb.gy/lt6uoz , though we also offer on-line training.
Our service provider can offer a variety of courses to cover all of your care needs.
Interested? Please email learning@disabilitypositive.org to book your place… but hurry places are limited.
Funded by Skills for Care

The Russet School

We are excited to announce our new Family and Toddler session. Play based learning sessions for children with additional needs aged 6 months to 5 years and their families.
Every Friday morning at 9.30 – 11.00 at Victoria Road Children's Centre, Neumann St, Northwich CW9 5UT.
No need to book just come along and join the fun!

The Ice Cream Farm SEN Sessions

Mark your calendars for ...
Morning Sessions (9 am - 11:30 am):
Sunday 11th February
Sunday 24th March
Afternoon Sessions (3:30 pm - 6:30 pm):
Sunday 21st April
Sunday 19th May
All dates are available to book here

Title of Webinar:
Social Care, Day Services & Volunteering

Date: Wednesday 27th March 2024
Summary of Content: Find out how to access support to help all young people with disabilities fulfil their potential and lead as independent life as possible. This webinar will look at care and support options including housing, day care, finance, volunteering, etc..
Speaker(s): Kath Hingston - Transition Team Manager (Social Care) and Denise Garner - Service Manager Vivo LD Day Services
Provider: Cheshire West and Chester Council and Vivo Care
Time: 4-5pm
To Join: Click here to join the meeting

Reasonable Adjustments Check List

NEW FEATURE.... Discover Live Well Cheshire West.
Your new look PCF Newsletter will take you into "Live Well".
Let us help you explore what's on offer.

SEN Managers.
In the link below you will find the roles and responsibilities (as of November 2023) of the SEN Managers. At the bottom of the page, you will find the contact details for the team.

Information, Advice and Support Service (IASS)

We have updated the Information, Advice and Support Service page on Live Well, so you can find out more about what the service provides as well as finding a wide range of information covering subjects including Special Educational Needs (SEN) Support, Education Health and Care Needs Assessments and Plans, Meetings, Choosing a New School, Disagreements and Mediation and much more.. To find out more information or to contact the service please click below...

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Newsletter December 2023

jo.southall@hotmail.com (Joanne Southall) — Thu, 11 Jan 2024 17:38:47 GMT

It's been a busy few months for everyone involved with the Parent Carer Forum, and we've thoroughly enjoyed meeting lots of parent carers and professionals at our different events. We started off the new academic year with a day of SEND Law EHCP training at Downs Syndrome Cheshire HQ. It was an extremely useful course and everyone who attended learned a lot. You can find the resources on our website. Both our Steering Group (made up of parent volunteers and SEND professionals) and our Parent Management Group have met to share experiences and plan ways of working together to improve the lives of our children and young people. Our volunteers are involved in a number of workstreams with Education, Health and Social Care and work hard to ensure that the parent carer voice is being heard. Our School Reps group continues to grow and this has provided us with another chance to meet with parent carers and hear their views. PCF volunteers and guest speakers such as Disability Positive have attended coffee mornings at Space in Chester and DSC in Northwich (you can find details of upcoming coffee mornings below) and in October we were delighted to welcome the Information Advice and Support Service and Cheshire and Warrington Carers Trust to our first virtual meeting of the year. In November we held our first in-person Forum meeting at Vicars Cross Golf Club in Chester. The event was very well attended and we were extremely grateful to all the parent carers who came along and to the members of the Local Authority Education team who presented. It was a very good opportunity to come together and learn from each other. We had a marketplace full of stalls where parents could chat to SEND professionals and we all enjoyed a lovely lunch together. We have lots planned for 2024, so please keep an eye out for updates on our website and on social media facebook.com/pcfcwac/ . If you have anything that you would like to share with us then please email us at contact.pcfcwac@gmail.com or come along to one of our events. Thank you for all your support and for getting involved, we wouldn't be a forum without you!

Wishing you all a very Merry Christmas and a Happy New Year!

We are delighted to be working in partnership with Down Syndrome Cheshire and Disability Positive to host a Sip and Learn coffee event on 14th December.

Come along to Sip and Learn on the 14th of December at 10am to catch up with other parents in an informal setting.
Cheshire and Warrington Carers are running this month's session. It is an opportunity for parents and carers to ask any questions about benefits you are applying for or receiving.
The session will run from 10am to 12pm.
No need to book. Just come along and have a chance to Sip and Learn.

Working Parents...
Are you a working parent/carer?
Does your child have SEND?
The PCF CWaC has ran a number of evening zoom virtual forums and focus groups to help support working parents, unfortunately the uptake on these has been low with only five parents engaging.
This is your opportunity to let us know what would work best for working parents.
How would you like to access our service?
What would you like to learn?
Please use the link below to complete our quick feedback form to help us help you.
In the meantime don't forget that all our virtual sessions are recorded and available through our website and on our YouTube Channel. (please use the link below to access them)

PCF EVENT - FEB 2024 - Live Well - Service Providers Introduce the Support Available for Children and Young People with SEND.

A FREE group for all Parents and Carers of children/young people
who have any Special Educational Needs &/or Disabilities (SEND)

Wednesday 7th February⋅10:00am – 2:00pm

At:

Hartford Golf Club

Burrows Hill Hartford CW8 3AP

At the meeting - You will get to hear about and have your say on the following topics:

Live Well - Meet the professionals behind the services that support your child/young person

PLUS - Mental Health Services - Update

Marketplace - Stands & Information on activities, groups and services in your area will also be available.

Free Parking, Free Lunch, Free Tea/Coffee & Cakes, Wheelchair Accessible.

November saw the first of our in-person Forums.
Thank you to everyone who attended: parents/carers, Professionals and the Marketplace. It was fantastic to see such a busy Forum with so many attending.

Disability Positive Live Cheshire Energise by Endorphins Cheshire and Warrington Carers Trust Information Advice Support Services , Live Well , The Autism Service , LD CAMHS , www.bamboo-discover.co.uk .

Don't worry if you weren't able to attend, the SEN Teams presentations are available to view on the link below...

With much more to come in 2024 don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

Fancy a cuppa, lunch and a chat with other parents? Come along to our Friday parent carer lunch in our centre from 12 till 2pm . Allergies are catered for too and no need to rebook.

At Theatre Porto we are committed to supporting children, young people and families who experience disability, neurodiversity or need additional support whatever the reason!

After a successful trial of Supported Visits during our last production we have decided to offer it again for our up-coming show Little Red. We are completely aware that each person has individual needs and so our Access Co-ordinator, Natasha, is here to hopefully enable everyone to comfortably engage with our Christmas Show!

SUPPORTED THEATRE VISITS – LITTLE RED

Saturday 9 ^th December @ 2pm

Monday 18 ^th December @ 4pm

Thursday 21 ^st December @ 10.30am

What is a Supported Theatre Visit?

A Supported Visit involves an individual phone call or email conversation with our Access Coordinator, Natasha, who can listen to concerns, answer questions and put the best support possible in place for your visit.

Some of this support might involve (but is not limited to):

-Access to a Performance Timeline & Sound Story - so there are no sudden surprises. Learning more about the characters and storyline of the play beforehand, especially for those who may struggle with worry or unknown outcomes. This can involve talking through particular moments in the play that involve loud sounds/ music or visual and lighting changes.

-Chance to visit the Venue & Theatre space before the show itself (with lights up) and a chance to explore the set and some props before the show.

- Seating- Talking through and reserving the best seating, including location within the theatre, any sensory seating needs , the opportunity to be seated before, or after, the rest of the audience (which ever is best/ makes the individuals experience more comfortable)

- The opportunity to enter both the Venue and the Theatre itself through a different door to avoid busy environments.

- Talking through any personal items a child or young person might need to ensure they feel safe and comfortable ( we will have some items to offer out as well).

- A 'Chill Out' space during the show if needed in our Cafe Workshop (another room on the ground floor of our building) where a live video feed of the show is available (so they don't miss out!)

Please find more information about Little Red and some images here:
https://theatreporto.org/little-red-live/

On our website you will also find more information regarding Accessibility here:

https://theatreporto.org/info-for-visitors/

And below is a link for our Social Story which you may find helpful as well:

https://www.theatreporto.org/access/socialstory/Social%20Story.pdf

--Please note--

Whilst our venue is described as ‘relaxed’ the light and sound in this production has not been adapted like you might typically see in a ‘relaxed’ show however we think our Supported Visits have so many benefits!

Any other questions/ enquiries please do get in touch

Autism Central Hubs

offer guidance to families, carers and personal assistants of autistic people. All of our sessions are run by Peer Educators. These are parents or carers of autistic people, who are happy to share their knowledge and experience with you. They offer group and one-to-one sessions to help you and other parents and carers find the information and services available in your area. Hubs may also run events such as workshops, drop-in sessions, coffee mornings or virtual meet-ups.

To access current events please use the link below....

This training is all free to attend for North West teams.
All NWTDT/ Pathways training is coproduced and will be co-delivered and is mapped against the capability frameworks for learning disability and autism.

The criteria for attendance at each workshop is on the relevant flyers.

Title of Webinar:
Going to College

Date: Thursday 25th January 2024
Summary of Content: Thinking about college; what options are available; how is a typical programme delivered; how are young people with SEND supported within a College environment.
Speaker(s): Cheshire College South and West, Warrington Vale Royal College, Coleg Cambria, Reaseheath College, Wirral Met College, Petty Pool College
Provider: The College Network
Time: 4-6pm
To Join: Come to Greenbank School, Greenbank Lane, Hartford, Northwich, CW8 1LD

------------------------------------------------------------------------------------------------------------

Title of Webinar:
Transport

Date: Wednesday28th February 2024
Summary of Content: How can the local authority support your child to access college and what can you do yourself to prepare your child for independent travel?
Speaker(s):Nicole Mellor – Transport Team Cheshire West and Chester
Provider: Cheshire West & Chester Council
Time: 4-5pm
To Join: Click here to join the meeting

------------------------------------------------------------------------------------------------------------------

Title of Webinar:
Social Care, Day Services & Volunteering

Reasonable Adjustments Check List

NNPCF and Contact's Working Together virtual joint conference update.

All recordings from our virtual conference are now available on Contact's website: https://bit.ly/ContactNNPCFconference

NEW FEATURE.... Discover Live Well Cheshire West.
Your new look PCF Newsletter will take you into "Live Well".
Let us help you explore what's on offer.

This month we are looking at SEN Managers.
In the link below you will find the roles and responsibilities (as of November 2023) of the SEN Managers. At the bottom of the page, you will find the contact details for the team.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

SENETA SEND Law Training for Parents

jo.southall@hotmail.com (Joanne Southall) — Thu, 23 Nov 2023 20:03:05 GMT

SEND Law Training Session

On Wednesday the 18th of October parent carers met at the Down Syndrome Cheshire HQ in Northwich to take part in a SEND Law training session.

The training was delivered by Claire Jackson from 'SENETA Ltd.' - Special Educational Needs Expert Training and Advocacy. Claire has 19 years experience in SEND which includes advising parents of children and young people with SEN and representing them at tribunal. The training session covered the process of applying for an EHC assessment to the final EHCP and the legal duty of Local Authorities and education providers and the rights of children, young people and their parents.

If you would like to view the slides from the training session, please use the link below...

Newsletter November 2023

jo.southall@hotmail.com (Joanne Southall) — Thu, 23 Nov 2023 19:53:15 GMT

Does your child/young person receive SEND Support or have an EHCP?
Are you in the process of apply for an EHCP?
Would you like the opportunity to understand how the SEND Team looks after its reshuffle?
Do you have any experiences of school exclusions you would like to feedback?
Would you like to meet the SEND Leadership Team?
If so, this is your opportunity to talk to the decision makers of additional support....
A FREE event for all Parents and Carers of children/young people who have any Special Educational Needs &/or Disabilities (SEND)
Wednesday 22nd November⋅10:00am – 2:00pm
At:
Vicars Cross Golf Club
Chester, Tarvin Rd, Christleton, Chester CH3 7HN, UK
At the meeting - You will get to hear about and have your say on the following topics:
SEND Team - Roles and Responsibilities
Attendance and Exclusion
Alternative Provision - What is it Marketplace - Stands & Information on activities, groups and services in your area will also be available.

Free Parking, Free Lunch, Free Tea/Coffee & Cakes, Wheelchair Accessible.

We are delighted to be working in partnership with Down Syndrome Cheshire and Disability Positive to host a Sip and Learn coffee event on 9th November.

Come along at 10 am to catch up with other parents in an informal setting and learn more about Advocacy. This session is aimed at parents/ carers across Cheshire who want to know more about where to get support.
Our partners at Disability Positive will be giving a presentation on how they can support you.
• Do you need support to say what matters to you and your child and understand your rights?
• Do you want to know more about Independent Mental Capacity Advocacy (IMCA)
• Are you worried about your Child turning 18 and knowing how best to advocate for them?
The session will run from 10 am to 12 pm, with the chat from Disability Positive taking place between 10.30 - 11ish. No need to book. Just come along and have a chance to Sip and Learn.
No booking required.

What a fantastic start to the 2023/24 academic year, we hope you have found Octobers Events both informative and an opportunity to meet other parents/Carers of Children/Young people with SEND.

October saw our first virtual forum of the year presented by IASS and CWCT as well as our one day parent training course on the SEND Framework.

With much more to come in November don't forget that you can keep up to date with the latest PCF news and signposting information by checking our website and following us on Facebook.

October PCF Zoom - Support (where do I go?)

Information, Advice and Support Service

Cheshire and Warrington Carers Trust

The First of our Virtual Forums for 2023/24 were presented by IASS and C&WCT, both presentations were very informative and received really positive feedback from those attending.
The recording of the Forum has been uploaded onto our YouTube channel, making it accessible for you to watch back at your leisure.

Parent Carer SEND Law Training Session

On Wednesday the 18th of October parent carers met at the Down Syndrome Cheshire HQ in Northwich to take part in a SEND Law training session. The training was delivered by Claire Jackson from 'SENETA Ltd.' - Special Educational Needs Expert Training and Advocacy. Claire has 19 years experience in SEND which includes advising parents of children and young people with SEN and representing them at tribunal. The training session covered the process of applying for an EHC assessment to the final EHCP and the legal duty of Local Authorities and education providers and the rights of children, young people and their parents.

If you would like to view the slides from the training session, please use the link below...

Fancy a cuppa, lunch and a chat with other parents? Come along to our Friday parent carer lunch in our centre from 12 till 2pm . Allergies are catered for too and no need to rebook.

STOMP STAMP

The STOMP STAMP team at NHS England have created a survey to find out people’s views and experiences about psychotropic medication.
Psychotropic medication is any medication that affects the mind for example, medication used to treat psychosis, depression, anxiety, sleep problems, ADHD and epilepsy.

The survey is for children, young people and adults who are autistic or have a learning disability, their families and carers. The information from the survey will be used to inform plans to improve how psychotropic medication is used – so people get the right medication at the right time for the right reasons.

The more people who complete the survey, the better informed our work can be.

NEW FEATURE.... Discover Live Well Cheshire West.
Your new look PCF Newsletter will take you into "Live Well".
Let us help you explore what's on offer.

This month we are looking at EHCP.
What is an Education Health Care (EHC) needs assessment?
How long will this take?
How to Request an Education Health and Care Needs Assessment.
To find out the answers to these questions and more .....

Click on the link below to enter "Live Well" and view the full PowerPoint presentation of the Early Years Road Map with links to useful resources

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Support (where do I go?) - Watch our October 2023 Event

jo.southall@hotmail.com (Joanne Southall) — Sun, 15 Oct 2023 08:33:47 GMT

Where do I go for Support?

Information, Advice and Support Service

Carers Trust – Parent Carer Support

Watch again - presentations from the Support Services on 11th October 2023.

For more information please email us at: contact.pcfcwac@gmail.com or call 07900 840867

To see other events coming up in 2023-24 or to catch up on other events & presentations...

click below

Endorphins Group Update

Wed, 06 Sep 2023 15:29:32 GMT

Endorphins Group Cheshire West & Chester Sessions

Endorphins Group run various activity sessions for our children and young people with SEND.

SESSIONS ARE FREE AND LISTED BELOW

Endorphins create engaging and inclusive group sessions where SEND children and young people can play, learn and build confidence. With themed activities, games and sports for all abilities, our safe and supportive sessions

are a great way to have fun, make friends and flourish.

If you have any feedback or suggestions on Endorphins groups or the Community Connections service - please contact us, we would love to hear from you. Thank you.

REGULAR GROUP SESSIONS & LOCATIONS

Click on the button below for a full listing of Endorphins upcoming sessions.

Chester - Saturdays & School Holidays

Saturday Sessions: Dorin Park School - Wealstone Lane, Upton, Chester CH2 1HD

The sessions will cater for two age groups (4-11 years & 12-18 years)on alternate Saturdays.

School Holiday Sessions: Vicars Cross Community Centre - Vicars Cross, Chester CH3 5LP

** NEW VENUE ** Ellesmere Port - Saturdays

From Saturday 9th September, Saturday Sessions will be held at:

Westminster Community Centre, Church Parade, Ellesmere Port CH65 2ER

4-11 years Saturday morning and 12-18 years Saturday afternoon.

Ellesmere Port - After School

After School Sessions: Whitby High School Sycamore Drive, Whitby. Ellesmere Port CH66 2NU

12-18 years.

Neston - Thursdays

Neston Community Youth Centre-Burton Rd, Little Neston, Neston CH64 9RE

The sessions will cater for two age groups (4-11 yers & 12-18 years)on alternate Thursdays.

Northwich - Saturdays

Lostock Gralam Community Centre - Stubbs Lane, Lostock Gralam, Northwich, CW9 7PU

The sessions will cater for two age groups (4-1 1 years & 12-18 years on alternate Saturdays.

Winsford - Saturdays & School Holidays

The Winsford Academy - Grange Lane, Winford CW7 2BT

Saturdays

School Holiday Sessions

Both cater for two age groups (4-11 years & 12-18 years) on alternate weeks.

To Book or for further information - contact their customer service team at: bookings@endorphins.uk

All sessions are listed on the website - click on the button below...

Video from the 2023 AGM

jo.southall@hotmail.com (Joanne Southall) — Tue, 11 Jul 2023 08:24:43 GMT

You can watch our AGM on our You Tube Channel

click on the link above to watch again.

Includes presentations from Julie Duff, PCF Chair

Carolyn Davies & Kerry Crowe, Transport

Angela Lewis, Wraparound Care & Short Breaks

Stephanie Lawley, Cheshire Buddies HAF Summer Holiday Offer

Newsletter July 2023

Sat, 01 Jul 2023 19:08:22 GMT

As our academic year draws to a close, this will be our last newsletter until September. Any news or information will be shared on our website and Facebook page over the Summer so keep checking for updates.

Next week will be our Annual General Meeting on Zoom, details below to book on. We hope to see you then, to share with you our results from the year and plans for next year.
CLICK HERE TO READ OUR ANNUAL REPORT 2023.

As the Summer holidays are drawing closer it can be an anxious time for some of our children and young people. We have links to some of the activities available over the Summer holidays, more to come at our AGM or on our website.

Thank you for all your valuable feedback, attendance at our events and your support over 2022-23 and we hope to see you all soon at future events.

The Parent Carer Forum parent voice and school network reps have met in person to look at what has been achieved by the PCF over the last academic year, and to make plans for the year ahead.

We discussed what has worked well and what we would like to do better next year and we came up with topics for our in-person and online meetings. It was great to get 14 volunteers working together and sharing ideas and experiences. Thank you to everyone who gave up their time to help us shape the future of the PCF! The next step is to set some dates and book some venues.

Look out for a new calendar of events coming soon!

Volunteers have been busy representing parent carers at the following meetings this month:
Parent Carer Forum Steering Group
School Transport Focus Group
SEN Team and Live Well Communications
Cheshire West Association of Special School Heads
SPACE coffee morning
Information Advice and Support Service Advisory Board
Profound Intellectual and Multiple Disability Subgroup
One Page Profile training
Learning Disability Partnership Board
Autism Assessment Services
Autism/ADHD pathway
Autism Video Parent Carer workshop

THANK YOU FOR YOUR FEEDBACK

Transport Focus Group - Conclusions
We spoke to 17 parent carers over 3 focus groups and received feedback from others via email. The main conclusions were as follows:

There were concerns about the training that some transport providers had and it was felt that some of the problems that have arisen were due to the lack of understanding of SEN and individuals' needs.
Those who were using a personal budget for transport were generally happy with the way the system works and appreciated the flexibility and control it allowed for.
Communication was not always effective and parents found it stressful if taxis were very early or very late to pickup/dropoff
Numerous changes in taxi drivers/escorts did not help children with anxiety and changes were not always communicated to parents
'Meet and Greet' beforehand did not always take place
Asking SEN children to sign a behaviour contract was inappropriate

We identified 3 'Quick wins'

One Page Profiles to be used by all providers
Easy read accessible documents for children and young people
Providers to text/call families if they are running early/late

Cheshire West and Chester Council want to make sure that when local people have a need for care and support, they also have as much choice and control themselves over this as they are able to.

Direct payments are cash payments that residents can receive instead of the Council arranging services for them. Having a direct payment gives the recipient more choice and control over the support they receive to meet their identified social care needs.

Sometimes current processes and the ways of applying for a direct payment have got in the way of people choosing this as an option. Therefore, CWaC want to hear from, and work with, local people to improve their approach.

The Council are hosting an event on 5 July - 5.30pm to 8.30pm at Storyhouse, Hunter Street, Chester, CH1 2AR

Bringing residents, Council officers, and other organisations such as community partners together, to review processes and make changes to improve them. There has already been lots of work to look at this and many local people have shared their experiences. These events will use this information to share what is happening now and to discuss what is working well as well as what needs to change.

To book a place use the link below or Tel: 07938 600 081 - places are limited to 30 per session and will be allocated on a first come first served basis.

If you are unable to attend but would like to share your thoughts or ideas, or if you would like more information about direct payments, please email, Nathan.Meech@cheshirewestandchester.gov.uk

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Reasonable Adjustments and Accessing pre-bookable A and E appointments

jo.southall@hotmail.com (Joanne Southall) — Tue, 27 Jun 2023 19:52:32 GMT

The Autism team have been working with the local A and E departments, 111 service and the commissioners to enable access to some pre-bookable appointments in A and E. We have also sent out a co-produced training pack to A and E departments to enhance staffs knowledge about reasonable adjustments and have made each trust aware of the reasonable adjustment checklist.

There are some pre-bookable A and E appointments each day for neurodivergent children and young people, bookable through 111 for injuries that would classify as minor injuries, in all A and E departments across Wirral and Cheshire (eg Countess of Chester, Leighton, Macclesfield and Arrowe Park hospitals). The time given is for an arrival time rather than the actual time you will be seen, as people are triaged and prioritised on clinical need, but a pre-bookable time will mean some of the waiting can be done at home. Due to the nature of major injuries, people with these would usually need to go directly to A and E to be assessed, however there are some pre-bookable appointments available too in terms of an arrival time.

A minor Injury is: an Injury less than 3 days old that is minor in nature, for example an injury to the arm or leg, eg cuts, lacerations, sprains, strains, and is not a fall from height or a dangerous mechanism (eg high speed collision).

A major injury is : any illness type presentation, eg fever, difficulty breathing, abdominal pain, headache etc. For majors, people usually need to wait on site in case of a sudden deterioration but in most circumstances any waiting can be done somewhere outside nearby, eg in a vehicle onsite. Please ask reception staff if this can be agreed by the nursing team as part of reasonable adjustments, and agree how the nursing/medical team will contact you.

Please bring any documentation of reasonable adjustments needed, (eg reasonable adjustment checklist or a hospital or health passport, or a one page profile or an all about me booklet, whatever you have) to advise staff of your needs . A Reasonable Adjustments Checkilist is available to download and complete below.

Newsletter May 2023

jo.southall@hotmail.com (Joanne Southall) — Mon, 19 Jun 2023 18:55:24 GMT

On Friday 28th April at Down Syndrome Cheshire the PCF held their first informal coffee morning where parents and carers were able to catch up with other parents and speak to local organisations.

Thank you to Little Lungs, Cheshire Buddies, Mathew Southall (Children's Therapies-Health, OT, Physio, SALT), Disability Positive and Carers Trust.

At each of our events through the year we will have people from education, health and charities.

Pop along so you can ask them any questions about accessing their services.

We also attended SPACE coffee morning on Friday 19th May, with Kola North West, IASS, Live Cheshire and Steamtistic. It was great to meet new families.

PCF Wednesday 24th May Forum

At our 'Mediation Services & Transition to Adulthood' forum we had presentations from a range of professionals. We had Suzie Franklin talking about mediation and how to access their services, we also had presentations from Annual Health Checks with Gill Tyler and Sean Donnelly, Paul Arista about Transition and Teresa King talking to us all about the Care Act. There was also time for the parents and carers who attended to speak to them during the coffee and lunch breaks and there was a lot of great sharing of experiences and information. Throughout the day, everyone got to attend the Market Place, which was a great opportunity for parents/carers to find out what they could access locally. We had Live! Cheshire, Livewell, Vivo, Derwen college, Pettypool college, Rooted & Booted, Danielle Ashley Activities Ltd IASS, CarersTrust.

As always, the forum was a great opportunity for parent and carers to meet and share experiences and we thoroughly enjoyed seeing everyone who came along.

Thank you to everyone who attended for all your feedback.

PCF reps continue to organise forums and focus groups to share your views and opinions. This month we had two successful online Transport Focus group were feedback was gathered from parents and carers about the issues they have had with transport over the past academic year. We would like to thank everyone who attended and for your feedback and we would like to invite you all to our online AGM meeting on Wednesday 5th July 10:30-12pm, where you can come along and discuss what you would like us to focus on for the next academic year.

Go to our EVENTS PAGE to book on our upcoming PCF events.

Monthly Meetings
Our reps continued to attend our monthly meetings, these range from meeting with Information, Advice and Support Services to attending Special School heads meetings.

If there is anything you would like to raise with us about any issues or concerns, then please get in touch:

contact.pcfcwac@gmail.com

For an update on Short breaks with Angela Lewis - Please CLICK HERE .

After a successful Forum in May the PCF and School representatives will be meeting in person to discuss future planning and events for the next academic year.

Our next upcoming event is our AGM. See What's On page.

Dates For Your Diary
All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

As we are now approaching the end of the academic year, schools and colleges are preparing for their 2024 intake. Here is a list of some of the planned college open days.

For further information and to book a place, please contact

Yvonne Johnson 01606 606694/0777322617

or email Cheshirewestcarersupport@makingspace.co.uk

Please click the link below to take part in the survey.

The annual health check survey
- aimed at children 14+

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Speech and Language Therapy Newsletter - May 2023

jo.southall@hotmail.com (Joanne Southall) — Fri, 26 May 2023 11:01:05 GMT

Download the SALT Newsletter on the link below.

New Paragraph

Check out PCF newsletters here.

Newsletter April 2023

jo.southall@hotmail.com (Joanne Southall) — Wed, 10 May 2023 21:48:30 GMT

We had a lovely first week back after the Easter break at SPACE coffee morning.

We are delighted to announce the next coffee morning this month, will be held on:

Friday 28th April at Down Syndrome Cheshire
It will be an informal session, where parents will be able to catch up with other parents.

At each of our events through the year we will have people from education, health and charities. Pop along so you can ask them any questions about accessing their services.

Children are welcome!

PCF Wednesday 22nd March Forum

At our 'Meet the Professionals' forum we had short presentations from a whole range of professionals working locally in SEND. They introduced themselves and spoke about what they do and how to access their services. There was also time for the parent carers who attended to speak to them during the coffee and lunch breaks and there was a lot of great sharing of experiences and information. We were also very grateful to Debbie Edwards, the Director of Education and Inclusion, presenting on 'One year on from the Local Authority SEND Ofsted Inspection'. As always, the forum was a great opportunity for parent carers to meet and share experiences and we thoroughly enjoyed seeing everyone who came along.
Thank you to everyone who attended for all your feedback.

A Roadmap to Special Educational needs and where to find support online forum

PCF reps continue to organise forums to share your views and opinions. This month we had a successful online forum presented by Emma Walker and Tracy Millington. Emma talked about the Roadmap to special education needs and how to navigate on LiveWell. Tracy talked about the new CATCH app and how it helps support families from early years. We also had Lucy from SPACE, talking about the support they provide and their upcoming events. Emma Meekin and Sarah Mcgrady attended to gather feedback from parents carers about the emerging needs of families with 0-5 year old children to capture lived experience for their assessment work.
We would love families to complete the survey below:

0-5s with SEND Emerging Needs Parent / Carer Survey

If you couldn't make this event, or would like to watch it again. Please find the link at the bottom of this email under signposting.

AGM
Our AGM is on Wednesday 12th July 10:30-12pm. If you would like to come along and discuss what you would like us to focus on for future events please click on the online booking link under events.

Monthly Meetings
Our reps continued to attend our monthly meetings, these range from meeting with Information, Advice and Support Services to attending Special School heads meetings.

If there is anything you would like to raise with us about issues or concerns, then please feel free contact:

contact.pcfcwac@gmail.com

After a successful Forum in March we have more fantastic events coming up for you to put in your diaries.
Please see below for more information on our upcoming events.

Dates For Your Diary
All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

We would appreciate your feedback on your personal experiences with Endorphins and Community Connections. Please click below to register your feedback.

Early Years Pathway & Introduction to Special Needs

Please click the button below to direct you to our PCF April online forum presentation.

Scan the QR code below to download the Catch app to your phone

Click here for the referral form

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

Early Years Introduction - 19th April 2023 - Recordings from the event

Wed, 19 Apr 2023 11:07:43 GMT

PCF Virtual Forum - 19th April 2023

A Roadmap and Introduction
to Special Educational Needs
– where to find support.

The slides from the presentations and the recording of the online forum are on the links below.

link for the 0-5's with SEND Emerging needs survey.

As discussed on the presentation - the survey link below for families to tell us their views on emerging needs 0-5 years to capture lived experience for our needs assessment work. We would love families to complete it:

0-5s with SEND Emerging Needs Parent / Carer Survey

PCF Newsletter March 2023

jo.southall@hotmail.com (Joanne Southall) — Thu, 30 Mar 2023 21:58:07 GMT

We have had successful coffee mornings at SPACE over the past few months. We are delighted to announce the next coffee morning, will be held On Friday 21st April at SPACE with Therapies and Services for Children.

There will be another one held on, Friday 28th April at Down Syndrome Cheshire in Northwich. It will be an informal session, where parents will be able to catch up with other parents.

At each of our events through the year we will have people from education, health and charities. Pop along so you can ask them any questions about accessing their services.

Children are welcome!

Parent Representative Meeting

PCF reps continue to attend meetings, to share your views and opinions. This month those meeting have included:
Transition for children with developmental trauma and triggers of going to High School.
PCF have organised Coffee mornings at schools with parents/carers, to get to know each other and share any concerns or anything else they would like to know.
PCF have organised and attended SPACE coffee mornings with other professionals, we have been discussing and arranging more for the future. The next ones will be held on:
Friday 21st April at SPACE
Friday 28th April at Down Syndrome Cheshire.

Transport
Transport will continue, for those people who want it to afterschool club as long as there is no additional costs. It is currently only for those parents/carers who have got it, transport are trying to find other ways to resolve this.

Steering Group Meeting
We hosted our bi Monthly Steering Group. A number of professionals attended and they updated us on the work that they are doing and how they would like parental input. Many of them will be attending our Forum on 22nd March. Don't forget to book your space.

North West Regional PCF Meeting
Cheshire West PCF are part of the North West PCF. We attended a meeting in Wigan to meet other PCF's to talk to them about the work that they are doing. Warrington PCF gave a presentation about the new Ofsted SEND Inspection Framework. Their region were the first in the country to be inspected under the new framework. Thank you Warrington for your insights.

Monthly Meetings
Our reps continued to attend our monthly meetings, these range from meeting with Information, Advice and Support Services to attending Special School heads meetings.

If there is anything you would like to raise with us about issues or concerns, then please feel free contact: contact.pcfcwac@gmail.com

After a successful Forum back in November, we have more fantastic events coming up for you to put in your diaries.
Please see below for more information on our upcoming events.

Dates For Your Diary
All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

PCF Newsletter February 2023

jo.southall@hotmail.com (Joanne Southall) — Mon, 27 Feb 2023 21:47:42 GMT

After a successful coffee morning last month at SPACE. We are delighted to announce the next coffee morning, which will be on Friday 17th February. It will be an informal session, where parents will be able to catch up with other parents. At each of our events through the year we will have people from education, health and charities. Pop along so you can ask them any questions about accessing their services. Children are welcome!

Third Sector Meeting

The PCF where delighted to run another successful third sector meeting, with 10 charities from across Cheshire, who all support parents and carers with children with SEND. The Charites shared their experiences and challenges that their families they are supporting are facing. Our next meeting will be held in June 2023.

Thank you to Down Syndrome Cheshire for hosting this meeting and for the fantastic tour of their venue.

Thank you to all the charities who attended:

School Rep Meeting

At the beginning of the month, we hosted our second School Reps meeting. It was great opportunity to catch up and to find out what has been working well and what hasn't been working well in schools across Cheshire. If you would like to become a school rep, please click on the link below.

Parent Representative Meeting

PCF reps continue to attend meetings, to share your views and opinions. This month those meeting have included:
Updates from the Director Education and Inclusion, Debbie Edwards and

Director of Children's Services, Helen Brackenbury.
Preparation for Adulthood looking at College Courses and gaps in provision
Meeting with Information Advice and Support to share common feedback from parents
Contract review of the short break services for Endorphins and Community Connections.
We also fed back about continued gaps in services that will be included in the Council perceived gaps report.

If there is anything you would like to raise with us about issues or concerns, then please feel free contact:

contact.pcfcwac@gmail.com

NHS Early Year Family Survey

We are working alongside the NHS to ensure that we are sharing your views and lived experiences.

If you could take 5 minutes to complete this survey to help improve the Early Years process we would appreciate your time.

After a successful Forum back in November, we have more fantastic events coming up for you to put in your diaries.
Please see below for more information on our upcoming events.

Dates For Your Diary
All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

School Refusal Resources...
The poster above is available, along with lots of advice and resources at Sunshine Support

CLICK HERE FOR LINK TO SUNSHINE SUPPORT RESOURCES

West and Chester's Policy on Emotional Based Schools - see below.

CLICK HERE FOR LINK TO CWAC RESOURCES

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

IPSEA- Call-in Helpline Tel- 0300 22 5899
https://www.ipsea.org.uk/Pages/Category/service-overview

CONTACT Advice Line -Tel-0808 808 3555
https://contact.org.uk/

Get Involved with the PCF....

PCF Newsletter January 2023

Fri, 20 Jan 2023 22:48:12 GMT

We are delighted to run our inaugural coffee event on January 20th in conjunction with SPACE. Everyone is welcome! It will be an informal session, where parents will be able to catch up with other parents. At each of our events through the year we will have people for education, health and charities pop along so you can ask them any questions about accessing their services. Children are welcome!

Following on from the feedback we have received about Transport this academic year. We are hosting 2 Transport Forums to gain your experiences so we can feed it back to the Transport Team.

Would you like to share your view? Are you free on 10th May @ 11am or 11th May @ 7pm.

If you would like to register your interest, please click here ...

Social Care and Direct Payment Focus Group
Thank you to Sarah Banks and Laura Stokes- Hughes for taking time to explain how families access Social Care and Direct Payments. If you were unable to attend the Forum but would like to watch it back, please click the link below

Social Care & Direct Payments Presentation

January Steering Group Meeting update
We held our first Steering Group of the year at the beginning of January. We were delighted to have a number of professionals attend and update us on key areas of work for 2023. We will keep you posted on these in forthcoming Newsletters.

Gill Tyler our Designated Clinical Officer updated us that Annual Health Checks for children with Learning Disabilities from 14+ are on the decline.

Did you know that your child is eligible for an Annual Health Check? If not then please contact your GP or Paediatrician to arrange one.

To find out more about annual health checks please click the links below.

Annual health checks | Live Well Cheshire West (cheshirewestandchester.gov.uk)

Annual Health Checks - Easy Read | Live Well Cheshire West (cheshirewestandchester.gov.uk)

Dates For Your Diary
Forums 2023

All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

Parent/Carer Engagement Meeting

The SEN Team will be writing to all hub users to ask them for feedback from the Education Health and Care Plan hub. They are looking to speak to parent/carer users.

The provisional date for this is 1pm on 27th January 2023. Cheshire West and Chester Council’s SEN Team are arranging this and registered Hub users will receive an email with further details in the near future.

Who Will Care After I’ve Gone?

Are you caring for someone with a learning disability or Autism living in Cheshire West & Chester?
It’s important to plan for their future when you are no longer able to care
This two day course offers you the knowledge and emotional support to prepare to plan ahead

To be held at The Salvation Army, Whitby Road. Ellesmere Port CH65 6RS
Monday 6 ^th February
Monday 13 ^th February
10.30 - 14.00

Professionals have been invited to share their expertise on Will Writing,
Trusts and Power of Attorney, Funeral Planning, Social Care and Supported Living and End of Life Care
A light lunch will be served where carers and speakers will have an opportunity to discuss topics in more detail and carers share experiences with fellow carers
Following the course, we offer individual support to plan and complete
‘My Preferred Priorities for Care’

CLICK HERE TO BOOK

CWAC Winter HAF Programme 2022 - Parent/Carer and Child feedback

Your child may have attended a HAF funded Christmas Holiday club, or may have received a HAF funded 'Lets Cook' recipe box or been offered a HAF funded family Christmas activity. We would really welcome your views on HAF activity that your child took part in at Christmas. This will help us make improvements going forward.
The form is anonymous so its okay to be honest.
The survey will take approximately 6 minutes to complete.

Thank you for your time.
(if you have children at different schools or children who attended separate clubs then please feel free to complete a separate form)

CLICK HERE FOR PARENT/CARER & CHILD FEEDBACK

We have just added the new Home to School Transport information pages to Live Well Cheshire West to try to help navigate to information you are looking for.
Click on the image above to find the following information which provides home to school transport information for children and young people aged 5-25.
This includes Important information, information about walking distances and hazardous routes, hardship and low income, special educational needs and disabilities and travel options and policy information.

As always if you can’t find what you are looking for please contact: emma.walker@cheshirewestandchester.gov.uk

January may often be seen as month of bad weather, dark days and the after-effects of Christmas indulgence, but here are five ways to lift your mood and improve your wellbeing with ease.

Rather than making life more of a struggle, the five ways to wellbeing are about making your life that bit brighter without having to make dramatic changes to your lifestyle.

There are 5 ways to Wellbeing. Explore the links by clicking on the image above to find out more about what is available in Cheshire West to help you achieve them.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

Social Care - Presentation & video from event on 18th January 2023

Wed, 18 Jan 2023 08:24:13 GMT

PCF Newsletter December 2022

Wed, 04 Jan 2023 15:06:05 GMT

Please feel free to bring children to these coffee events, it's an opportunity to catch up with other families with SEND. We will be inviting professionals to each event, so you will be able to ask them any informal questions.

Wraparound/Transport Focus Group
Parent volunteers are continuing to meet with representatives from the Local Authority to discuss the lack of wraparound care for children with special needs and disabilities. The group is also exploring transport options for children who want to attend wraparound care on other sites. We have attended 2 meetings this month to discuss options, this process has been delayed further by the recent bi- election in Cheshire. We will continue to keep you updated in New Year about progress that is being made.

Cheshire West Association of Special School Heads (CWASSH)
Our Vice Chair attended the CWASSH monthly meeting to keep abreast of challenges that the schools are facing and ensuring that the parents' voice is being heard.

North West PCF Team
This month Cheshire West PCF attends the National Network of Parent Carer Forum, North West meetings. This is an opportunity to learn from what other boroughs are doing and ensure that we can share best practice and share common issues that need raising on a national level.

IPSEA Training - EHC Plan Masterclass
Two of our Steering Group members attended the IPSEA Training for EHC Plan Masterclass - existing plans this month.
The training covered what a plan should look like, making the content specific, detailed and things to look out for when reviewing. Also what to do if you’re not happy with a plan, including requesting re-assessment and appeals process. It was a very interesting and valuable course, highly recommended.

Early Years Pathway
PCF Reps have been working alongside professionals in Health, Education and Social Care to help map out the early years pathway. We have been pushing to get a clear map on what to expect and where to go in those pre-school years. This pathway was signed off at the SEND Strategy board December meeting and will be ready to publish early in the New Year. Watch this space!

This academic years first 'in-person' Forum was held on November 23rd, with some great feedback from the professionals and questions from parents and carers.

The presentation from the event can be found here.
If you missed this event, we have more events coming up in 2023. The dates to add to your diary are below.

Dates For Your Diary
Forums 2023

All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

PCF Newsletter November 2022

Fri, 25 Nov 2022 17:08:28 GMT

Forums 2022

PCF CWaC are looking forward to welcoming you back to our In-Person Forums.

If you need any assistance attending this event or have any special dietary requirements then please email us at: contact.pcfcwac@gmail.com

or call 07900 840867

To book your place please use the link below...

We hope to see you there!

All new parents/carers welcome.

To see other events coming up in 2022/23 or to catch up on past events & presentations, visit our What's On page.

Steering Group
Parent volunteers and professionals from Education, Health and Social Care continue to meet regularly to discuss developments and changes and ways of working together to improve services.

Wraparound/Transport Focus Group
Parent volunteers are continuing to meet with representatives from the Local Authority to discuss the lack of wraparound care for children with special needs and disabilities. The group is also exploring transport options for children who want to attend wraparound care on other sites.

Complex Care Focus Group
It was very good to meet all the parents who joined our first Complex Care Focus Group. Thanks to those who gave up their time to come and share their experiences.

School Representatives
School Representative parent volunteers met via Zoom to share experiences. If anyone would like to volunteer to be a representative for their school then please email contact.pcfcwac@gmail.com

CWASSH
The PCF has been attending meetings with the Special School Headteachers

Communications Team
Meetings are ongoing between PCF representatives and the SEN team Communication Officer and the Live Well Website co-ordinator with the aim of improving communication with parent carers.

Improving Navigation on Live Well Cheshire West

You said: that it can be difficult to find services and information on Live Well Cheshire West

We did: Asked for your views looking at options to help improve finding services and information on the site. As a result of your feedback we are looking to add infographics/visual aids, improve categories, and search filters to help you navigate to what you are looking for.

We want: your help! Come along to our next Microsoft Teams meeting focus group meeting 7 ^th December at 11.00am-12:00 pm, give your views and tell us what you think about our new design.

To join the meeting on the above date please click here or for more information please contact me: emma.walker@cheshirewestandchester.gov.uk

Dates For Your Diary
Forums 2023

All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

Making Space is running a virtual 4 session course starting Tues 15th Nov - 10.30 until 12pm

This course offers you the knowledge and emotional support to prepare to plan ahead

Professionals have been invited to share their expertise on Will Writing, Trusts and Power of Attorney, Funeral Planning, Social Care and Supported Living, and End of Life Care

Perceived Gaps in Services

Gaps in services have been identified from the Parent Carer Forum Survey in December 2021. To view the report and our executive summary visit the Live Well page in the link below.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

November Forum 2022 - Presentation Slides

Thu, 24 Nov 2022 10:29:30 GMT

Thank you to all those who attended (parents/carers & professionals).

It was a successful event with lots of great speakers.

Click on the link above to view the presentation slides from the day.

To see other events coming up in 2022/23 or to catch up on past events & presentations, click below....

Little Lungs

Wed, 16 Nov 2022 15:18:14 GMT

Little Lungs is a new NHS funded service, raising awareness of respiratory conditions in children aged 0-5.

Providing information and support for parents/carers.
One to one phone calls, virtual groups, face to face meet ups at children's centres and baby groups.

to find out What's On for Parent/Carers at PCF click below

PCF Newsletter October 2022

Thu, 20 Oct 2022 10:29:37 GMT

Watch our September Forum
PCF CWaC were delighted to welcome our members back to our Virtual Forums, the September Benefits/Wills and Trusts Forum attained fantastic numbers and feedback.
Don't worry if you weren't able to virtually attend on the night, the recordings are now available on our brand new You Tube Channel.

Forums 2022

November In-Person Forum

PCF CWaC are looking forward to welcoming you back to our In-Person Forums.
The next In- Person Forum will take place in Chester.

Mental Health Services & Social Care Agenda

Marketplace - Stands & Information on activities, groups and services in your area will also be available.

If you need any assistance attending this event or have any special dietary requirements then please email us at: contact.pcfcwac@gmail.com

or call 07900 840867

To book your place please use the link below...

We hope to see you there!

All new parents/carers welcome.

To see other events coming up in 2022/23 or to catch up on past events & presentations, visit our What's On page.

Complex Care Focus Group
Does your child have complex healthcare needs?
(Including those with complex health needs, profound or multiple learning disabilities.)

Would you like to join our small Focus Groups?

Click here for more information.

Dates For Your Diary
Forums 2023

All our Forum events are listed on the What's On page, with lots of information about each event.

You can book online.

If you would like to be added to the newsletter circulation list, just send an email to the address below.

Dr Cathy Hamer - NW SEND Regional Network co-ordinator

Email: cwh01@hotmail.co.uk

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

PCF Newsletter September 2022

Thu, 15 Sep 2022 15:14:39 GMT

Message from the Chair - Welcome Back and Introductions....

We would like to welcome all of our families back from the recent summer break and take this opportunity to welcome 2 new members to our Steering Group and share with you our Steering Group Structure.
Joanne Cawley is Mum to James who has recently started a Hospitality and Catering course at Petty Pool College. Jo is taking on our Social Care Lead role and will be working alongside Annika Flower to represent your experiences.
I would also like to welcome Daniela Giaz, who is joining as our Health Lead working alongside Lesley Gledhill. Daniela is Mum to 2 children and has valuable lived experiences that she can share with our Professional Colleagues.

Julie Duff - Chair

Here is an outline of our 2022 PCF Steering Group.

Back to school can be a tricky time for our children with SEND.

We have had a lot of feedback that there have been significant issues with Transport this year. We have been working with the Transport Team to escalate these issues.

In the new few days we will be asking you for your specific feedback so that we can improve services and the experiences for our children with SEND in the Future.

Coffee & Catch Ups

In addition to our Forums, we are also planning some drop in coffee events across the borough. We are in the process of finding venues for these, so please keep an eye on our website for deatils. In the meantime, I encourage you to attend your School Coffee Events where we will have representatives there to support you. We now have PCF School Reps at most of our Special Schools and are looking for volunteers in our Mainstream schools. If you would like to help then please get in touch.

Our Next Event...

PCF CWaC are looking forward to welcoming you back to our 2022/23 events.
Our first Forum will be held on Wednesday 21st September 2022 .
We have listened to our members feedback, with making events more accessible for working parents being a common theme. As requested by you are first Forum will be held as a virtual evening forum covering the topics of Benefits and Will & Trusts .
We will be recording the session and the recording will be posted on our website for you to visit at your convenience. To book your place please use the link below...

Plans for next year academic year
We have a busy year of Forums planned. Please take a look at our schedule of both in person and virtual forums for the next academic year. In addition to this we will continue to work alongside our Professional Colleagues on consultations ranging from the navigation of the LiveWell website, after-school provision to the review of Community Paediatrics.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

Benefits, Wills & Trusts - Watch Again from Sept 2022

Wed, 07 Sep 2022 20:21:30 GMT

Click Here to Watch Again

PCF Newsletter July 2022

Mon, 25 Jul 2022 12:53:06 GMT

Message from the Chair

I wanted to extend my huge thanks to all of the parent carers out there who have helped the PCF grow over the last 12 months. To each and every one of you who completed our survey, attended our Forums and provided us with feedback. We have taken all of your comments and worked alongside the professionals to ensure that we continue to make things better for children and young people with SEND in Cheshire West.

I would also like to thank our fabulous parent volunteers who sit on our Steering Group, attend meetings and those of you who have recently joined us as School Reps. Without your dedication and hard work we wouldn't be able to achieve what we have this year.

Finally I want to extend my sincere thanks to Rob Robertson, our Vice Chair, who is stepping down from this role this year. He has been an incredible support to me and many others over a number of years - Thank you for all that you have done. Also welcome to Vanessa Usai who has taken on the mantle from Rob.

Please take a few moments to re ad what we have delivered this year and our plans for next. Please also spread the word to your friends and family who have children and young people with SEND so we can help support them too.

Julie Duff - Chair

Thank you to our members who attended the PCF AGM, If you would like to view the recording or read the Chair persons report please use the link above.

USEFUL CONTACTS....

Live Well Cheshire West - www.livewell.cheshirewestandchester.gov.uk

Information Advice and Support Service (IASS) - Tel 0300 123 7001 www.livewell.cheshirewestandchester.gov.uk/Services/1279

SEN Team - Tel 0151 337 6505
senteam@cheshirewestandchester.gov.uk

Starting Well - www.startingwell.org.uk/

West Cheshire 0-16 CAMHS Tel - 01244 393200
www.cwp.nhs.uk/services-and-locations/services/west-cheshire-0-16-camhs/

Get Involved with the PCF....

We are always looking for new parents and carers to join us. You can attend meetings, give feedback to influence the services your child or young person uses or help us to identify the gaps in services. Also, a chance to meet other parents and learn about what's on offer in Cheshire West & Chester.

email secretary.pcf.cwac@gmail.com
or join us for one of our meetings. We hope to see you soon!

PCF Signposting Newsletter July 2022

Fri, 22 Jul 2022 19:10:55 GMT

PCF Signposting Newsletter - July 2022 is now available to view or download.

PCF Newsletter June 2022

Fri, 22 Jul 2022 19:02:56 GMT

PCF Newsletter - June 2022 is now available to view or download.

PCF Newsletter May 2022

Fri, 22 Jul 2022 18:51:44 GMT

PCF Newsletter - May 2022 is now available to view or download.

PCF Signposting Newsletter May 2022

Fri, 22 Jul 2022 18:42:41 GMT

PCF Signposting Newsletter - May 2022 is now available to view or download.

PCF Newsletter April 2022

Fri, 22 Jul 2022 18:17:33 GMT

PCF Newsletter - April 2022 is now available to view or download.

PCF Signposting Newsletter March 2022

Fri, 22 Jul 2022 18:08:05 GMT

PCF Signposting Newsletter - March 2022 is now available to view or download.

PCF Newsletter February 2022

Fri, 22 Jul 2022 18:02:43 GMT

PCF Newsletter - February 2022 is now available to view or download.

PCF Signposting Newsletter January 2022

Fri, 22 Jul 2022 17:28:37 GMT

PCF Signposting Newsletter - January 2022 is now available to view or download.

PCF Newsletter January 2022

Fri, 22 Jul 2022 17:14:47 GMT

PCF Newsletter - January 2022 is now available to view or download.

PCF Newsletter November 2021

Thu, 21 Jul 2022 19:15:15 GMT

PCF Newsletter November 2021 is now available to view or download.

PCF Newsletter October 2021

Wed, 20 Jul 2022 19:11:40 GMT

PCF Newsletter October 2021 is now available to view or download.

Autism Hub Chester

Sun, 26 Jun 2022 14:03:07 GMT

At the West Cheshire Autism Hub, we provide free, personalised support to autistic adults aged 16 and above, as well as their family. This can be accessed whenever needed throughout their lifespan.

There are a number of areas of direct support offered by the West Cheshire Autism Hub, such as:

• helping alleviate loneliness and isolation

• encouraging self-advocacy and mentoring services

• autism specific advice and support, including pre and post-diagnostic support

• a variety of different activities and events.

WHAT TO EXPECT

Our staff team is made up of people with lived experience of autism and professionals with experience of working with autistic adults.
You can consult with our staff in a welcoming environment, whether that be at The Bluecoat or virtually.
We will help you identify the gaps and barriers you are experiencing to receive the support you need.
We will strive to make information we give you clear and concise, providing written information wherever possible.
We will be flexible in our approach and open to any reasonable adjustments you need.

WHAT WE DO

Consultation, working with you to identify the help you need.
Signpost to existing services offered by our partners.
Help you navigate the various services on offer.
Emotional support.
Autism specific bespoke services.
Support the wider autism community and families, such as parents, partners, siblings and grandparents.
Through peer connections, offer the unique opportunity to chat with other autistic adults in the relaxed and friendly environment of the Autism Hub.
Support the transition to adulthood as we have strong links with local schools and the University of Chester.
Offer pre and post-diagnostic support. Our post-diagnostic, six-week course, which explores issues relating to adult diagnosis, is in development.
Promote advocacy.

ACTIVITIES CURRENTLY TAKING PLACE

Helens artsy sessions entitled ‘getting to know me’ (taking place via Zoom)
Helens Christmastime artsy sessions (taking place via Zoom)
Claire’s cooking sessions
Virtual Reality (VR) – taking place at the hub on a Thursday

AGM meeting - Recording from 13th July

Thu, 16 Jun 2022 08:10:52 GMT

Watch our AGM from 13th July

held on Zoom

June 2022 Recording of our Online Forum for Carers Week

Wed, 08 Jun 2022 13:36:52 GMT

Our June Meeting for Carers Week included:

Introduction from Julie Duff our PCF Chair

Carer’s Trust - Laura Holden

Community Led Care and Carers Consultation – Steve Arnold

Rage Fitness & Wellbeing Company - Craig Brown

To watch again, please see the button below .

SeeAbility Newsletter

Wed, 08 Jun 2022 09:29:53 GMT

SeeAbility’s free functional vision assessment tool

Please see the link below to the SeeAbility latest Newsletter.

This includes a Functional Vision Assessment (FVA) tool that is an ideal resource to help find out useful information about a person’s vision.

The tool is easy to use and can be used with adults or children.

It is intended to be used by supporters of people with learning disabilities who know that person well, such as family carers and support staff.

Check out the PCF events coming soon.

Material from May 2022 - Sensory Processing & Updates from Services

Thu, 26 May 2022 15:31:02 GMT

Sensory Processing

Also:

The EHCP Hub

Sensory Processing

Community Connections Service

Endorphins Group

Ofsted Update

Event held on Wednesday 11th May 2022

This event was a chance to learn more about Sensory Processing from our expert at CWaC.

Mark Nixon - SEN Manager updating on the EHCP Hub. Disability Positive giving more information about 'Community Connections' service and how to apply for support. Also a talk about the Ofsted Inspection and plans following the recommendations.

April 2022 Online Forum - Watch Again and View Presentation: Ofsted Results & Recommendations

Wed, 27 Apr 2022 19:47:54 GMT

Recording and Presentation Slides from Thursday 21st April 2022 Zoom Event

Volunteer Training Resources

Fri, 18 Mar 2022 23:20:51 GMT

Parent Volunteer Workshops

We have received fantastic feedback from the Parent Volunteer Workshops in March.

Topics covered on the Training Sessions

Week 1 - Introduction to the PCF, Co-Production & Contact / IASS

Week 2 - SEN Support in Schools & EHCPs / 1 Page Profiles / Live Well

Week 3 - Communication & Preparing for Meetings / Health Services

Week 4 - SEN Team & Outreach Service / Autism Service

Week 5 - Commissioning / Social Care & Short Breaks

Week 6 - Mental Wellbeing

If you would like to know more about the PCF or think you might be interested in volunteering with us in the future, you can view the presentations from our March Training Sessions below.

March 2022 Online Forum - Presentation & Information

Tue, 15 Mar 2022 21:26:00 GMT

Mental Health Update

&

Introducing Endorphins

Recording From 9th March 2022

Listen again to our meeting which covers Mental Health and a presentation from The Endorphins Group, who will be starting Inclusive Children & Youth Groups in our area in Spring 2022.

Ofsted Inspection Update

Wed, 16 Feb 2022 14:06:00 GMT

Inspection of Cheshire West and Chester Council

from Monday 14th February to Friday 18th February 2022.

The PCF were invited to meet with the Inspectors this week, we wanted our parents and carers to have a voice and share their views on SEND Services for our children and young people.

We had an opportunity to share our survey results with the inspectors. Full analysis and a report will be produced and shared with our parents and carers in due course but in the meantime, here is a summary of the Overall Themes that came from the survey.

The inspectors have evaluated how effectively the local area:

identifies the needs of children and young people with SEND
meets the needs of these children and young people so that their outcomes and chances of participating fully in society improve.

You can read the full Ofsted Report here .

Any further news about the inspection will be shared on our website so please check our updates online or visit the LiveWell website for news.

For general feedback or to get involved and make a difference, contact us here

Our February 2022 Forum - Preparation for Adulthood - Slides from the presentations.

Wed, 16 Feb 2022 12:56:16 GMT

O ur face-to-face Forum was a success!

Great to hear about Preparation for Adulthood and Supported Internships in Cheshire West & Chester. Special shout out to Dom who shared his experience of a supported internship leading to paid employment.

Also great information from Gill Tyler (Designated Medical Officer for CWaC) about the importance of a healthy lifestyle to prepare our young people for the transition to adulthood.

Thank you to all of you who came and for the professionals who presented, despite the impending Ofsted inspection.

Useful Info about Preparing for Adulthood

Website Links Shared on the Day:

https://www.ndti.org.uk/search?tag=preparing-for-adulthood

https://www.livewell.cheshirewestandchester.gov.uk/Services/2763

View the Presentations from the Event

Click below to see the presentations given on the day.

January Forum 2022 - Post Event Material Online

Tue, 18 Jan 2022 19:13:39 GMT

Zoom Meeting Material is now available.

from Wednesday 12th January 2022

Listen back to the event or access the slides to learn about;

One Page Profiles

How to create a profile and how to use it effectively.
&

CHAPS ( Cheshire Autism Practical Support )

To access other presentations and events, or for more information, click below.

Recordings from the 2021-22 National Parent Carer Forums’ conference

Thu, 06 Jan 2022 10:17:30 GMT

Recordings and Presentations
from the 2021-22 National Parent Carer Forums’ conference

The 2021 annual joint conference took place from 29th December to Wednesday 1st December 2021, many thanks to all of those who were able to join us. For those who were not able to join us for some or all of the sessions please see the link below to access the recordings of sessions along with associated presentations and resources as they become available over the coming days.

The conference was made up of a variety of sessions including workshops, interactive information sessions, opportunities to feedback and ask questions, learn about health and regional work, and the launch of our diversity toolkit to help you to reach out further into your communities.

December Forum - Post Event Material from 8th Dec 2021

Thu, 09 Dec 2021 12:17:13 GMT

Forum Meeting Slides & Information

from Wednesday December 8th, 10.30am - 11.30am

Click below to hear the presentations and Q&A sessions.

Angela Lewis - Commissioning Manager
will give an update on the Short Breaks programme

Complex Care Health Professionals
will talk about care packages and continence.

People's Choice Group Newsletter

Wed, 17 Nov 2021 09:27:36 GMT

People's Choice Group Project Newsletter 5 is now available to view or download.

November Forum, Hartford - Slides from the Presentations on 10th Nov 2021

Tue, 28 Sep 2021 13:22:55 GMT

Hartford Golf Club - 10/11/21

P resentation Slides are now available

For those who couldn't make it to the event.

Presentations from:

Parent Carer Forum Introduction & Updates

Angela Lewis - Commissioning Manager

will give an update on the Short Breaks programme

Sarah Banks - Disabled Children and Young People's Service

will give you an update on changes in Social Care.

Preparing for the Future - Post Event Material from 13th Oct 2021

Mon, 27 Sep 2021 09:54:56 GMT

Information for Parents

Wills & Estates

by Coop Representative, Jim Wood.

Re-commissioning of SALT Services

update from Emma Leigh

The PCF Forum Meeting from 13th Oct.

IASS Transition to Adulthood - Event Material Online

Wed, 22 Sep 2021 09:58:49 GMT

Transition to Adulthood Event

IAS Service - Free Information E vent

This event has passed but don't worry, you can catch up online:

The following is the link that will take you to the page on the Live Well Cheshire West website, here you can find all the information from the event, including the Speaker Presentations and Market Place Providers.

If you have any difficulties accessing the information, please do contact us for support

Telephone: 07592022734 or Email: iasservice@cheshirewestandchester.gov.uk

Mediation & Advice - Post Event Material from 15th Sept 2021

Thu, 16 Sep 2021 21:56:29 GMT

Together Trust Mediation Service

Information, Advice & Support Service

Please click below to view the recordings and presentations from our event on 15th September 2021. Also Information about Together Trust, our new Mediation Service in CW&C.

Parent Carer Forum AGM - Post Event Material from 6th July 2021

Thu, 08 Jul 2021 14:01:45 GMT

Mental Health and AGM

Thank you to all of you who attended our AGM.

Please click below to view the recordings and presentations from the event. Also a link to our Annual Report and Financial Report.

Transition Forum - Post Event Material

Tue, 15 Jun 2021 21:51:47 GMT

Recording & Material from Wednesday 9th June Event

Thank you to those who attended our Transition Forum on Wednesday and to our presenters for giving their time, it was an extremely informative session.

catch up if you missed the presentations

CLICK ON THE LINKS TO THE FOLLOWING:

Watch a Recording of the Event

Slides from the presentations

Supported Internship Brochure

Guide to Help Support Your Child Through Transition

Also click here for the LiveWell website that will direct you
to more information around Preparation for Adulthood.

We are in the process of collating the questions and will send these to the presenters
to compile their responses. As soon as we have these we will circulate to everyone.

Any questions, then please feel free to get in touch.

E mail : secretary.pcf.cwac@gmail.com

May 4th Forum meeting recording and presentations.

Tue, 18 May 2021 15:20:34 GMT

May 4th Forum meeting recording and presentations

Thank you so much to Scott Billingsley and Angela Lewis for presenting at our Forum meeting on Tuesday evening and for all those who attended and contributed.

A lot of questions were raised during the meeting and these have been shared with Angela Lewis and Bo White. Julie Duff, the Chair of the Parent Carer Forum, has met with Angela and Bo to discuss the issues that were raised and are planning to put together a focus group to allow further discussions between parent carers and the Local Authority about the lack of wraparound care for children with SEND. Further details and a request for involvement to follow.

You can download both the May Forum Presentation and the May Forum Recording using the buttons below.

pcf-cwac

Understanding Quality First Teaching and Reasonable Adjustments

Presenting the Knowing ME profiling tool at the CANDDID Conference 2026

CWaC LiveWell Newsletter - March 2026

Understanding Mental Capacity Webinar Overview from 26 March 2026

Newsletter March 2026

Education & Mental Health Forum - May 2026

Interface Between Neurodiversity and Mental Health Pathways

Supporting Education: SEND Parent Training Webinar - April 30th 2026

Benefits & Support from March 2026

Parent/Carer Coffee Events

Newsletter February 2026

Preparation for Adulthood - Feb 2026

Easter Holiday Clubs & Activities

PINS Project - Phase 2

Endorphins latest Newsletter

Newsletter January 2026

PCF Cheshire West & Chester: National SEND Discussions – Brief Update

Naming Schools in Education Health Care Plans (EHCPs)

Information Advice Support Service (IASS) - How we can help you navigate the SEND system?

Newsletter December 2025

Neurodiversity Profiling Tool ... UPDATE... Parent Carer Training - Knowing Me.

Knowing Me - Neurodiversity Profiling Tool Parent Training Update - December 15th 2025

Why parent training matters

Book a parent session

PCF Survey 2026 - The Big One!

International Day of Persons with Disabilities Event

Newsletter November 2025

PCF Monthly Roundup

Early Years, Sleep & Toileting Forum – December 2025

What Are Reasonable Adjustments?

If you or someone you care for has a disability, you’ve probably heard about Reasonable Adjustments and Digital Flags in the news. Here’s what they mean and what’s happening locally in Cheshire West.

SEND Area Inspection – What’s Been Happening and How the Parent Carer Forum Has Represented Families

Neurodiversity Forum November 2025 – Highlights

Special Educational Needs (SEN) Support

PINS Project - Phase 1

PINS - Phase 1 Updates

Newsletter October 2025

PCF Monthly Roundup

Volunteering Team

Virtual Parent Training: Empowerment & Communication

Disability Services Advocacy Team Sessions

Parents’ Voices Shaping the SEND Strategy …Now & Next!

What is PINS?

Supporting co-production between parent carers and school

Which children will the PINS project support?

PINS will support your school to enable every child to thrive, have a sense of belonging and feel safe.

It is a whole school approach that uses the power of working in partnership with families and professionals to build an inclusive culture where neurodiversity is a valued strength that adds to the school community.

EXPANDING REACH

Newsletter September 2025

A very warm welcome back!

Free Information Sessions for Parent Carers

Volunteering Team

Neurodiversity Profiling Tool- Update

September 2025 Virtual Forum - Who Are We? & Meet the Directors

Who Are We? – PCF Forum & Meet the Director of Education & Inclusion

Newsletter July 2025

A message from our Chair, Julie Duff

Shared News & Updates

Representation Stages

Engagement

Co-Production

CWaC SEND latest Newsletter

July 2025 Edition

Introduction from Amanda Perraton, Executive Director for Children and Families

OUR IMPROVEMENT PLAN AND STRATEGY

Newsletter June 2025

Trust, Inclusion, and Leadership in SEND

Professional Updates & Engagement

AGM 2025

Second SEND Summit 2025: A Snapshot

School Uniform - Have Your Say

Cheshire Neurodevelopmental Clinical Network - Update

Neurodevelopmental Support Resources

Cheshire East Place is pleased to announce new proactive support resources for neurodivergent children, young people, and their families, regardless of where they are on their neurodevelopmental journey.

Professional Feeding Working Group

SPOTTS Access

Adult ADHD

Neurodiversity Profiling Tool

Newsletter May 2025

Knowing Me - Neurodiversity Profiling Tool
Parent Training Update - December 15th 2025

Neurodevelopment Forum (Hartford)
(you said we did)